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Anyone started with the NDIS?

Anyone started with the NDIS?

Tells my story from initial application (Feb '17) to acceptance by NDIS (July '18) and the process of putting things in place and progress, improvements, managing and difficulties since then. Now Jan '21.

Original post : I've recently moved and will need to get into the NDIS in my new location. Wondering if anyone in the forums has successfully done this? Any advice would be welcome. Feeling swamped by their website.

EDIT : I was finally accepted to the NDIS and am now 3/4 through my 2nd plan. With only a small reduction from the first year. And this plan is for 2 years so I don't have to jump through all the hoops with a review this time next year. To all others on this path I say ........

IT'S REALLY WORTH PERSEVERING!!!

Hoping this thread helps all who come here.

@Appleblossom @Queenie @saturnzoon @CheerBear @Mazarita @Bunniekins

Spread the word!

927 replies

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In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Oh 😢 @eth I’m so sorry to hear that. I can’t believe how it’s come to this. It seems so ridiculous that the organisation that is set up to help NDIA/S is causing you so much harm and making everything worse. I can’t believe they can do this, it seems so wrong. You haven’t committed a crime, not even fraud.

Just a thought though that maybe your psychologist is afraid of being corralled too and unintentionally saying something that might make it worse for you. I’m sure they don’t want to that to happen for you or them.

Thinking of you and feeling so much for you just now.

💜🤗

In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

@eth I don't have much to say except that I can only imagine how stressful, taxing and difficult (and so many other words) this has been for you and how much of a blow that kind of news might be.

😞 Sorry to hear eth

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Thanks @Teej @CheerBear I just feel like curling up in a ball today.

In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

I understand that feeling (from my perspective) well @eth. For what it's worth, I am a couple of short weeks into this process. I've just spent an hour and a bit drafting up attachments to go with the access request form and writing details about the functional impacts of my stuff, in the domains we are looking at. That alone is enough for me.

I think you're brave and courageous and strong for having gone through all of this as hard and as long as you have. I wish it wasn't so hard.

Can you spend the day resting?

In response to: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

@eth Darling eth will be watching over you during this process. It is all bullying tactics of which I am not surprised. Have faith, be strong you will be okay. You are a survivor.

greenpea

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi @eth, sending big hugs.

They are pulling out all the stops, so brutal towards people who are vulnerable.

I often feel afraid of the kind of thing that you describe, which is the main reason I don't tell my GP, psychiatrist or psychologist everything about my life. Most things but not all. I wish I could tell them everything. It would be more therapeutic. But, because our privacy with them runs a risk of being dragged into the open, as is happening with you, I hold back on some things. I also saw this happening in the family court, where I worked as a court officer temporarily for some months many years ago. Vulnerable people being badly mistreated, even humiliated. It makes me deeply angry on your behalf.

But that may not be of much help to you. I'm having another feral, collapsed kind of day here on the computer. It's relaxing though to let go of everything for a while sometimes. Soft fabrics, self nurturing, curling up in a ball. All valid responses I feel.

Hugs again, and love, and hoping you still win out over the b*stards anyway. ox

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Go Gently though this journey. @eth

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

Hi @Mazarita @Appleblossom @CheerBear @Bunniekins @Teej thankyou all so much for your words of support and the beautiful butterfly Appleblossom. I feel more like the caterpillar in the crysalis! I did curl up most of yesterday but I'm not feeling much better this morning. Dreams of exes not helping. Quite a broken night. Had a good talk with sil over dinner and at least she said it's understandable to get down about all this, rather than pushing me to get out of the doldrums like often happens. Psychologist said just try to do one thing each day for the time being - I did two yesterday. Planted sweet peas where I can see them from the cabin and cooked a green veg curry for us all. It's still 3 weeks til the hearing, I hope I can find my fighting spirit before then.

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

PS It's really nice to see you again @Bunniekins xx

In response to: Re: Anyone started with the NDIS?

Re: Anyone started with the NDIS?

@eth

It took me a while to find the thread......Just further confirmation of head ...mind...focus...blech

this is not about me though..apologies in advance if my words do not convey my true meaning..

I am enraged..appalled...hurting..indignant and so much more..

you have done everything by the book..followed every procedure..process..

so please please do not allow this disgraceful treatment to become any part of who you are....

do not turn these feelings inward please..

do not allow this system to change in any shape or form..your perception of self..

you are still the strong..independent..reliable..compassionate Eth..

you are everything and so much more than "they" are..

Your beautiful soul must not be tainted by this failing of promised support..

nurture your inner feelings..tend to your pain and care for the inner strength...

you have been such a kindred spirit on the rave thread along with @Mazarita when I needed to step back...hide in the shadows ..find a safe place ..at the same time not feel abandoned..

thank you @eth for holding me up..

let us and so many who support you hold you now..

I hope that I have not said too much...I feel so much for your pain from the bottom of my heart...

I want to ensure that you feel safe at this time ...in the present...

💚💚💚

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