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Having support is so important. I could survive without it.

Having support is so important. I could survive without it.

The end of another challenging day. My husband has borderline personality disorder. He is also suffering from some form of Parkinson’s disease but he is deteriorating before my eyes. He is getting lost in the house he has lived in for 13 years. I have to show him where the toilet is and where his room is. . This afternoon he asked me if this is our house. Then he was angry at me for confusing him. I’m feeling exhausted. I have done support work in the past but it is so different when it is a loved one. He is also sleeping during the day and up all night. I just hope when we see the Dr tomorrow he is able to help him. I think it is important to have as much support as you can get. I’m glad that I have an outlet such as Sane to turn too.

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In response to: Having support is so important. I could survive without it.

Re: Having support is so important. I could survive without it.

@Walkoneggshells I think we can all imagine just how extremely difficult it must be to see your husband deteriorate the way he is. Hopefully, his Dr can help him and even arrange some support for him to make it a little easier for you as well.

We're here to support you when you need it and it is so important that you look after yourself as well. For yourself and for your husband. Have you looked into some form of respite care, or even just some support worker to come over to give you a little break every now and then... even if it's just for an hour or two. Hopefully you have some family and/or friends around how can help and support you as well.

Remember to look after yourself as well.

In response to: Having support is so important. I could survive without it.

Re: Having support is so important. I could survive without it.

Hey @Walkoneggshells

I'm sorry things are so challenging. Good on you for seeking support. I hope the doctor goes well tomorrow. Keep us updated (if you would like to). I think this week is carer's week - a time to celebrate all the amazing work carer's like yourself do. Hopefully, you get some time to look after yourself as well.

In response to: Having support is so important. I could survive without it.

Re: Having support is so important. I could survive without it.

hey @Walkoneggshells so so glad to hear that you've found SANE as helpful outlet. i can see how difficult and challenging it is to look after a loved one, and it takes great strength to be able to look after yourself in that process too. really grateful to have you in the forums, sitting with you 💗

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