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FND any one else?

FND any one else?

So I've been out of hospital for 10 days after 14 weeks in. I suffered an infection (mrsa) before it and landed in Ed which resulted in fainting and waking up to right side weakness and loss of speech. That week I was diagnosed with FND. Now I am at the mercy of my mother and living in her house due to losing my independence and in a wheelchair. I have no autonomy. Mum didn't even care for me as a kid so I am losing my mind. My siblings don't want anything to do with me and most of my family and friends supports are mute. I'm alone most of the time and all I think about is having peace by leaving this life. I tried a psychologist today and it was done through email which I I found little benefit anyway, just trying to make it through each day and not hate myself and this life. Anyone else lucky enough to experience this level of sucky? 😂

39 replies

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In response to: FND any one else?

Re: FND any one else?

Hey thank you, I try to avoid calling mh call because of trauma but I've tried everything else and there's no help. I think I've just reached that desperation point to do it.

In response to: Re: FND any one else?

Re: FND any one else?

Hello @Former-Member @moderator are you safe? Sitting with you. Please keep us updated.

In response to: Re: FND any one else?

Re: FND any one else?

@Former-Member ,

I hear how hard today is for you.

You deserve to feel supported.

If you feel unsafe, can you call 000?

Please let us know how you go.

In response to: Re: FND any one else?

Re: FND any one else?

Hi it's been very disappointing I called mu to only be told my location puts me in the place that left to die in August and I try to forget daily of that mistreatment from health professionals. There's a current investigation in place. I'm devastated. There is no option left that is positive for help, and not do more harm. I'm all alone and going to have to battle my own demons I guess. Try to distract myself from reality and the emotions I guess

In response to: Re: FND any one else?

Re: FND any one else?

Hey@Former-Member I am sorry to hear that this has left you feeling so distraught. It sounds like you're feeling very alone at the moment, so I just wanted to let you know I'm here to sit beside you and support you 💜

Distractions are a great way to cope, what have you got to try to keep yourself occupied this afternoon?

In response to: Re: FND any one else?

Re: FND any one else?

Well I'm stuck in my room because my mum husband just triggers me and spikes my emy

otions so I have my headphones on, fan and Ice pack to try and cool down and not be mad that I expressed posted an air con here but not allowed to install till mums husband goes away so he doesn't get mad 🤦🏻‍♀️ Disney movies it is

In response to: Re: FND any one else?

Re: FND any one else?

Oh nice one @Former-Member using ice packs and headphones - it's wild how much our sensory overwhelm can add to our emotional overwhelm!

That sucks about being triggered by your family - is it a lack of understanding or some stigma type thing you're dealing with, or something else? (Also, I know you're in distraction-mode so if talking about it is gonna make your emotions spike more, then no need to answer!!) And that's annoying about the air con - must be hot where you are? It's frosty down here where I am in Melbourne!!

Oh I love a good Disney movie, solid comfort option!! Got a movie or show picked out? I watched Inside Out 2 recently, was really good!!

In response to: Re: FND any one else?

Re: FND any one else?

Thank yeah it said felt like 35 degrees 😩😩 after 14 weeks in hospital my body is not regulating to temperature well but I am aware I also get hot when distressed.

i actually just fell asleep😂😂 so now awake watching beauty and the beast live till my mum and her husband sleep and i can enjoy the night in peace 😂😂

but her husband doesn't have kids and feels I'm taking her away or something. I have tried everything but nothing seems to help so honestly I'm just surviving till I can get ndis and leave

In response to: Re: FND any one else?

Re: FND any one else?

@Former-Member oh my goodness 😵 I feel for you, I struggle in warmer temperatures - and it would be a bit of a shock to the system after so long in climate controlled air con!!

Spray bottle and a hand fan, my besties in the summer haha. How you doing now anyway, cooled off a bit?

Oof, sounds like a very tricky situation... Ain't no shame in hankering down in survival mode until you can skedaddle. Do you have much interim support, someone you can chat to while you wait?

And invitation is always there for you to have a vent if you need it - sounds like a complex, potentially toxic situation with your mum and her husband, no? What's shareable is bearable I always say, and I'm always happy to listen if you think it could be therapeutic to write about. Up to you 💜

In response to: Re: FND any one else?

Re: FND any one else?

Thank you that would be really nice!

it is super toxic and I feel terrible because I can't even express my emotions to my mum and I know she cares but she's in the thick of it and doesn't get it and it makes her hell worse and I can't get any worse so no point.

i have a psychologist but im non verbal and so have had do email and in an hour little feels done or any connection and I just walk away feeling like im wasting sessions.

i am at a loss, i am so worried about my mental health and have no help options left. I have desperately tried everything.

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