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Here Are Ten Things I Wish Would Change

Here Are Ten Things I Wish Would Change

1. I would like it to be mandatory for mental health patients to be interviewed in the presence of a carer, at least for part of the interview.

2. There needs to be a dramatic increase in psychiatrists. Every regional centre should have a psychiatrist.

3. Every public hospital should have at least one resident psychiatrist.

4. There needs to be a special benefit available to carers who are caring for several people with a disability or who need to give up work to be able to do so, and it needs to be about 10 times as much as the current carer's payment.

5. Police need to do an inservice annualy on Mental Health issues as they affect families. Particular emphasis needs to go on how to assist families in which someone has gone missing.

6. Psychiatrists also need to do inservices on how Mental Illness affects the whole family and in particular, where most or all of the family has MI issues.

7. CAT teams should be replaced with a regional service in which every major town has a psychiatrist, a psychiatric nurse and a social worker who visit you in the home during a crisis.

8. The number of beds for psychiatric patients in public hospitals needs to dramatically increase. A large weight of emphasis for decision making about hospitalization should be with the carer.

9. The government needs to employ service personnel who will pose as visitors but are secretly observing the staff on psyche wards to check on their bedside manner and level of care.

10. There need to be separate areas in psychiatric wards for patients who are not violent, loud or angry and need to be in a place of quietude.

30 replies

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In response to: Here Are Ten Things I Wish Would Change

Re: Here Are Ten Things I Wish Would Change

Hi everyone,

my first post but I have been observing yours intently.

I am in a fortunate space that my daughter engages and trusts her husband and myself in her ongoingwork to remain as well as possible. She has a BPD and Bi Polar disorder diagnosis. Being able to attend appointments with her psychiatrist has been a massive benefit for us all. Done with her consent of course

I agree with all that has been posted. One of many things I would change is education for community. Once we have an appropriate level of govt support in place how good would it be for all to have basic psychological first aid training, so as to know how to actively listen, support and refer in early stages and break down the fear that exists for many around not knowing how to interact with people with mental illness - peer support, with friends who get it , has been and continues to be a major part of my daughters ongoing mental health management.

An earlier diagnosis may have been possible if we all understood more. She wasnt a tear away teenager like many thought!

In response to: Here Are Ten Things I Wish Would Change

some things I wish I could change about the mental health system

1. more psychiatrists needed in the private hospitals, they're not much better than the public system

2. more engaging activities for patients to participate in. It is so boring for them in there. The meditation tape every day doesn't really cut it after a while

3. better equipped gyms in the hospital. Where my son is, there is a running machine machine that doesn't work and that's it. Isn't exercise one of the 'helpers' for mental health?

4. more psychologists needed for the hospitals; the psychiatrists are there for 5 mins every couple of days, patients need more

5. outside mental health organisations should be encourged to visit patients, there are so many out there and only accessible if you know who to contact. No advice is given by hospital staff to help patients cope when they leave hospital. That's why they keep returning.

I will finish with my son's story. He has been in and out of mental health institutions for the last 10 years, and keeps returning because no one can help him. This last visit is the final one for him, he won't do it anymore, and we all hoped he would get a competant psych and things would change. A miracle happened, he found one who understood him on every level, good to talk to and similar interests. What happened? She went on holidays for a month and didn't tell my son she was going, just wasn't there one morning and he had to ask the nursing staff where she was. Now he is being discharged without getting any help. Again. I hate these places.

In response to: some things I wish I could change about the mental health system

Re: some things I wish I could change about the mental health system

Hello @Heff and @Trailrider43 and welcome to the forums and thank you for your contribution which will strike a chord with many people. I am so glad your son has found a competent psyche that he likes. That is a great blessing, even though she took off on leave without notice to you. At least you know she will be back. I share all of your concerns and like you I have a son who has been in and out of psychiatric hospitals for a long time. That period after being discharged is the time in which the patient is the most vulnerable, in my opinion. Follow up care is extremely important. It is also something you should be able to expect and demand ie the next time he is being discharged, ask the doctor what arrangements will be in place for follow through care. Put the ball in their court; they SHOULD be doing this.

In response to: Re: some things I wish I could change about the mental health system

Re: some things I wish I could change about the mental health system

Continuity and clear communication from MH staff.

In response to: Here Are Ten Things I Wish Would Change

Re: Here Are Ten Things I Wish Would Change


@perseverer wrote:

1. I would like it to be mandatory for mental health patients to be interviewed in the presence of a carer, at least for part of the interview.

6. Psychiatrists also need to do inservices on how Mental Illness affects the whole family and in particular, where most or all of the family has MI issues.


Agree with all but esp 1 & 6

Add to that carers need to be taken more seriously and where necessary included in consultations at least part of the time. To be treated with respect and part of the solution not as part of the problem and discredited to the person being cared for.

In response to: Here Are Ten Things I Wish Would Change

Re: with the careerRe: Here Are Ten Things I Wish Would Change


@bina wrote:

I agree there should be more communication with the carers they must feel more comfortable and at ease.



Especially to be included in discussions about treatment options. Nothing worse than feeling insignificant and concerns disregarded.

In response to: Re: with the careerRe: Here Are Ten Things I Wish Would Change

Re: with the careerRe: Here Are Ten Things I Wish Would Change

Hello @Determined, and thank you for joining in the discussion. I wrote a letter of complaint recently to my local health care providers and I was pleased with the way it was handled. They had a meeting with everyone concerned at my local hospital - the Director of Nursing, the Head of ED, the Day Programme for Ward E Co-ordinator, the staff on Ward E and the psychiatrist who saw us in ED. Then a nominated spokesperson phoned me and went through every one of the points of complaint that were discussed and resolutions sought where possible. Some of my points have to be dealt with at state government level. But one thing in particular that was resolved was that the hospital is going to have a further meeting to design a procedure for admission to the psyche ward that sidesteps going through ED and/or the Case Manager who is not available after hours. The psychiatrist apologised to me and I accepted his apology. And I was able to impress the point that not everybody who is seriously and acturely ill looks as though they are.

In response to: Here Are Ten Things I Wish Would Change

Re: Here Are Ten Things I Wish Would Change

@perserverer @Appleblossom @Determined @Shaz51 @bina @Trailrider43

I am currently waiting on a response from the clinical director who I saw following a letter of concern I wrote following Mr Darcy's hospital stay and the lack of communication that occurred.
@Heff I pointed out that the hospital was foolish not to engage with

In response to: Here Are Ten Things I Wish Would Change

Re: Here Are Ten Things I Wish Would Change

@Heff I pointed out that the hospital was foolish not to engage with outside mental health organizations and that they could provide a number of services taking the pressure off case workers and hospital staff

@Shaz51 @Trailrider43 I brought up the need for carer education, I did not know what questions to ask in the early days. One of the pdocs told to 'look things up' and when I did, I found that vital information about Mr Darcy's condition had not been elicited even though he had many visits and hospitalisations over a 2 year period and when it was provided a new 'diagnosis hypothesis' was made and so far he is responding well to treatment.

@bina @Appleblossom I reminded them that the carer is an integral part of the care and treatment team and of the research that confirms better patient outcomes with family - carer support.

As his carer, I now pull out the note book at Mr Darcy's appointments and write pertinent information in it. I ensure that I understand the treatment plan and will not leave the consulting room unless I do. The doc speaks to him on his own first, at the appropriate time calls me in and summarizes, then asks for my thoughts. I can then confirm that what the doc has understood is right or let them know if something has been missed. Mr Darcy is happy with this and since becoming informed I have been to and it is working well.

Darcy

In response to: Re: Here Are Ten Things I Wish Would Change

Re: Here Are Ten Things I Wish Would Change

Good one, @Former-Member. Please let us know what the response from the hospital is. I was frustrated beyond discription for many years at the lack of information available about my eldest son's condition. For many years he was catatonic - no-one explained it to me or gave me any understanding of treatment. What eventually stopped it was trans cranial magnetic stimulation, and I only found out about that accidentally from an American correspondent, and when I brought it up with my son's psychiatrist he saId is was available and my son would be eligible for it. Why didn't he just tell me? Why did my son have to endure those years of needless misery? Lessons learnt the hard way - as a carer you have to do your own research and ask informed questions.

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