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Carer mental health and supporting a loved one with alzheimer's disease

Carer mental health and supporting a loved one with alzheimer's disease

Hi Family and Carer community

I'm interested to know if we have many members who have a lived experience of caring for a loved one with Alzheimer's and managing your own mental health in relation to that diagnosis?

I would be really interested to hear from you and understand your experience in terms of mental health impacts of this type of experience, what is that journey like, what sort of support is available and what do you need or would want?

@tyme and other moderators if you could tag in some of our carer leaders to draw attention to this post?

Thanks

Rachel

27 replies

11 - 20 of 27

In response to: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

Hi there @Dep1967 ,

Thank you for sharing. It sounds like your family has been through a lot recently.

I'm glad it sounds like your mum has the care she needs.

Does your sister have access to the NDIS? Or would she consider applying before the cut off age? I'm sorry to hear that at the age of 60, she is found 'alone' and having to cope.

I hope you find a way for her to develop the independence she needs.

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

Hi @Dep1967 @Harmonium

Don't think I have met you before.

Thanks for sharing your journey with us. I hope both of you are doing ok.

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

My sister is on a disability pension for years now. She drives to activities shopping and medical appointments herself. Has been diagnosed with agoraphobia

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

I’m noticing my stress level has dropped a bit and thinking clearer. Trying to look after husband and myself better

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

Hey there @Dep1967 ,

Being able to drive can definitely give an individual independence. I'm glad your sister is able to get out and about if she is able.

Do you have supports for yourself?

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

I have had counseling through Carer Gateway for coping with dementia now would like help if or when our 32 year old son moves back home on workers compensation with computer games and ‘dungeons and dragons’ game addiction

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

@Dep1967 ,

Do you have any boundaries in place before your son comes back to live with you? I wonder if having a discussion about what YOU expect will help?

Is it fair to say you are a little unsure of things in terms of your son returning?

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

At the end of 2022 I became a student at the local university college to brush up essay writing and presentation skills, scientific thinking and advanced mathematics. I completed this course with high distinction and enrolled in a medical science diploma in autumn 2023 studying part time just 2 subjects. Still visiting mum and running her errands. By June 2023 I had to withdraw because of mums progression in dementia and demands of my sister and aunt.
This year I found permanent residency in aged care then put mums house on the market involving months of clearing out and me thoroughly cleaning the empty house. Finally July 2024 that house caretaking role is over.
I wonder if I will study again or work again? Then I think my sister will have a meltdown or my son move back home. There are no grandchildren yet (daughter moved to Victoria with boyfriend)

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

Hearing you @Dep1967 .

I hear there is a lot to think about.

At the same time, you have a life to live. A life beyond your sister and son. Do you want to continue studying? Have you looked into study options? Nowadays, there are so many alternative ways of studying which may be helpful for you.

Hope things work out for you.

In response to: Re: Carer mental health and supporting a loved one with alzheimer's disease

Re: Carer mental health and supporting a loved one with alzheimer's disease

I’m quite unsure about the reasonable way to respond because our son is not cooperative with house or yard chores to help his father
11 - 20 of 27