Red's house

You are right @The-red-centaur . And I think the more we go on, the more we realise that our lives are not perfect, yet resilience helps us push on.

Keep going my friend.

Ive been trying to focus on a few ofline things lately.

Today has been hard. I usually go out with friends in Saturdays. But I woke sick and in bad pain.

Im tired of my body failing me. I'm sick of being in pain. My joints are severely swollen, it hurts to move or walk or even this texting hurts coz my hands aren't working properly.

Im tired. It's been a long day. I just want to rest. I can't tho. My mind feels sluggish, my eyes are heavy, but my body won't surrender to sleep. Pain is exhausting and I'm already tired.

I developed an ear infection and bad tonsillitis over the weekend. I'm so tired.

@The-red-centaur oh that's horrible to deal with both of those things especially at the same time. How are you feeling?

@Former-Member hey.

Im still really sick. I'm tired and everything hurts.

@The-red-centaur I'm sorry to hear.

Sending you gentle, healing vibes. Take care of yourself.

@Former-Member i heard today the ndia want to do a plan review and cut a lot of my funding. I've been waiting on a plan review for over a year to get extra things included in my plan. I might lose my accommodation. I'm scared.

I am too sick to really push back at the ndia if things have to change. They already moved me last year, it's not out of their abilities to do it again.

They want reports in by Monday to prove i need the supports, and they are saying the documentation i submitted over 12 months ago for the review I never got are outdated.

I am sick, I am tired. I just want to sleep for a very very long time.

Oh @The-red-centaur . That sounds so stressful and definitely not what you need right now. Have you got someone to help you with getting the information that they need? I'm not too sure how the system works as I'm still yet to even lodge my paperwork, so I'm not very helpful there.

But I can be here to listen and chat to you. I can imagine you'd be feeling so drained already without this being something else to worry about.

Sending you lots of love and strength ❤️

@Former-Member i got a new specialist support coordinator this week. I only spoke to her briefly today. This was all news to both me and her. If we had a few weeks my team could do new reports, but it's impossible to do anything in a few days, let alone on a weekend.

I won't even been included in the plan review, which is equally frustrating because I have things that I need addressed, I haven't had a formal planning meeting since joining ndis some 3 years ago. My life is massively different now since then.

And yeh, im drained. But I'm anxious and overthinking. I can't sleep.