Thoughts for Sydney

Unfortunately @mouse1 there is still widespread ignorance in many circles about mental health. The misinformed judgement from those that labelled your son 'mad or bad' is an example of this. There is still a lot of education needed to both be able to help and support people just like your son. I can see you have done everything possible to support your son and the outcome has been a positive one for him. I do know that does not take away the worry and concern for him nor the concern that he may one day again be faced with negative perceptions or those ill equipped to deal with his illness. We can all hope that those on the frontline, with archaic views, can be further educated on how to deal with someone with a mental illness. The system (overall) has a long way to go but there is hope.

@mouse1 As a mum myself with a now adult son with mental health issues, I think we all worry as our children get older and the potential for interaction with police, that we may not be their to advocate for them in matters especially when dealing with mental health episodes. Like you it too is one of my biggest fears.

I do strongly feel police need to do training in other ways to interact with those who have mental health conditions, which in some situations can actually esculate a situation to greater harm rather than have been de-esculated with minimal risk to all those involved if they had actual knowledge/skill development in these types of areas regularly through out their careers.

In some states I will acknowledge, police actually do training in Autistic behaviours and how to recognise them and what approach to take to someone, at that person's level. No different how they would treat a young child, elderly person or someone with Dementia.

I also would like to acknowledge, the Bondi incident had already esculated far beyond a level where police had to take further action to prevent more casualties. And each incident needs to be treated on a case by case basis.

I would love to see major change and funding for more services from the government as an outcome to the inquiry that will happen from the Bondi incident but it won't help those with families and friends or those who identify with living a schizophrenic condition but will further drive stigmas around those who do unfortunately.

One person's actions should not tarnish those in the community with the same brush nor fear to those who acknowledge their diagnosis from bias by those who do not have mental health conditions.

I would like to see a campaign to encourage awareness in the community.

I don't have experience in fundraising or running campaigns but I think it would help to raise the awareness in the community,of all the good work that mental health staff do including all the residential staff, of whom there must be thousands across the country, who work to support people who are neuro diverse or are struggling with challenging behaviours due to cognitive limitations.

A campaign might shine a light on the important work they are able to do. It appears to me that generally speaking, not much is known about the impact these conditions have on families and the community or how families navigate the health system to get assistance for their loved ones.

It was difficult to see how distressed the parents were when they lost their son in those circumstances including the families of the people who lost their lives. It could have been prevented if systems to follow up people were in place, who instead get lost or forgotten.

Also, I don't think mental health training for police is adequate. From my own experience it appears police attempt to control by neutralising people instead of de escalating situations involving people experiencing psychosis, which inevitably causes more trauma and harm. [edited by moderator]

My son is currently undergoing assessment and treatment for his paranoia in hospital. I too share similar feelings and want you to know that you are not alone.

Cp🙂

Let's go 😎

Hi,

I am going to be honest. I haven't read posts in this thread. It is too much. I just want to copy and paste what has been unsettling for me. I would be curious to know if anyone else in these forums has had thoughts on what I raise.

From what I see the act of serial killing is being attributed to so-called 'psychosis, so-called 'schizophrenia'. And the media is presenting this story that "treatment" is only "medication". And blame is being put on Joel Cauchi and others for him being "unmedicated" - making a false accusation that because he came off his medication he caused harm to others and himself.

The biggest failing I see in the media and inquest ( and I am not inside so really know nothing) is that they are not telling the truth about the inadequate training knowledge and expertise of clinicians to support people to safely taper off their medication. Then because they do not report on this. They also don't report on the withdrawal symptoms that are to be expected when coming off medication. And how severe and dangerous these symptoms can be if tapered off unsafely/too quickly.

As I said, I have no idea if Joel was tapered off correctly. I do know, most clinicians don't know how to support people to taper off safely. So there is a likelihood - he experienced withdrawal symptoms - I am not even sure if you can avoid them.

Media says he was slowly taken of (word I cannot name in this forum), but is not so clear on the (other med I cannot name), The Guardian report made it sound like he was taken off (the second med I cannot name) just like that?!?!

And of course NO ONE mention's Akathisia: https://akathisiaalliance.org/

-directly linked to homicide and suicide and directly linked with coming off psychotropics.
What has seriously unsettled me is that, Joel Cauchi had " a funny gait" which the community of peers suffering from Akathisia have well documented. 🙁

What is dangerous is the results from the media/inquest not acknowledging any of this.

I can see MORE people forcibly, or voluntarily put on psychotropics. Clinicians continueing to not have accountability in supporting people to get off meds safely - and then MORE Akathisia which equals MORE homocide - MORE suicide.

And all the while spreading a lie that lets everyone continue profiting from this. REALLY GROSS.

GASLIGHTING -"withdrawal symptoms ARE relapse". When the reality is - unsafe tapering can bring on MORE SEVERE symptoms of psychosis than prior to starting medication. As found in this report:

https://pmc.ncbi.nlm.nih.gov/articles/PMC8450618/

People living with any mental health diagnosis related to 'psychosis' will face more stigma and discrimination. People living with a 'schizophrenia' diagnosis will face more stigma and discrimination.