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Friends, families and carers

D.I.D....

D.I.D....

Wanting to know if there's anyone else in this group caring for someone with D.I.D.?

We've got a family member with a very "crowded" internal world of multiple personalities. This goes along with compulsive behaviours, phobias, social anxiety, derealisation and other difficulties. The person in question sees medical and psychological practitioners regularly; it's a disorder that apparently doesn't respond to medication, and they have previously reacted badly to medications that have been trialled; I'm seeing a psychologist regularly myself to deal with the pressure and get some feedback/backup. I have a supportive husband and family, but otherwise it's hard to know how to or who to talk with about what's going on. It's an uncommon enough disorder that you have to explain an awful lot about it before a conversation can even really start, and then you run into dangerous ground regarding the privacy of the person in question.

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In response to: D.I.D....

Re: D.I.D....

Hope so @Determined. She rang last night wanting us to drive her and her brother into a doctor's clinic half an hour away which she thought was open until 10- her for a suspected UTI, him because it sounds like he's coming down with a cold. But we got her to double check, and turned out they closed at 8. I checked up online, and her symptoms are probably part of the aftermath of the latest incident.

Suggested she ring Nurse On Call for ideas to treat then symptoms. Somehow she ended up with the Poisons Information Line telling her that after that incident she should be recovering in hospital not at home. And they filled her in on some other possible after effects that we weren't going to mention due to her history of "adopting" suggested disorders. We discouraged the idea of going back to the hospital. Told her to ring ER and ask first. Am hoping that with her file in front of them they could confidently tell her that she's OK to be at home.

So I can see that somehow she unconsciously needs to feel like she's in an ongoing full blown ambulances and emergency department crisis situation. What I don't get is how she seems to be able to get medical professionals to be complicit in it?? I'm not there to hear what she says on these assorted phone helplines, but they almost always end up with her being told to call an ambulance. 😞

Am very tired of living in a mini-warzone.

In response to: Re: D.I.D....

Re: D.I.D....

@Smc

In response to: Re: D.I.D....

Re: D.I.D....

Ta @Determined.
She did end up going in again last night. Tests and x-rays came back all clear.

In response to: Re: D.I.D....

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@Smc

Continuing to keep you in thoughts and prayers.

In response to: Re: D.I.D....

Re: D.I.D....

Thanks @Former-Member.

Incidents of SH are continuing, i think a coulple of times this past week. At the moment though, they're consistently happening in a dissociated state, so it's hard to know what her "intent" is.

The dissociation is of concern. The complete "tuning out" before, during and sometimes for a little while after the incidents means that she feels as if she genuinely has no control over what happens. I don't know if she realises that dissociation is a way of abrogating self-responsibility. Yes, in that state of mind, a person can be genuinely unaware of and not in control of their actions, but there is a point of slipping into the state where she needs to learn to fight to retain conscious control. We've spent years watching her slip further and further into a sense of helplessness, and it's gotten so entrenched that it wil be seriously difficult for her to regain command of herself. It's a dangerous place for her to be in.

We got a call yesterday morning re. one of the SH incidents. Having gotten basic details off her, we went to a friend's wedding, and enjoyed it very much, despite the somewhat poignant reminder of the "better or worse.... sickness and health" part of the vows. Because in a way, those vows also extend to the children of the marriage. Have never regretted the marriage, but wouldn't mind a stretch of "better" and "healthy" for a while. And enough "richer" to not need Centrelink...

In response to: Re: D.I.D....

Re: D.I.D....

@Smc 🌸🌷🌹

In response to: Re: D.I.D....

Re: D.I.D....

@Smc 💐🙏

In response to: Re: D.I.D....

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@Smc

Continuing to think of you and family 🙏

In response to: Re: D.I.D....

Re: D.I.D....

Checking in @Smc

In response to: Re: D.I.D....

Re: D.I.D....

@Smc .... 💜💐

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