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Friends, families and carers

D.I.D....

D.I.D....

Wanting to know if there's anyone else in this group caring for someone with D.I.D.?

We've got a family member with a very "crowded" internal world of multiple personalities. This goes along with compulsive behaviours, phobias, social anxiety, derealisation and other difficulties. The person in question sees medical and psychological practitioners regularly; it's a disorder that apparently doesn't respond to medication, and they have previously reacted badly to medications that have been trialled; I'm seeing a psychologist regularly myself to deal with the pressure and get some feedback/backup. I have a supportive husband and family, but otherwise it's hard to know how to or who to talk with about what's going on. It's an uncommon enough disorder that you have to explain an awful lot about it before a conversation can even really start, and then you run into dangerous ground regarding the privacy of the person in question.

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In response to: D.I.D....

Re: Dissociative Identity Disorder Carers?

@Smc

Running in adrenaline, being emotionally exhausted, I don't know how self care in an acute setting plays out, I hadn't 'got' self care at that point, but I now also understand that an involuntary patient needs someone to look out and advocate for them and ensure that they understand why treatments are being given and that risk v benefit is clearly explained.

In response to: D.I.D....

Re: Dissociative Identity Disorder Carers?

@Smc

Thinking of you and pray today's review leads to something more positive.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Thanks again all.

She's in until Thursday as a voluntary patient. Today's meeting was fairly positive @Determined. Us making a strong point last night that we felt she wasn't safe at home was a big contributor to her admission.

On a lot of points, we're in reasonable agreement with the MHS psychiatrist, but we really want better guidelines in place for when Older Daughter should be considered "in danger", and a more consistent approach from the MHS team in general. Among other things, but they're the two biggies for keeping her safe.
There are some problems which are basic infrastructure failings that we won't be able to do much about. There's not enough funding for MH in general, so the local clinic hasn't really got the option of therapeutic or even "safe house" admissions. They're at capacity with crisis admissions, and that undermines their ability act as a safety net.

Also, now that our viewpoint as parents is "in the loop", some of our suspicions about possible missed avenues in diagnosis have enough credibility that they're going to investgate them.

Am still very concerned about how close to critical things got yesterday. Will be watching how it all pans out to see if things improve.

@Former-Member, self care is a hard call at the moment. Because we're still a bit under the weather, we can't exactly take ourselves off for a refreshing day out. It would be more tiring than it was worth. Will have to work out how we can be gentle on ourselves in the middle of all this. (I did buy frozen fish fillets for a very easy dinner tonight- little thing but it helps.)

Re. advocacy and explanations, the psychiatrist was pleasanty impressed with how I explained a few concepts to our daughter during the review meeting. Which leads into another thing we're pointing out- that it seems she sometimes doesn't "get' the reasons behind various therapies, and she may need to be talked through their purposes and benefits, more so than has been happening.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

@Smc I think in crisis all we can do is make things as easy as possible for ourselves - our emotions weigh so heavily, let alone if one is starting on a baseline of being under the weather as you are.

Clear communication helps and I am really glad you are feeling that you are being heard. MH funding an issue everywhere and I do not envy the pdocs having to weigh up which patients take precedence for admission.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Good that the meeting was positive @Smc

Thinking of you and family .

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

@Smc

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Hi Peoples...

Feeling edgy. It's confronting knowing that Older Daughter is going home tomorrow, barring anything drastic, and we've got no way of guaranteeing her safety. 😞

She's pretty unhappy in the clinic, and it's the hard toss up that the longer she stays, the more it's likely to drive her state of mind downward. But there's been two SH with SI incidents within the last couple of months. Rock and a hard place.

We were doing Christmas gift hunting today, and I've found her the hardest to buy for, both because she's got particular and somewhat uncommon interests, and because every now and then I'd get a little niggle of dread that she won't make it that far. I don't quite know whether that's "catastrophising", or a realistic concern in the current circumstances.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

Just had a phonecall from her. She's in a somewhat better state of mind at the moment. Will be hoping that persisits at least into tomorrow's review.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

No @Smc it is not catastrophising; the heartbreaking reality is that our loved ones do live with very serious conditions. Praying that she responds to treatment, sending very gentle thoughts your way.

In response to: Re: Dissociative Identity Disorder Carers?

Re: Dissociative Identity Disorder Carers?

@Smc thinking of you and praying here also.

I agree with @Former-Member and dont think you are

catastrophising. I recall having similar emotions every time darling came home... often far too early. Trust and pray that there can be some positive progress in the near future.

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