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We've got your back

We've got your back

Hello @Shaz51 @Owlunar2 @Emelia8 @ClockFace @Appleblossom and anyone and everyone

I hope I'm not intruding... I thought I'd start a space for people with back issues if they haven't connected elsewhere.

After months of being fobbed off by my gp I've been diagnosed with lumbar spine issues. Findings include arthropathy, stenosis, bulging discs, L5 nerve root impingement (both sides) and crowded cauda equina. Pain and discomfort, fatigue and depression, pelvic issues. I'm trying to push through and stay mobile but I can't do as much as i used to. Staying positive is hard. When my gp gave me the printed MRI report she walked out of the office before I could ask any questions. I'm starting with an osteopath next week.

I guess I'm hoping for tips and mutual support. Thanks for reading.

Dimity

151 replies

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In response to: We've got your back

Re: We've got your back

@Shaz51 I was slow replying and our posts crossed

In response to: Re: We've got your back

Re: We've got your back

Thank goodness for heat packs hey @Shaz51

Thanks @Dimity . I'm pretty sure my disc prolapse has gotten worse.

In response to: Re: We've got your back

Re: We've got your back

Best to get it checked out @Patchworks . Take care.

In response to: Re: We've got your back

Re: We've got your back

@Dimity @Patchworks @ClockFace @Shaz51 @Appleblossom @tyme

Sorry to hear of some of your increased aches and pains recently. 💞

My back has been pretty good, I am so thankful to report. But I have hurt my shoulder. Tore my rotator cuff. Not a new injury for me. I have dodgy shoulders, and have badly torn shoulder rotator cuff tendons in both shoulders in the past. So its an ongoing issue for me. Always painful, from ongoing tendonitis. But when they tear, it really is very painful, and very restricting. Most annoying.

Thankfully I can take anti inflams, and they do help. Along with lots of ice and a sling for a few days. After that - heat packs. After nearly two weeks, its now on the mend and I have movement again 😄

Yes @Shaz51 I am aware of the anti inflam creams and their likely affects on kidneys. My hubby had CKD and only one kidney, so as his carer I had to be aware of those type of things. 😔 It meant no anti inflams of ANY type. Thank goodness for heat packs and ice. No restrictions on those. Hubby used to get a lot of back pain from an old injury, and other general aches and pains as a result of his Parkinsons.

@tyme I have heard that too about eggs. Makes sense, as the eggshells are porous. Just means you shouldnt be using anything poisonous or toxic anywhere near any foodstuff.

Emelia

In response to: Re: We've got your back

Re: We've got your back

Oh hugs @Emelia8 , hope you feel better soon xx

Yes with all my complications it is very hard to get a right balance as doctors and specialists tell me all the time

@Jynx , @Dimity , @Patchworks , @tyme , @Appleblossom

In response to: Re: We've got your back

Re: We've got your back

Hello @Patchworks @Emelia8 @Dimity @Shaz51 @tyme

Learning to look after myself and moderate the amount of activity I do that may cause pain, but still keeping active cos its the only way... otherwise I will turn into a fossil. Lots of icing my hands and wrists at the moment. Trying to counteract pain with building up strength. Hands are tricky. Back and neck pretty cricky. I was really worried I would not survive the long train trip. it was not easy but I did and the trip was worth it, even though there were a few hurdles.

Thats life!

Hang in there.

Hugs

Apple

In response to: Re: We've got your back

Re: We've got your back

@Shaz51 @Dimity @Appleblossom @Emelia8 @Patchworks

Im having to reduce my pain meds cause they have diagnosed Hyperalgesia. Its a really painful process but there is a chance I might end up with a spinal cord stimulator if I can get through it.

My pharmacy screwed up with my Webster Pack and I ended up not having my pain killers, as well as my psych meds and blood pressure meds in the morning and afternoon. It really messed me up and took days to get everything back under control.

In response to: Re: We've got your back

Re: We've got your back

I'm sorry about your medication debacle @ClockFace that sounds awful! I hope you are going better now.

My scans came back with bursitis, so it's my hip playing up. Quite painful. One treatment is weight loss which I'm not too good at being on an antipsychotic, I want to eat a lot. I can't overdo the exercise either so I'm seeing an exercise physiologist for advice in a few weeks time.

Hope everyone else is going along well @Dimity @Appleblossom @Shaz51 @Emelia8

In response to: Re: We've got your back

Re: We've got your back

Sorry to hear about the hyperalgesia @ClockFace I hope your team can sort it for you.

@Patchworks it's good to know what you're dealing with but ouch. Yep I'm in the same boat re meds. I had diet and exercise coaching 18 months ago which helped but I need a review. I'm feeling exhausted atm but will try to persevere.

In response to: Re: We've got your back

Re: We've got your back

Today my osteopath linked the recent onset of my chronic pain to a traumatic event, and the ongoing progress of my treatment including setbacks with what's happening in therapy. I was gutted as I felt invalidated and stigmatised although I've had an MRI that shows several issues.

I started delving online. There definitely seems to be evidence of links between life events and experience of pain

eg Gasperi et al have reported

"A growing number of studies have shown that PTSD symptoms tend to be elevated in patients with chronic pain conditions.With an estimated 1 in 5 adults suffering from chronic pain, it presents an immense public health problem. In fact, chronic pain is reported in 20 to 80% of individuals with a history of trauma, and 10 to 50% of individuals with PTSD report chronic pain. Patients with chronic pain and a history of trauma have worse functional status, report greater distress, and demonstrate worse response to medical intervention. Similarly, the presence of chronic pain and PTSD increases symptom severity in both conditions."

It's an association and apparently the causation isn't clear.

Meanwhile my exercise regime has been modified and I was advised to discuss my pain with my psychologist... I don't think I had.

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