Tomorrow

Please take care @ClockFace . You deserve some rest and relief.

Good morning @ClockFace

How are you this morning?

How is the pain?

I am on and off the forum so replies can be delayed as with you too.

Have a great day

@Former-Member

Yeah its all in one day. Well about 5 or so hours. They do the procedure and you go to recovery from recovery your put in a chair for an hour. They make sure your legs are ok and give you something to eat and drink to make sure you handle it all. You get changed and then when your ride is here you get discharged. Its all pretty smooth.

This is my 5th procedure for my spine at the same hospital so I know the flow pretty well. Each procedure has been similar, branch blocks and ablations are all really similar. They did an ablation in my SacroIliac joint (where your hips and spine meet) a few months ago and this caused the Lumbar issue to be revealed. Its rare but it happens sometimes there are 2 sources of pain in the spine and I landed that.

Ill do the procedure every 6-9 months but if it means Im not in pain its worth is

@Former-Member

Hey mate pain is really good, almost none. Still a bit sore from the procedure itself but Im doing stuff I havent been able to do pain free for years. Being really careful though, Im in a bit of disbelief about it all. 22 years of pain and now almost a complete absense of pain its really weird. But it would look like the procedure did work.

Hi @ClockFace

I do not know how to attach images, so imagine a glass of Bubbly. Cheers.

Thanks for celebrating on this forum.

Strange how once someone is in the system they learn all the technical terms.

My problem is listening to advice when told to rest and take it easy.

If you were told, l hope you listen more than i would.

So hard. Rest and recover. Sounds easy.

I minds like to chance things.

@tyme had a nice cake the other day.

I hope tyme shares with you too!

Thanks for the update.

AWESOME!!!!

Great news @ClockFace

I sort of understand where you are at as I share the chronic side of spine condition. I have T10-T12 incomplete paraplegia and a syrinx at t3-t7, and had emergency surgery to prevent worsening spinal cord compressive injury, unfortunately, it was missed and already delayed 2 weeks so it was too late now I am a paraplegic (left leg) with no bladder and neurogenic bowel and nerve pain, as well as autonomic dysreflexia. I am now experiencing what my carer thinks is PTSD hence coming on here to chat to other people to see if I can find some help. I just had a Ct 2 days as my c5 c7 i think is now causing issues. You must be so scared with all hat surgery. I am scared stiff its going to be more spine surgery. Now you must be so over surgery. Do you have spinal cord injury as well? I feel for you there is no other pain on earth quite like nerve pain and I've had even pancreatic pain and handled it better than the pain I had when my spine was compressed in 2016. I understand what you mean about the painkillers. My GP has found a good workaround for me while we sort things out he put me on a low-dose pain patch which now has no side effects. Have you ever tried a low-dose patch? I got the courage up yesterday and booked in for counseling. I realized I can't get through this now without help. I am considering after I go through my cbrace training to spinal stimulation or pain procedure.I really hope you don't have a tumor in your spine. Good luck.

Hi @Crystal123

Thanks for sharing

It is interesting to see the detail you and @ClockFace have

I wish you well too.

You both sound so strong.

Very inspiring and encouraging situations you both endure.

Thank you.

Wow that's heaps to take on.ive got lumbar facet Joint dysfunction, sacroiliac joint dysfunction, 3 bulging discs, Facet Joint Disease, Schuremnans Disease and Osteoarthritis. What I had recently was to treat the Joint dysfunctions. But will have to be repeated every 6-9 months. Its knocked off pretty much all the pain, I actually went grocery shopping today for the first time in I dont know how long. Caused a bit of pain, bit off a bit too soon but it's manageable.

I was on a low does pain patch but I needed more relief and increasing what I was on put me out. Settled on a really strong dose of a 12hrly pain med that I could tolerate. Didn't solve the pain issue but it helped me to manage

That's so brilliant you went shopping:) I still remember the first time I went shopping (I can only do tiny shops as anything bigger than a small bag I cant balance with sci) it was a really good feeling. Any gain is a gain though when you've gone from them telling you we don't know if you'll walk ever walk and you'll be going home in a chair, to only having to use a chair sometimes, pretty chuffed:)I use several types of assistive tech to mobilize but sometimes I just cant. I can't use my left leg very well as its paralyzed and has little feeling but I have my left toe. Weird that one but its a thing LOL.You have so much going on as well!!! That joint condition sounds really challenging. No wonder you've had a rough ride for 22 years.

Every 6-9mths!!! woah the things we do to live our best life. I get what you mean about patches i hated it at first took it off then thought I was not being fair on myself or my GP id I didn't at least give it a good go, a week later all the side effects went and now I can get on with my rehab and training for my Cbrace. Not sure if you know what that one is... it's a microprocessor hydraulic brace it will help me walk longer and better. It's coming very soon they are making it. It's taken a year of trial, casting, laser fitting, and waiting. I will also get an aquiline from the process which might allow me to kayak Again one day (its a waterproof KAFO). The Cbrace is a fancy KAFO (knee ankle foot orthosis and thinks like a brain for my leg sort of.Apparently it knows where the knee is 100 times a second or something. I can activate it because I have 3/5 quad use and 2/5 hip flexor and 2/5 knee on the left muscle but cant lift it against gravity easily alot of the time. I can in hydro though.

It is really hard explaining to people how you can have incomplete paraplegia but be able to ambulate on elbow crutches and walker not just wheelchair.

I just did a virtual lab tour of Griffith uni QLD and saw what the Perry cross foundation has helped fund, they are building nerve bridges to help sci people with stem cells from the nose! AMAZING STUFF. It is about to go to clinical trial but they have to raise the last $3.5 million to do it. Great to chat to you and I am very pleased for you you are getting a win. Look after that pain though. People with chronic life-changing conditions deserve a win:)