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Something’s not right

Not Coping

Not Coping

Hey everyone how are you all?

@RiverSeal @Shaz51 @NatureLover @tyme @Former-Member @Eve7 @Former-Member @amber22 @Jynx @FloatingFeather

I'm not doing great at all today. I'm feeling down. I also keep beating myself up for everything and feel like I'm just failing. I need a break from everything. It's getting so hard that I don't know how to keep going anymore especially since I can't talk to anyone around me as they are leaving me or don't understand.

Hope you don’t mind me reaching out I just really need a chat and though I could come on here and vent and talk for a bit.

Thank you

24564 replies

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In response to: Not Coping

Re: Not Coping

Wow that is expensive @Former-Member

Can you post a link to the type of machine it is?

In response to: Re: Not Coping

Re: Not Coping

@ENKELI

How are you?

What have you been doing today?

I'm about to go to the pool yay

In response to: Re: Not Coping

Re: Not Coping

Sure thing @Birdofparadise8 🙂🌺

Here’s it: Non invasive ventilator the one that costs $10,000 for the minimal operational setup I need.

Heres the one I can’t afford but works a lot better with less breakdowns: Specialised vent for hospital to home these ones start over $25,000 up to $38,000 depending on complexity, each.

In response to: Re: Not Coping

Re: Not Coping

The one you use does it look like the photo of the people with that mask @Former-Member

In response to: Re: Not Coping

Re: Not Coping

I couldn’t see any mask pics on the pages @Birdofparadise8 🙂 did you want to link one? 🌺🙂

I use a custom made mask most of the time, because the vents run a high IPAP (inspiratory pressure) then drop dramatically for exhaling.
that means it comes off your face if it’s a regular mask, most of the time 🌺🙂

In response to: Re: Not Coping

Re: Not Coping

that's cool. You can get a custom mask.

I didn't even know you had breathing issues.

Will it get better? @Former-Member

In response to: Re: Not Coping

Re: Not Coping

Yeah, it’s super cool. I know some specialised plastics manufacturers in Sydney, so I asked them if they could help out. They already have molds for another mask they make for a very popular sleep equipment supplier, which allow baseplate/blank injection mounts to be used across different designs. They also have a specialised cnc lathe for the cushion, which was designed on their cad program.
I’m very lucky to have worked in the industry to have some connections here and there 🙂🌺


my lungs and the muscles and nerves involved with breathing have been damaged, so unfortunately this is not something a person recovers from 💜

not to worry dearest ☺️💜🌺🤗

In response to: Re: Not Coping

Re: Not Coping

Oh okay I'm sorry.

@Former-Member

Do you swim?

In response to: Re: Not Coping

Re: Not Coping

Thank you kindly darling 🙂💜🌺🤗

unfortunately I can’t swim anymore… I used to swim like a fish, but now, the water pressure on the outside of my body means I cannot breathe - it ‘squeezes’ my chest and I can’t take a breath.
however I used to love it 🦩🥰

In response to: Re: Not Coping

Re: Not Coping

Hi @Birdofparadise, @Former-Member, @ENKELI, @Shaz51 I hope you are all doing well 💖🫂
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