@Appleblossom
Hi Appleblossom,
You said: This time it was a direct response to my personal sharing, which has been largely overlooked by many.
I seem to be forever railing about the Sane forum and my frustrations with it but I think that personal sharing or relating to anyone in a meaningful way is made extremely difficult by the format of this forum.
Interactive online discussion
I am posting here a recent dialogue from "the other" forum.
I have changed the name of the other person to XXX. I hope the Sane moderators won't find some excuse to reject it because I really can't be bothered fighting with them any more. The point in posting this is to show you and any one else interested how a natural and fairly spontaneous online conversation is possible. I don’t believe that there is currently any way of doing anything like this on the Sane forum.
What this means is that it becomes extremely difficult to connect with people and build relationships using a facility like Sane. I know a lot of people disagree with me but I believe supportive relationships are essential to developing and maintaining good mental health. I find it very difficult to talk about my experiences etc with so called normal people outside of these forums. The take away that I got recently from both this and "the other" forum is that it doesn’t pay to even let "norms" know you have mental illness, let alone try to talk to them about your problems and issues.
Here is the conversation. It took place over about 50 minutes This conversation was public but it could also be conducted privately so that no one other than the participants could see it.
Me: Unless I decide to take myself out, I still have to function in this world as best I can. Like others here I have this brain/mind that doesn't always allow for best functioning so I have spent a significant part of my life trying to fix it up one way or another.
XXX: Trying to find ways to trick myself into functioning correctly is like an art form especially when something important comes up and I cant get myself to leave the house.
Me: It probably is an art form. I think the best way to master any art is to study "The Masters" of that art.
XXX: I couldn't agree more but growing up in a family where MH was very common I never had to look far, it didn't really help much in the end.
Me: I suspect that there were no masters in your family or mine either for that matter. That is why we never learnt these life skills and why we have MH problems today.
XXX: I hadn't thought of it that way, very insightful.
Me: Common knowledge actually. Family background has a huge bearing on MH which doesn't mean our families were necessarily bad people but just lacking in essential life skills and therefore unable to pass them on.
XXX: My mum and dad met in a psyche ward, the doctor told my dad that he must not marry my mum, so he did and had 4 kids. Broken people from broken homes who never tried to fix the issues they faced don't make good parents in this case it seems.
Me: Some believe otherwise but I don't think we get to chose our parents.
XXX: I agree with you on that. I don't know how I could form that bond with someone who wasn't blood parents even if I was adopted.
Me: As you said - fixing up issues from past trauma is an art form. It is not an easy thing to do and a lot of the help around both then and now to be frank is less than helpful imo.
XXX: For me its all about getting to tomorrow in one piece if I manage that I'm happy, but in terms of fixing things I think I do the opposite as if its muscle memory.
Me: There are a lot of "techniques" that I have picked up over the years and use. Dealing with things one day at a time is one of them. As for fixing things I have had some success but a lot of disappointments. I am still trying. That is why I am on this forum. Human beings generally achieve a lot more when working together than when working alone.
XXX: Anything I come up with I seem to forget the next day. Any good plans or mindsets don't last long enough to be useful like I'm battling to be the good version of myself but the bad one wont let me.
Me: Yes I understand what you are saying. I don't find trying to battle with myself helpful. I find a lot of popular ideas like positive thinking just get overrun by the negative stuff.
XXX : Me too and the more I try to think about it the more my thoughts spin and it usually leads to an anxiety attack.
Me: The thing that worked best for me many years ago was a support group similar to this but not online. I think what worked most for me was the support, acceptance and encouragement from the group. I also discovered fairly quickly that I had all the wrong ideas about feelings and emotions. I was following what at the time was popular thinking and it was leading me down the wrong path. That may have just been me but it was a big important discovery for me at the time.
XXX: That works great for me but my support group is online and a lack of positive irl influences is really getting to me nowadays. My friends are either young addicts or recovering ones and people who aren't addicts in some way seem to not exist here.
Me: That doesn't sound too helpful.
XXX: Its not I have to avoid my irl friends like the plague nowadays for my own sake.
Me: Yes I understand. Back in the days of the support group I just mentioned I had a similar problem. I had to break with a lot of old friends who were into destructive stuff. It was pretty difficult but if I hadn't done that I would have just got pulled back down again. For quite a long time most of my close friends were people in the support group. Some of those friendships lasted until they died and I still have one good friend from those days who is still alive. I have a few non MH friends these days but it is often hard work for me because I have to put on a façade with many of them or they become uncomfortable because of the schizophrenia. I can really only talk like this with other MH people.
It is 4.30am here in Oz so I better get some sleep. Thanks for the conversation.
XXX: No worries, you too
[End of conversation]
note irl means In Real Life
You said: I have persevered cos I really believed it was necessary for other people, more than me.
For me I see it as mutual. I have difficulty talking to others other than my current psych about my MH issues/experiences but I do try hard to be helpful to others and pass on things I have learnt in the MH school of hard knocks.
The "other forum" is also frustrating at times. The people are all pretty young and there seems to be a lot of ignorance both about psychiatry and psychology. They seem to have swallowed the pharma industry’s story hook, line and sinker and spend a lot of time talking about which concoction of meds will fix this or that symptom.
You said : I hear you about the problems of only 'nice' mental health problems being seen as appropriate to share. I made a similar statement on here about 5 years ago. Then dug in and tried to stay nice.
The Sane people would throw a mega hissy fit if they saw the conversations that take place on this "other forum" but this is my world at least in part. It is a world of mental hospitals, psychosis and schizophrenia. It is decidedly human but "un nice". The other part of my life is pretending to be normal which becomes increasingly stressful and likely to collapse the closer I get to people. If they find out about me they often move the relationship to arms length or worse. I find the fact that the Sane forum makes it very difficult to have any sort of meaningful communication along these lines disappointing. The “other forum” is also frustrating but in a different way. There is a complete lack of older, more mature people. Some of these young people are pretty smart but they lack life experience and perspective.
I can't see the Sane forum making any significant changes in a hurry so it would be good if there were a few people like yourself on this "other forum".
You said : One reason I withdrew from community guide role and am reluctant to apply for paid work in the field is that I do not want to be silenced now that I have finally found my voice. I do not want to feel that by accepting a role or money that I compromise my hard earned insights or have to submit to further silencing. I am fortunate that I have survived and am old enough to be able to make that call in some parts of the life cycle that is not always possible.
I have recently become involved with the Victorian Mental Illness Awareness Council (VMIAC). They are supposed to be an advocacy group for mental health reform. I fully support their vision but from what I have seen so far, the "talk is not the walk". I have already had an a bit of an issue with them. They wanted to me to become involved in paid advocacy work. Most of VMIAC’s funding, like Sane, appears to come from the state government. When I pointed out that there was a conflict of interest but I was quite happy to help them for no payment they seemed to lose all interest because I didn’t/wouldn’t fit into their system.
You said : the value of "standing under" to reach genuine understanding.
I am not sure I understand what you mean. I would be interested in hearing more.
You said : One of my pet peeves .. is short gratuitous lines
Yes these sort of responses also annoy and frustrate me. Most of the Sane forum seems to me to be about people venting (nicely of course) with these gratuitous and mostly meaningless responses often from forum staff.
Other stuff
A couple of days ago I received a response from the Victorian police to my complaint made months ago about the forced intervention etc into my home at the end of last year. The response was just a fob off as have been the responses to the other complaints lodged so far. I haven’t heard back yet from the Health Complaints Commissioner in regards to the complaint made against the doctor for making a false statement to the police. None of this is unexpected but it is disappointing nevertheless. The next step is the Victorian Ombudsman. If that fails, as I expect it will, the step after that is trying to find a representative body interested in taking it to the High Court of Australia. In my opinion it would be a good test case because it was such a blatant and unjustifiable case of abuse and law breaking. There are also credible witnesses etc but I am seriously wondering if it is worth the effort. Everybody knows that this stuff goes on but nobody seems to really care. I see it as an elephant in the room situation. All that any of these government funded agencies seem to be interested in doing is building their own little empires rather than fixing any real problems.
There are a number of other related things I would be interested in talking to you about but I am not comfortable doing this on a public forum like this. In any case I think it would be impossible to do so without the “Thought Police” getting upset and intervening.
Regards
Willy