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Friends, families and carers

Welcome to the Friends, Family and Carers Group Hub! Introduce yourself here 🙂

Welcome to the Friends, Family and Carers Group Hub! Introduce yourself here 🙂

New here? Welcome to the SANE Friends, Family and Carers Forums! We are so happy you found us and have joined our wonderful community. There are lots of people here like you who are supporting a family member, friend or loved one, and who can understand what you might be going through and offer valuable peer support.

You may see people reaching out to share their stories, asking questions, looking for others who get it, seeking support and offering support. We hope you find this a supportive and welcoming space to be.

We want to get to know you, and introduce you to other members of the SANE Community.

To get started, you can simply post here by clicking "reply" to introduce yourself and a fun fact or two about you.

Or, you can introduce yourself to the community by starting a new discussion thread! How to do that you ask? Follow the below steps to create your first post.

  • Click back into the Welcome & Getting Started topic area
  • Click the ‘New Discussion’ Button
  • Type in a subject title
  • Enter your post (there are some helpful tips on how you can introduce yourself below)
  • Then click post!

You may see our Peer Support Workers welcoming new members in this space, so please reach out if you have any questions, or if we can help you get started 🙂 We are always happy to help! To reach us, @moderator or email us at team@saneforums.org. We look forward to getting to chatting soon

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In response to: Welcome to the Friends, Family and Carers Group Hub! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Hi there, Newbie to the Carer community here. My mum has manic depression and has been in and out of hospital four times over the past few years (her latest discharge was earlier this week and I’m currently staying at her place as her carer). Keen to learn from this community particularly as I would like to better understand the affect my mums mental illness has had on me plus understand how I can support her and my other family members whilst creating my own boundaries. Any tips or advice on where to start please reach out!

In response to: Welcome to the Friends, Family and Carers Group Hub! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Hi, I have a brother with Bipolar and schizoaffective disorder who does not engage in his treatment, and I am not sure what to do. My family have been trying to help him for 25+ years, but they're all worn out, and I'm not willing to do the same for the next 25 years!

In response to: Welcome to the Friends, Family and Carers Group Hub! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Hello, my name is Ellevie. I am a new member, and really looking forward to the forums.

In response to: Welcome to the Friends, Family and Carers Group Hub! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Hi, I'm new here. I'm not officially recognised as a carer but my husband has diagnosed Aspergers and a few physical issues, and I have 3 young kids; 5yo with speech delays and attention issues (no formal diagnosis), 3yo with GDD (speech and attention issues) and a 1yo. It's been very isolating to be a carer but I can't seem to get seen as the diagnoses are either "old" or not "bad enough". I'm hoping to find people who understand.

In response to: Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Welcome to the forums @Justme5 - Thank you for reaching out and sharing what is going on for you at the moment.

As you browse around the forums, I hope you will be able to read of others' experiences of caring for their children.

I hear you are finding it difficult to get support, especially for all three of your children. Have they been seen by a GP or paediatrician?

In response to: Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Thank you for responding. Yes, the 2 older kids have been assessed by a paed and its a whole thing. Very disappointing. My son has just been reassessed and they came to the conclusion he has "too many" issues for a specific diagnosis so they just want to wait and see, hence the GDD diagnosis. My daughter is just starting the process for the second time. We are also finding that my husbands aspergers diagnosis needs to be updated as its out of date and no longer recognised.

In response to: Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Hello and welcome @Justme5

I am not officially a carer for my family , then I became carer for my 91 year old mum which I had to show how much I do for her

Sending you understanding hugs

And we have a thread to click on to is The Virtual Village - a space for parenting 'stuff' and I will tag you there too

In response to: Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Thank you kindly

In response to: Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

For children with 'too many issues', the GDD sounds right. However, you CAN get NDIS funding for that which may then support with therapy etc @Justme5 . Have you looked into that?

Also, is your 5 year old starting school next year? It would be good to get on top of it early if he is.

You are not alone @Justme5 . Sitting with you.

In response to: Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Re: Welcome to the Friends, Family and Carers Forum! Introduce yourself here 🙂

Thank you. The first time they were assessed, we got NDIS funds for speech and OT. The findings weren't enough to get them inclusion support and ultimately I had to pull my son from daycare as he was hurting himself so regularly. My daughter repeated kindy and will move into prep next year. Getting her reassessed now is an attempt to get it sorted before school starts, but they've already said they're unlikely to diagnose before a year of schooling is completed. It's so frustrating to constantly be told to try and sort it early, then be told they won't diagnose until school becomes a problem. I'll check out that parenting thread. Thank you.
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