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My 19 year old daughter with OCD, anxiety, potential ADHD (diagnosed online Feb 2021), eating issues and is unable to sleep much, has resorted to trying various drugs (not sure how often) to numb her feelings. She wants to talk non stop about her drug taking and the effects it has on her. She is fascinated and obsessed with the effects of drugs and says she is studying psychology online to learn more. She says she thinks she has borderline personality disorder as well and/or bi polar. This all sounds like OCD in full swing.
She says that I am the only one who she can talk to and recently our commutation has broken down to the point where she has cut me off (has happened previously and she will come back apologetic and devastated). She is very manipulative, argumentative and it's hard to know when she is being truthful as she lies alot. She can get very angry and then feel overwhelming guilt. She feels overwhelmed by everything and looks for constant distractions and avoids situations that she finds hard to cope with. She is barely holding down a casual hospitality job and paying rent. She is depressed and has recently been so frustrated that she hurt herself. She often says she doesn't want to be here but would never end her life. She is very creative and I give her lots of art materials to encourage her to express herself, which she does when she feels like it. She lives on her own (moved out just after being diagnosed) but says she now might like to live with someone as she is very lonely. I recently gave her an anxiety journal which she started to use and write her issues in. She shared it with me and I was astounded at her self awareness (it's hard to see that side of her when she presents such a complex personality). She is very resilient and resourceful on the one hand yet so needy and not very good at looking after her personal hygiene. She stopped taking her medication (again) and broke down yesterday saying she hates her mental illness and what it does to her and everyone around her and hates having to rely on medication and that all she wants is to feel happy. She knows that the medication does help (I can attest to that). But as soon as she feels good she goes off it again. She often texts me to say she is so stressed or having panic attacks, yet on the other hand tells me she is happy but cries herself to sleep every night. She says I don't understand her and that my opinions on some things are not valid as I haven't experienced what she has. It's so frustrating and so terribly sad. I am learning to not get emotionally involved and to set boundaries but it sooo hard.

My daughter refuses any help and that is the hardest thing to deal with. I have said that her conditions are treatable and people live very successful lives with the right help but she refuses any help.. I am overwhelmed and don't know where to turn. I miss the beautiful girl we once knew, only seeing rare glimpses of her under all her struggles. My husband is very frustrated and also sad at all of this. I have had counseling for myself and was told to let her fall into crisis. Maybe she just needs time. At 19 her brain is still developing. I have tried to use Natasha' Daniel's fantastic online resources to help improve communication and to educate myself and family on OCD and anxiety. It was fantastic support and worked for a while but I'm just not able to keep it up. It's all so overwhelming to have to be so proactive and constantly mindful! I love my daughter so much and I want to keep communication open and so I will try to keep working on that but it's so hard to know how to talk to her without upsetting her. I don't know where to turn.

39 replies

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In response to: New to this forum

Re: New to this forum

@Appleblossom @Faith-and-Hope @wellwellwellnez @Zoe7 @Former-Member hi all and thank you all for your wonderful support over the past few days! Yes some great suggestions, well articulated and thank you for sharing your circumstances too. I hit the wall this week and cried a river. It was well overdue. As you all know it's so hard to relate to friends and even family when you are dealing with someone who has complex mental health issues. It just gets too overwhelming to try and explain the circumstances and for me I did not want to dump on others who may also be silently struggling. At least you are here to support by choice and I am so grateful you are. I do feel the love!

This morning I called a SANE counselor and I'm glad to say that I was able to gain some much needed perspective. The questions I was asked helped me to see things a bit more clearly. I have a plan of action now and I have written down what I need to do.

In response to: New to this forum

Re: New to this forum

@wellwellwellnez @Faith-and-Hope I forgot about headspace. I have contacted them and waiting for call back.

In response to: Re: New to this forum

Re: New to this forum

Hello @Stargirl

Welcome to the forum. I also can hear the world of love and concern you carry for your daughter, and the challenges of being able to know what is going on for her owing to her erratic communication/and sometimes estrangement. My husband and I have cared for his 2 daughters through 20 years of similar experience, and now we are caring for our 17 yo who has OCD/Schizophrenia. Sometimes the weight of worry makes me feel so weakened. I know our love is strong for our children, and we have been such strong anchors for them through such turbulent times. But it's hard work, and sometimes we've had to take a step back to reset/recover for the next round.

I think the idea of harnessing your daughter's artistic interest is a great one, and something we did to assist our oldest daughter to focus on her strengths at a time she was very sick with mental ill health. I did a quick search and there are lots of 'art therapy' providers in Melbourne, if your daughter has an interest in well-being and personal self development she may be interested. There's a fee involved of course though. Or, she may want to join art workshops or classes locally. Otherwise, contacting her closest headspace centre and having a chat might be another good idea, headspace centres are all highly unique and responsive to the local community so they might even have their own in-house arts program.

As an aside, I've found the resources on the headspace website for family and friends, plus the resources on Orygen have really helped me to cope and to understand my children's experiences.

You're doing such a great job, but it's really hard, painful and difficult at times, let those tears come when they need to.

Take time to care for yourself.

Tinker

In response to: Re: New to this forum

Re: New to this forum

This is so lovely to hear @Stargirl and it's what this community is all about 😊 So glad you reached out to the SANE counsellors and now have a plan of action – sometimes it's hard to see the forest for the trees when you're in the thick of it, and that little extra support can clear the way.

In response to: Re: New to this forum

Re: New to this forum

Thank you

In response to: Re: New to this forum

Re: New to this forum

Oh good. I looked them up a bit. They seem to have up to date sensible drug info as well.

Melbourne should have a wealth of resources. Victoria tends to be a little bit ahead of the curve when it comes to mental health services. And, other niche things.

In response to: Re: New to this forum

Re: New to this forum

@Tinker67 well said re stepping back in preparation for the next round! I have learned this strategy over the past year. And goodness you have clocked up some experience in the mental health field by the sounds of it.

I am somewhat overly concerned with my daughter's struggles and need to back off. Our relationship is pretty intense! Hard when she uses me as a crutch and also for reassurance which is typical with OCD. I am learning to not accommodate, not to enable and not to complete her loops (which involves recognising the OCD theme or themes when they appear). I have to also work on not overwhelming her (when she seems 'normal and upbeat' I tend to push more on her than I probably should, forgetting that she is still fragile and in her current state, can only handle a few things at a time). I also need to recognise that and work on having a bit of fun with her in between the craziness of it all.

I will investigate art outlets and will contact headspace as a starting point.

Orygen are very good too and last year I had a team on standby however my daughter declined... We came so close to having a team help her and mostly free resources! They will be first port of call if we get to crisis...I will provide their number to our daughter again us some info on headspace.

Thank you again for reaching out. I really feel supported already and you have all come at the perfect time for me.

In response to: Re: New to this forum

Re: New to this forum

@Stargirl I get you, it's such a balancing act, and we have our own needs in the relationship too. So fabulous to hear you've linked into Orygen already, Melbourne does have some awesome services and the government is more proactive in addressing funding needs of services, more so since Covid, and also in response to the state's review of mental health services.

I'm really pleased to hear you are getting some support for yourself, and now you've got the forum where you can pop in and give us an update, or have a rant, or celebrate small wins.

I look forward to seeing you around the forum.

Tinker

In response to: Re: New to this forum

Re: New to this forum

Hi @Stargirl 😊

I also wonder if peer support could be valuable for your daughter, if she hasn't already engaged much with it? It sounds like she could benefit from seeing or hearing about people with similar diagnoses who have gone through recovery, and have a kind of quality of life that she wants for herself. That hope can be very powerful and motivating. It wasn't something that was very available to me in the early stages of my recovery, but I wish it was- it would've made a world of difference.

I'm really glad to hear that speaking to a counsellor at SANE was able to help provide clarity, perspective, and a direction forward for you. It's amazing how they can do that in times of struggle. It sounds like you're good at thinking about and applying boundaries, which is definitely important. There's always support out there for you, and you always deserve it whenever you need 💗

Wishing you the best 🌻

In response to: Re: New to this forum

Re: New to this forum

@@how do I suggest peer support? Our daughter has refused any assistance whatsoever...

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