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Living with Loneliness

Living with Loneliness

Feelings of loneliness occur when there is a mismatch between the amount of meaningful social connection we want and the amount we have. So while loneliness can be caused by isolation, it can also be felt when surrounded by people, and in friendships, family and intimate relationships. It is a personal feeling of social isolation

Loneliness can be really hard to manage and studies have shown it can lead to poorer physical and mental health. Physically, loneliness can cause low energy, poorer sleep, headaches, worse experience of physical pain and addiction. Mental health wise, it can cause anxiety, depression, poorer self esteem and thoughts of suicide. Often this can even lead to further isolation and feelings of loneliness for each person.

In Australia, 1 in 3 people report feeling lonely and socially isolated. This means that there is a chance many of us here on the forums experience loneliness, especially given that many of us have or care for those with lived experience of complex mental health concerns. It’s important for us to share that experience and find connection and support.

Questions for the community:

  1. What does loneliness look like for you?
  2. How does loneliness feel and how does it impact your wellbeing?
  3. Are the periods of the day or year when loneliness is harder to manage?
  4. What have you done to manage loneliness, do you have tips for others?

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We recognise that loneliness is experienced differently for everyone and we welcome all stories this space. Please remember to be safe and respectful of eachother, you can find the guidelines here. If you experience any distress whilst reading along with this discussion, please reach out to Lifeline 13 11 14 or the SANE Help Centre to speak to a counsellor.

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In response to: Living with Loneliness

Re: Living with Loneliness

@Lila3

Thanks for your thoughts on my story, it's definitely not a normal route people take though their lives.

I think this is why I see family, close family, being so important in life. So whether is someone adopted like me that is having issues not being connected to their adoptive families or people having similar disconnects with their own birth families, it breaks my heart because I know just how massive a part of life we're separated from. It messes with you in so many ways!

In response to: Re: Living with Loneliness

Re: Living with Loneliness

Jeepers. May I comment to Your answers to your loneliness thread

Then to that incredible answer @Lila3 gave you.

I'm not stepping away from your story --- but when I reread your answer questions to loneliness thread I identified some as an abuser of being married to someone with mental ill health and as someone lonely.

I used to walk around the playground pretending I had a friend too. I got that. I didn't get lunches when I was a little girl and one Friday my friend's mother bought me a lunch. I will never forget that.

I was married to someone with pretty bad case of schizophrenia. It was for 10 wonderful years. I made so many mistakes.

Today my new partner and I are his next of kin and his unregistered carers. We - I- have a certain amount of responsibility for him as he only has his mother who is not trustworthy.

For years - I didn't even realise how stressed out I was. Today, I'm getting out of the shock how stressed I

Was. But I also used to introduce him as ' hi my name is A ....... And this is my husband ...... s..... And he has schizophrenia.

I remember that time with shame but I didn't not so it without care which your adoptive parents did. Iv said how sorry I am and my ex husband has acknowledged it.

I'll get back to you @MJG017

@Lila3 @rav3n

In response to: Re: Living with Loneliness

Re: Living with Loneliness

@PeppyPattiI think I would have been okay with my mother telling people I was adopted if she stopped when I said I didn't like it. I felt broken and rejected as an adoptee and always wanted to hide it. So her telling people was like "Oh great more people know the truth about me now!" plus it felt so dismissive of my feelings, but I was sort of used to that by the time I spoke up.

When you said you are getting out of the shock of how stressed you were, it made me think that maybe i'm just beginning to realise just how traumatising a lot of stuff growing up probably was. I always knew it adversely affected me, especially with self esteem and fear of rejection but I always just thought of it as my weakness to handle it.

I also think it's amazing you and your new partner care for your ex. I feel like it says so much about the both of you. I've heard a lot of people say they still look after someone because that person doesn't have anyone else. It's still a choice and good people make good choices. Great people don't see it as a choice.

In response to: Re: Living with Loneliness

Re: Living with Loneliness

@Glisten Ooohhhh.... I LOVE that song. The start is one of my favourite guitar riffs.

In response to: Re: Living with Loneliness

Re: Living with Loneliness

@MJG017 the opening is so distinctive, that you immediately know what song it is.

Very, very clever.

G

In response to: Re: Living with Loneliness

Re: Living with Loneliness

How are you @MJG017

Waiting for visits from my co - whatever NDIS lady to visit for interview so can NOT

yell at her

But kindly explain NDIS are using my past experiences to highlight head injury issues but not.

In response to: Re: Living with Loneliness

Re: Living with Loneliness

Hi @PeppyPatti, I'm doing pretty well today, after a bit of a tough weekend. I had my support group in the morning and then had to rush straight from there to my 2nd PASS (post adoption support services) appointment.

That went really well and I think i got a lot out of my system... a lot of tears mainly. It was very emotional but the fact I felt safe enough talking to her to just lose control like that shows a lot of progress I think. I told here that for most of my life I could control emotions when in front of other people like a switch. I could so effortlessly just turn it on and off. Well, I never turned it on, but could turn it off so easily that it scared me how easy it was. So she asked if I preferred how I was and I said no. So we both agreed it has shown some good progress.

Over the past 11 years since I've known my partner, she has worked for 4 places. Novita, ECH, Guide Dogs, and now MS Society. All those jobs involved working with people with disabilities, their support workers, and the NDIS. I think a lot of people just want to yell at quite a few of the people involved. It's really sad the problems that a lot of people, who deserve far, far better have trying to navigate this system!

I really do wish you all the best of luck with it all. If you need any advice (anonymously of course), let me know and I can ask my partner is she has any thoughts and tips/tricks to help with any issues.

In response to: Re: Living with Loneliness

Re: Living with Loneliness

Wow @MJG017

Thankyou.

It's amazing that right in the middle of you dealing with the hardest thing ever you are caring about me.

Wow. Thankyou.

This NDIS journey I can see ---- in my two blue eyes & overalls --

It would be very difficult for so many people. Advocates are needed !! Where are they ?

Fortunately after all these years I'm in the best place I could be.

But it took me 2 years to accept support workers. THEN I just got my best occupational therapist to write a functional report. But you feel you've been punched in the gut because it feels like every little tiny little problem you have is scrutinized.

Fortunately my support coordinator I have is brilliant.

However -

Can you tell me what this means ??

"

2nd PASS (post adoption support services) appointment."

Did you feel like this. A punch in the gut -- With going through what your going through ?

I felt like just quitting NDIS and going to bed for the rest of my life.

What's it all worth ?

Then in top of this there are some dangers lurking around my youngest son who has just gotten in contact with me.

He is 30 and he has had some issues that he is confused about and I'm feeling quite unsure what to do. .. .......

Normal.

Best thing for us two to do is to draw our support people close around us.

Not walk away from NDIS.

I think it's not the most confidence running mind place once you've had a functional report made up.

In response to: Re: Living with Loneliness

Re: Living with Loneliness

Hi @PeppyPatti

My life the past couple of years had been full of "hardest things ever" and I've gotten some great support though it from groups like this, so it just makes me want to pay it forward a little bit and I do like helping people. Especially with mental health. Now that I've dealt with the 'system' the past year or so, I see just how vital it is that we come together and try to help each other as much as possible.

My partner is an OT and now manages the team of OTs at her work. I know she says a good support coordinator is very important in dealing with the NDIS. It can get really bad. Unfortunately, a lot of people do try to rort the system and it just makes it harder for people just trying to get by. I know my partner has said that when doing functional assessments for people, it's important to note any small issues, even if they are only problems some of the time as it can help a lot getting things through the system. So try not to be to upset feeling like you're being overly scrutinized, it would ultimately be to your benefit. Assuming you don't feel it was too unfair or exaggerated of course. Bit I do understand it can be quite upsetting for some people. A lot of people do discount issues they have when having these assessments because they think they're not that bad, but they all add up to form a better picture of how much support you are entitled to. I definitely think sticking with the NDIS is the right choice. I know the system is far from perfect, but it is better than nothing... mostly.

"2nd PASS (post adoption support services) appointment." It's a service provided by Relationships SA for adoptees. They provide counseling and services for adoptees to find their biological families, help with contacting them, and support dealing with the long term effects a lot of adoptees have. Attachment issues are very common. They say you feel the loss of your maternal connection as a trauma that stays with you throughout your life.

For me it was never really like a punch to the gut because I've been dealing with it and trying to figure out why I feel and act the way I do all of my life. There are certain memories along the way do do stick with me and do feel like those gut punches. Especially the past couple of months. After thinking one way about my adoption my whole life to finding out recently that a lot of my issues are a very common side effect of adoption and that single mothers, like mine, were very often forced to give their babies away. So I've had to rethink a lot of stuff I've always believed. So talking about that today and how it changed my view of my biological mother knowing that she was just as traumatised as I was rather than a decision she made to give me up had changed things quite a bit and has made me upset now knowing that this 'closed adoption' period did awful things to my mother.

But it was there that I started to get extremely emotional today when I told her this and then about the letter I sent her before I traveled interstate to meet her. I said in this letter that I didn't care why I was given up for adoption, I had no desire for any explanation from her, I just wanted to meet her and finally talk to her and that I had always missed her a great deal. But knowing now that she was forced to give me up, just makes that letter I sent her even more important because I got to tell her I never blamed her or was angry... I just wanted us to meet again and get to know each other. Then I remembered the last time I saw her, the night before we had to leave to drive back to Adelaide. I had spent the night with her and I was tired and just wanted to get some sleep before the long drive. If I had known that was the last time I saw here before she passed away, I would of spent the whole night with her if I had to. I know I couldn't have known, but it's so painful to know I only ever got to spend a handful of hours with her.

Sorry, I've gone off on a bit of a rant again. It's all still a bit raw. Maybe it was a bigger punch to the gut than I thought.

If I've learned one thing the past couple of years, it's that it's always a good move to draw our support people close to us when we're struggling or unsure about things. So hopefully doing that can help both you and your son. In the mean time, I (and everyone here) are happy to listen and support you however we can. As the old saying goes... "A problem shared is a problem halved".

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