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Advocating for change

Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Hi SANE Community,

If you or someone you care about uses the Victorian Mental Health System for support, we have a special Topic Tuesday for you.

You might have heard the Victorian Government recently committed $3.8 billion to implement all recommendations of the Royal Commission into the Victorian Mental Health System, to rebuild the system from the ground up.

What will these changes look like for the mental health system and the people who use it?

To help us understand the future mental health system envisioned by the Royal Commission, we’re joined by special guest Graham Panther - a mental health advocate who was a witness before the Royal Commission. He is also the co-founder of the Big Feels Club - creating spaces for people with ‘big, scary feelings’ to hear from others with similar experiences.

What is the Victorian Royal Commission into Victoria’s Mental Health System?

The Royal Commission into Victoria’s Mental Health System was an intensive two-year inquiry, producing a final report that stretches over five volumes and 3000 pages. Its recommendations provide a blueprint to completely rebuild the mental health system.

The Royal Commission called for lived experience to be embedded at every level of the future system.

This Topic Tuesday will be an opportunity to learn more, ask questions and find out how to get involved in mental health advocacy yourself.

To learn more about Graham, please feel free to check out the Big Feels Club and the amazing work he is doing in the lived experience leadership space in Australia!

Please join us here on Tuesday 17 August 2021 from 7:00pm-8:30pm AEST to follow this conversation.

Want to receive a reminder on the night? Hit the 'Support' button below.

New to the forums or want to get involved in this discussion? Check out the How To Guide for Topic Tuesdays.

_________________________

This topic is a big one for anyone invested in the future of the Victorian Mental Health System. While each of us have different experiences of the system – from positive to extremely challenging - we want to make sure that this space is an open and respectful space to hold all of our experiences. Before joining this discussion, we would encourage you to familiarise yourself with the community guidelines so we can make this space as supportive as possible.

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In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST


@Mex wrote:

i don't know of you have to be crazy to want to be a peer worker, but it seems to be a pre requisite


That's the point though, right? The whole idea of working as a "peer" is that you kinda get what the people you are working with are going through. Whether or not you call yourself "crazy" is a different matter though - sometimes I think that maybe I am the sane one 😉

In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q4: The Royal Commission recommendations prioritise peer support at all levels. What does “peer support everywhere” look and feel like?

For a long time, peer support has often been the last thing you’re offered when you’re struggling. Usually after you’ve tried all the more expensive options – the psychiatrist, the psychologist, and so on.

And yet, there’s good evidence now that peer support is just as effective as those more mainstream offerings, and often cheaper to run.

‘Peer support everywhere’ is my way of saying, let’s build it into every step of the help-seeking path. What if we didn’t just tell people to ‘go see their GP’, but also directed them straight to peer communities like SANE’s peer support offerings and The Big Feels Club?

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q4: The Royal Commission recommendations prioritise peer support at all levels. What does “peer support everywhere” look and feel like? (continued)

Peer support is built into so many other areas of life. Like coffee groups for new parents. We know that being a new parent can be scary and confusing, and we know that support from others in the thick of it can be really helpful. What if this were just as commonplace in mental health?

The Royal Commission has built peer support into its model of community care (Recommendation 5) which is a great start. Primary Health Networks (PHNs) are also starting to do more in this space, so wherever you are in Australia, there’s a chance there will be more peer support offerings in development soon.

Plus, look at these SANE forums! You’re doing peer support right here. So it’s about continuing to support that change.

In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

We have used a few words in this chat that are being reclaimed in the wider consumer/survivor/lived experience movement globally. For many people, reclaiming words like mad and crazy can be really powerful for recovery. I want to acknowledge that every person will use language that is empowering for them, and for many that is also reclaiming phrases Always important to note

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q4: The Royal Commission recommendations prioritise peer support at all levels. What does “peer support everywhere” look and feel like? (continued)

Now, to answer @Kermit's question from before about supporting peer workers...

This is me with my consultant hat on – having helped set up and evaluate dozens of peer services across Australia and NZ. You're bang on. As we create more peer support services, we have to make sure they don’t lose what makes them special in the first place.

When you’re working in a clinical system as a peer worker, there are all sorts of pressures (some obvious, some subtle) to get you to work more like a clinician (to focus on symptoms and medications, for instance, rather than sitting with the discomfort of not always having an answer or a fix). The whole point of peer support is it’s different to clinical work, and we need to protect this difference.

So it’s really important we give our peer support workers training and ongoing support that is in line with the values of peer support. See Recommendation 6 in the interim report, which is aiming to enhance workforce support for lived experience workers. (This is actually already underway, and there are other movements in this direction in other states.)

In response to: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

iatrogenic is trauma caused by the system itself
either navigating it or caused by treatments

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q5: You have had such a journey in the lived experience workforce @BigFeelsClub to get to where you are. What advice would you give yourself when starting out?

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q5: You have had such a journey in the lived experience workforce @BigFeelsClub to get to where you are. What advice would you give yourself when starting out?

Working in mental health has been some of the hardest work I've ever done, and some of the most meaningful work I've ever done. Often all at once!

I've almost quit mental health half a dozen times, and keep coming back.

What's helped me the most, at every step of my career, has been connecting with my peers. People who, like me, are in there doing the work from a very personal perspective, some days wondering why *they* haven’t quit either.

We talk tactics, we vent. It is supremely important both to my effectiveness in the work, and to my wellbeing.

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Hi @little_sparrow,

I hope that it comes as a reassurance to those I support, that I have lived experiences of my own! I personally think it's so important for others to know they're understood and not alone when going through a difficult time. Are you involved in the peer space as well?

from cloudcore

In response to: Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Re: Topic Tuesday // Let’s talk about systemic change: The Victorian Royal Commission // Tues 17th August, 7:00-8.30PM AEST

Q5: You have had such a journey in the lived experience workforce @BigFeelsClub to get to where you are. What advice would you give yourself when starting out?

So my advice to my younger self would be: it’s going to be hard sometimes. And it’s going to touch some sore spots. But it will also give you a chance to make meaning from some of the most difficult times in your life. And to contribute to other people going through that same hard stuff.

Just don’t try to do it alone!

If you’re working in mental health (or thinking about it) you don’t need heaps of peers, but one or two can make all the difference.

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