My Mosaic

Hey @Bow just been catching up on stuff, read your email too. What a bloody mess of a weekend you've had. I'm sorry that you've been put through it, tossed about and having your needs ignored. Absolutely shocking.

How are things for you this arvo hun? Sending some very big hugs your way 💜

Hey @Jynx was hoping you’d get to read that email. Thanks.

yeah been a bloody shocker of a weekend. And this morning I really didn’t know which way things were going to go. But apparently the dietitian advocated for an NG tube and it’s finally been put in. Feeds have started.

I am absolutely exhausted. My body is so sore and tired. So much tension in my shoulders- wish I had my mat!

@Eve7 @Emelia8 @Snowie @tyme

It warms me to know that there were those who were willing to fight for you, cos no one should have to do that alone hey. Especially not when it's a big system like the hospital. NG tube is a go! What a relief for you @Bow. Hope it means you'll start to feel better soon hey.

Could you get your mum to grab your mat/any other comforts from home and drop them off?

@Jynx Yeah glad that there are some people on my side. Just a shame that all that shit happened over the weekend. A hospital admission is never without its drama and trauma. I was so relieved when my nurse came in and said she was gonna put in an NG tube. I had a cry. Tears of relief. Tears of ‘its come to this point.’ But it’s been needed. Just wish I didn’t have to fight so long for it.

My mum and D are coming in tomorrow. If I’m still sore I’ll get her to bring my mat in. Just trying to stretch my back and shoulders out. Mum doesn’t drive, so it’s a bit of a journey for her to get here unfortunately. She’s arranged for a friend to drop them off tomorrow.

@Bow for sure, it's absolutely exhausting having to constantly advocate for oneself. I'm relieved that you're finally getting looked after darlin.

Aww that sucks, guess that means it's harder for her to come visit. How are you spending the time? Lots of naps I'm guessing haha

That’s good news @Bow and I hope you start to feel better very soon.

Hugs 🤗🩷🤗

Oh it sure is @Jynx self advocacy is hard!

Yeah they won’t get in every day. But my D messages me when she gets up in the morning and when she gets home from school. And we FaceTime too. They spent most of the day here yesterday. We coloured in and played games.

I have some colouring in, my book, a puzzle game, a mosaic sticker book, got the tv and my iPad and free… but dodgy wifi. I started some embroidery in my arts and craft group and my support worker is going to grab that for me and bring it in when she comes tomorrow. I try and nap… but I’m not very good at napping during the day. And well hospitals are noisy! Right outside my room is a nurses station. But I have been sleeping reasonably ok at night though- they let me close my door.

how are you doing today @Jynx ? How was your weekend?

@Bow aww that's so cute, and yay for getting to hear from your little one first thing in the morning! Best way to start the day hehe.

Oh nice, you got a whole pile of wonderful activities to protect you from boredom! Embroidery is really cool, what are you embroidering?

I'm doing alright, my body is being a right pain in the butt though. Cramps and achey bits all over. I got a hot water bottle though to help ease it - just glad it's only 23 today, it was 37 yesterday and it was soooo gross.

My weekend was pretty good - I rearranged my loungeroom (only half finished still cos I gotta get someone to help me move a couch), which always makes my brain do a lil happy dance! Just makes a space feel all funky fresh haha. Then my bestie came over yesterday. We'd had some stuff come up in our friends group, so just spent some time holding space and letting her vent. Got some stuff off my chest too. Was much needed.

So glad things are starting to go in the right direction @Bow

Hopefully it continues this way.

So pleased for you hon 💌💌

I miss her so much @Jynx she curled up on my bed for a while yesterday while she played on the iPad. I just enjoyed the snuggles.

my embroidery is a floral picture. Just one from Kmart. Not really done any embroidery before, so it’s kinda fun to learn.

oh you coming down with something?? You making sure you are keeping up with your fluids?

I love shifting furniture around too, feels all new. D wants to move her room around. I use to do it all the time growing up. I painted a mural on my bedroom wall. And I pulled the carpet up and painted a checkerboard pattern on it. I reckon you’d be a good friend… good listener and stuff.