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A Life of Trauma and Tragedy (Possibly Triggering Content)

A Life of Trauma and Tragedy (Possibly Triggering Content)

As a young child and into my teens, I have vivid memories of a violent and abusive father. Dad was essentially a good man and worked hard to provide the necessities for his young family. He was also a very proud man, and it was hard to make ends meet as a lowly paid manual worker. He was by nature a quiet, shy and gentle man with a lovely dry sense of humour. But alcohol turned him into a violent abusive drunk, with a quick and volatile temper. Mum would tell me and my siblings to go to our room whenever this happened. I know she tried her best to shield us from the violence as much as she could. But it's hard to miss the shouting and the smashing of items as arguments raged. Our tiny 4-roomed home allowed no escape from what was going on. We all knew not to comment afterwards on Mum's frequent and obvious injuries.

As a pre-teen, I experienced the heartbreak of losing a much loved uncle via a tragic shooting accident. Soon after, I lost a school friend to drowning in a farm dam, and a fellow classmate to an accident in a grain silo.

In my senior high school years, my best friend died in a car accident, 2 additional classmates died in separate car accidents the following year. All this while still at school.

When I started going out on dates (as a young and naive 19yo) the first boy I ever went out with was critically injured in a random attack in a hotel. The second man I dated, died in a work accident while carting hay. My next boyfriend lasted a little longer, I dated him for a year before he too died - in another car accident. I was devastated.

When I was in my late 20's, my Mums youngest brother died at the hands of his then girlfriend. When in my early 30's, my Dads youngest brother (and my favourite uncle), committed suicide.

It was in Feb 1996, when in my mid 30's, that I was beaten and sexually assaulted in my own home, by a former friend and someone I had once trusted. This caused major trauma and it took a very long time for me to recover from, both physically and emotionally. I could not escape the fear of it happening again, nor the horror of it all. Feeling vulnerable and unsafe, I desperately needed to escape to hide, so I sold my home a few months later and moved. Still trying to escape I sold and moved again, this time to another state. I could not allow this person to find me again. The mental trauma of this violent rape continues to affect me badly every year.

A couple of years after the assault, I entered into what turned out to be an abusive and highly volatile relationship. I married someone just like my Dad. My husband is essentially a good man, but has a traumatic past himself, and is an alcoholic and a narcissist. I guess that old saying, that you end up marrying someone just like your Dad, is true.

In my early 40's my remaining best friend from high school died on the operating table during what should have been a very simple routine minor procedure. I'm godmother to her children. She had fled a violent marriage when her kids were young, and had essentially been in hiding since that time.

Around the same time, the husband of a workmate of mine died in a freakish workplace accident. My 24yo nephew was seriously injured in a mining accident which resulted in permanent injuries to both legs which will limit him for life.

Our neighbour from the adjoining farm to ours, committed suicide during the hardship of a prolonged drought in the mid 2000's. Our two families had been quite close, and this hit the very small rural community very hard.

I was in my 50's when my youngest brother was seriously injured in a fatal car accident. He was very lucky to survive and, five years on, he continues to have serious ongoing physical and mental health challenges. Tragically his young daughter died in the accident. This major loss affected my whole family very badly, and marked the rapid decline of my Mums health. The loss of her only granddaughter, whom she was very close to, broke her heart. My beloved Mum died just over 12 months ago.

After so many of my friends and family died or were permanently injured in freakish circumstances, I started isolating myself to a large degree - cutting myself off from any remaining friends. In my 20's and 30's I never went on dates - no more boyfriends for me. Therefore no more losses? I never permitted myself to get close to any new friends. I figured I was cursed somehow and caused all these tragic things to happen to so many around me. It seemed I wasn't safe to be around. As tragedies continued to happen throughout my life, it served to reinforce that thinking.

Working life ... I experienced a workplace accident when in my late 30's which resulted in permanent physical impairment and ongoing chronic pain. In my 50's I was targeted by my workplace manager after calling out a case of workplace bullying against a fellow worker. I became the target of sustained harassment and bullying as a result. It became more than I could handle, so I resigned.

Given my physical limitations and ongoing pain levels, I sought and found part time work. I worked with a lovely bunch of people and thoroughly enjoyed the work for about 6 years in total. Unfortunately I was forced to leave work a few years ago due to carer responsibilities. Leaving work and being stuck at home every day was a major adjustment for me. I miss the mental stimulation of work and the interaction with former workmates. As I do not have friends, my workmates was all I really had.

My husband suffered permanent brain damage as a result of life saving medical treatment he received two years ago. He has Stage IV terminal cancer, a degenerative neurological disorder, a serious auto immune disorder and several MH disorders. Caring for him is now my full time job.

Last summer's bushfires raged all around us, and we were on evacuation alert numerous times. In the end, we were one of the lucky ones. But tragically, 4 lives were lost in our local area.

And now of course, we are all living through the COVID situation. I have been unable to visit elderly and frail family members due to border closures and travel restrictions. With restrictions and impositions on our normal everyday life changing seemingly every day, life is such a rollercoaster. COVID is making us change our lives every single day, and I do not adjust well to major change.

I know I should switch off the news and not look at sad and traumatic news, but I seem drawn to it like a moth to a flame. I feel I need to know what's happening at all times. And yet I find myself more and more upset by the growing death tolls, lost livelihoods and global virus tallies. I do not think life will ever be the same again. How can it?

I don't know if you become immune to trauma and tragedy, or if trauma builds until it eventually breaks you. There's been times in the past that I've felt almost numb to it all. But more recently, I seem to be breaking and feeling even more alone and without hope of things ever turning around for the better. I just feel that I have no hope left in me.

Emelia 🌸

4997 replies

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In response to: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Em, I feel so out of the loop.

I so hope you are ok? I think of you everyday. Please tag me in your update when you have one as I care but just cannot keep up at present 😟

Sending you bucket loads of love always my friend 💞❣️💞 @Emelia8

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

You're there 🙂🌹🌺🌸🌷🌼💐🌻

@Emelia8 hello xxx

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Yes @Anastasia ... I'm here. 💖😄

Will try to provide an update later.

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

It's nice to see you @Emelia8

I see you have all of the information now. Just digesting it...so much I can only imagine. I do hope that you are ok. Holding you close in my heart in the hope that it provides you some strength. You'll make the right decisions you are brave and smart. Love and hugs ❤️

No pressure to update hun x

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

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Okay, my promised update. And I warn you in advance that this is likely to be another long post.

So ... I saw the breast care nurse last Wednesday. Got a few tips on bra's, and also the ongoing nerve issues with my arm. She said I would likely have permanent nerve damage affecting the back of my arm from shoulder to elbow ... the numbness, is unlikely to fade much, if at all now. Nothing new there really, as I have a numb leg (back of thigh from hip to knee) from permanent nerve damage from my back injury. So no big deal there, I can live with that.

I also discussed the fact that as my wounds heal and swelling reduces, the distortion of the breast is becoming much worse. She said it would likely continue to change for the next 6 months. She gave me details of 2 outlets locally who specialise in bra fitting and partial prostheses. However she suggested I wait until around May to allow things to become more permanent fit wise. My upcoming radiation will shrink and distort the breast even more.

She agrees it's not good that nothing fits, nothing provides the support I need and that everything I've tried so far from my small selection of bras ... is damned uncomfortable and I can only stand to wear for half an hour or so. Looks like I will just have to put up with that for the time being. Although she made some suggestions for some short term semi-solutions.

I also had a good discussion with her about some of the treatment options that the oncologist was likely to recommend when I saw her Friday. At the end of my consult, she said she would ring me on Monday to see how I got along with the medical oncologist and to see whether I had any questions etc. She is really very supportive. The breastcare nurse system is really fantastic and I could not speak highly enough of them.

My medical oncologist appointment on Friday was quite long, I was there for just short of an hour. She was very nice and very thorough ... physical exam, full medical history, family history, explanations of recommended treatments etc.

She said when I walked in "your face looks familiar". I said yes, it should, I had seen a lot of her when she first came to this district nearly 3 years ago. She was always in tow when the other oncologist was visiting my husband when he was in hospital for a month with encephalitis from his cancer treatment. At the time, they said he wouldn't pull through and that I should 'make arrangements'. I's seen her from time to time in passing when I've been with hubby for his regular checkups with the main oncologist. So she remembered that when I explained.

Her recommendation was that I 'throw everything at this cancer'. And that means I undertake a series of chemotherapy. The main reason she suggests that is because the cancer I had was a Grade 3 (the most aggressive and fast growing) and was on the border line of being particularly bad. That is, anybody who is 60 or under when first diagnosed with a 1cm or bigger breast cancer ... is much more likely to have a recurrence. So I'm right on the borderline for a high chance of recurrence. And the other reason is because there is the family history with my Mum dying of breast cancer last year, as well as having a grandmother who died at around 60yo.

So her argument was that for the best outcome I should seriously consider chemo. I told her I had given it a lot of thought since the surgeon had first suggested it could be on the cards. And that with consideration of the significant risks verses possible benefits ... I would not be doing chemo. She accepted that, and agreed that yes, chemo is poison.

She next said that I could have a DNA test which would indicate much clearer as to the likelihood of recurrence, and therefore any need for chemotherapy. This particular test is assessed in the USA and she said it costs about $7000. Yikes. All that just to give me a result which might recommend chemo ... which is something I wasn't going to agree to anyway? No thanks. Might be okay if you have money to burn ... but I don't. And really, I doubt it would change my mind about chemo anyway.

She was very reassuring and said that she would be monitoring me very closely from now on. She said if I ever suspect another lump in either breast, that I should see her and she will order an ultrasound immediately to check it out. She also said I would be having 6-monthly mammograms and 12-monthly CT-Scans.

I asked her if she thinks I made the right decision about having a lumpectomy rather than a mastectomy. To which she said that I had made the best decision based on knowledge I had at the time. So yes ... I had made the right choice. Especially given I am also a carer, and having a full mastectomy would put me out of action for a much longer time. She did say that if things changed and I wanted a full bi-lateral mastectomy down the track that she would be happy to refer me to a specialist who would do the double mastectomy and reconstruction. That would have to be in Sydney however.

In the end I came away with a script for hormone therapy, which she wants me to commence immediately. This is the type of therapy I was always told I would need to go on, after surgery and in conjunction with radiation. It's a class of drugs called aromatase inhibitors. It basically stops your body from producing oestrogen and progesterone. It gives similar symptoms to when going through menopause in other words. Plus a lot of other symptoms as well ... depression, anxiety, hair loss, osteoporosis, joint and muscle aches and soreness, difficulty sleeping, high blood pressure, high cholesterol, weight gain, greatly increased risk of heart attack and stroke, possible other types of cancer risk, mood changes, fatigue, headaches, etc. In fact I have a headache just thinking about it all. Some of those things I already have ... eg depression, anxiety, joint issues, trouble sleeping, borderline cholesterol, fatigue and an increased risk of heart attack and stroke due to my congenital heart condition. Does this medication make all these worse? When I asked, she couldn't answer.

So I haven't started on the meds yet ... I keep looking at this little box of tiny white pills and feeling quite revolted by them. It is essentially another form of chemo, but in tablet form. I just don't know what to do. Been thinking about it all along, because I knew this was coming. One day I think ... yes just take them. But so far, I haven't been able to do so. I keep putting it off ... deferring the inevitable perhaps.

Knowing what was likely to be recommended, I had already discussed this with the BC nurse last week. She suggested I give them a try, and can always stop if side effects are too awful. Some people do not have many side effects from them at all, some people are prepared to accept some, and others get the whole spectrum of side effects. There are other variations that I can try too, if these turn out to be awful. But she prescribed these particular ones because they generally have the least side effects. I think if I cannot handle these, I will not be trying any others.

What I need to keep in mind is that ... to have this hormone therapy for 5+ years it reduces the chances of a recurrence by about 60%. So it seems logical that I should try it. Unfortunately my thinking currently tells me that quality of life will be greatly reduced, and therefore ... is it really worth it? That same old thing ... risks verses rewards. Surely if they are going to be doing all these monitoring tests every 6 and 12 months ... if I get a recurrence, it will likely be found before it spreads. Isn't that enough? And if I do get a recurrence, they can whip both breasts off and be done with it. I've already been told that another lumpectomy will not be possible. After you have one lumpectomy followed by radiation ... it cannot be done again. At least not on the same side. Right now, this decision seems way too hard to make. I may try it for a week and see how it goes, I can always stop. The thing is ... I want to live.

That aside, I now have a clearer picture of my ongoing treatment plan and appointments. I was notified by the regional Hospital cancer institute on Friday that my Planning Session (up to 2 hours long) for the radiation is scheduled for next Monday (21st Dec). And I have been pencilled in to commence my 3-week radiation therapy on 12th January. At least I now have dates and a medium term plan to work towards.

I also have a bone density scan on 11th January, because these new tablets severely reduce bone density and cause osteoporosis. This will give them a starting point that they can monitor things into the future. That is, if I decide to take those nasty little white pills.

This week I see my physio on Tuesday to help with the lymphatic cording. It is slowly improving now that I am able to recommence the arm and shoulder exercises. So that's a plus. And I also see my psych on Wednesday. And of the one on 21st December. So I still have a number of appointments leading up to Christmas, before finally getting a bit of a break. It's been one appointment after another lately.

Looks like we won't be going anywhere for Christmas this year. But I am really hoping I feel up to driving South to visit my Dad and other family members in early January, the week prior to radiation therapy starting. If I don't get there then, it's likely I won't get there before March. I'm told that radiation therapy is very draining fatiguing and likely to make treated skin and flesh very sorry and burned. Not the most comfortable scenario when driving long distances. A seatbelt already hurts, and its likely to be worse after 3 weeks of radiation. So I have that to look forward to.

Mentally and emotionally I have not been in a good place the past couple of weeks ... too many decisions to make, too much feeling sorry for myself, and feeling downright depressed about everything. It's an opportune appointment this week with my psych. I will likely talk to her too about these tablets and how they will affect me mentally. Lots to discuss with her in other words.

Much love to each of you good people and, as always ... thank you so much for your love and support.

Emelia 💕

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Thanks for the update hun @Emelia8. You've put it all down so well. There's so much going on for you at the moment. Even without caring for your husband. I understand those feelings you are having so well, even though our cancer journeys are different. But at one point I considered that if chemotherapy was on the table for discussion, that's something I also would have rejected like you have.

And yes, you did make the right choice for you based on what you knew at the time, and the personal circumstances that you are dealing with.

Although I'm not here much, you're often in my thoughts. I hope there is some end to all this uncertainty at some point. Even though that might not happen for quite some time yet.

Love and gentle hugs hun. 🤗❤️💜

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Firstly thanks for the update @Emelia8

Wow, you have been through a lot in a short amount of time. I am glad your bc nurse has been so supportive and seems very knowledgeable. It sounds like you have made some big decisions hun, and they could not have been easy to make.

It's good that you have a psych appointment coming up too, hoping you are able to talk to her about everything you need.

Lots of love and gentle hugs sweetie 💜💜

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

@Emelia8 I am with you through this journey. Whatever you decide. I will support you always.

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Dear @Emelia8

thanks for the update. So much going on for you right now. I am always thinking of you.

I hope you can get to see your Dad and family members; that would mean a lot to you I am sure.

Pls know that sometimes i dont reply to you, but i am always thinknig and supporting you.

take care,

BB

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Em 💞💞💞

@Emelia8

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