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A Life of Trauma and Tragedy (Possibly Triggering Content)

A Life of Trauma and Tragedy (Possibly Triggering Content)

As a young child and into my teens, I have vivid memories of a violent and abusive father. Dad was essentially a good man and worked hard to provide the necessities for his young family. He was also a very proud man, and it was hard to make ends meet as a lowly paid manual worker. He was by nature a quiet, shy and gentle man with a lovely dry sense of humour. But alcohol turned him into a violent abusive drunk, with a quick and volatile temper. Mum would tell me and my siblings to go to our room whenever this happened. I know she tried her best to shield us from the violence as much as she could. But it's hard to miss the shouting and the smashing of items as arguments raged. Our tiny 4-roomed home allowed no escape from what was going on. We all knew not to comment afterwards on Mum's frequent and obvious injuries.

As a pre-teen, I experienced the heartbreak of losing a much loved uncle via a tragic shooting accident. Soon after, I lost a school friend to drowning in a farm dam, and a fellow classmate to an accident in a grain silo.

In my senior high school years, my best friend died in a car accident, 2 additional classmates died in separate car accidents the following year. All this while still at school.

When I started going out on dates (as a young and naive 19yo) the first boy I ever went out with was critically injured in a random attack in a hotel. The second man I dated, died in a work accident while carting hay. My next boyfriend lasted a little longer, I dated him for a year before he too died - in another car accident. I was devastated.

When I was in my late 20's, my Mums youngest brother died at the hands of his then girlfriend. When in my early 30's, my Dads youngest brother (and my favourite uncle), committed suicide.

It was in Feb 1996, when in my mid 30's, that I was beaten and sexually assaulted in my own home, by a former friend and someone I had once trusted. This caused major trauma and it took a very long time for me to recover from, both physically and emotionally. I could not escape the fear of it happening again, nor the horror of it all. Feeling vulnerable and unsafe, I desperately needed to escape to hide, so I sold my home a few months later and moved. Still trying to escape I sold and moved again, this time to another state. I could not allow this person to find me again. The mental trauma of this violent rape continues to affect me badly every year.

A couple of years after the assault, I entered into what turned out to be an abusive and highly volatile relationship. I married someone just like my Dad. My husband is essentially a good man, but has a traumatic past himself, and is an alcoholic and a narcissist. I guess that old saying, that you end up marrying someone just like your Dad, is true.

In my early 40's my remaining best friend from high school died on the operating table during what should have been a very simple routine minor procedure. I'm godmother to her children. She had fled a violent marriage when her kids were young, and had essentially been in hiding since that time.

Around the same time, the husband of a workmate of mine died in a freakish workplace accident. My 24yo nephew was seriously injured in a mining accident which resulted in permanent injuries to both legs which will limit him for life.

Our neighbour from the adjoining farm to ours, committed suicide during the hardship of a prolonged drought in the mid 2000's. Our two families had been quite close, and this hit the very small rural community very hard.

I was in my 50's when my youngest brother was seriously injured in a fatal car accident. He was very lucky to survive and, five years on, he continues to have serious ongoing physical and mental health challenges. Tragically his young daughter died in the accident. This major loss affected my whole family very badly, and marked the rapid decline of my Mums health. The loss of her only granddaughter, whom she was very close to, broke her heart. My beloved Mum died just over 12 months ago.

After so many of my friends and family died or were permanently injured in freakish circumstances, I started isolating myself to a large degree - cutting myself off from any remaining friends. In my 20's and 30's I never went on dates - no more boyfriends for me. Therefore no more losses? I never permitted myself to get close to any new friends. I figured I was cursed somehow and caused all these tragic things to happen to so many around me. It seemed I wasn't safe to be around. As tragedies continued to happen throughout my life, it served to reinforce that thinking.

Working life ... I experienced a workplace accident when in my late 30's which resulted in permanent physical impairment and ongoing chronic pain. In my 50's I was targeted by my workplace manager after calling out a case of workplace bullying against a fellow worker. I became the target of sustained harassment and bullying as a result. It became more than I could handle, so I resigned.

Given my physical limitations and ongoing pain levels, I sought and found part time work. I worked with a lovely bunch of people and thoroughly enjoyed the work for about 6 years in total. Unfortunately I was forced to leave work a few years ago due to carer responsibilities. Leaving work and being stuck at home every day was a major adjustment for me. I miss the mental stimulation of work and the interaction with former workmates. As I do not have friends, my workmates was all I really had.

My husband suffered permanent brain damage as a result of life saving medical treatment he received two years ago. He has Stage IV terminal cancer, a degenerative neurological disorder, a serious auto immune disorder and several MH disorders. Caring for him is now my full time job.

Last summer's bushfires raged all around us, and we were on evacuation alert numerous times. In the end, we were one of the lucky ones. But tragically, 4 lives were lost in our local area.

And now of course, we are all living through the COVID situation. I have been unable to visit elderly and frail family members due to border closures and travel restrictions. With restrictions and impositions on our normal everyday life changing seemingly every day, life is such a rollercoaster. COVID is making us change our lives every single day, and I do not adjust well to major change.

I know I should switch off the news and not look at sad and traumatic news, but I seem drawn to it like a moth to a flame. I feel I need to know what's happening at all times. And yet I find myself more and more upset by the growing death tolls, lost livelihoods and global virus tallies. I do not think life will ever be the same again. How can it?

I don't know if you become immune to trauma and tragedy, or if trauma builds until it eventually breaks you. There's been times in the past that I've felt almost numb to it all. But more recently, I seem to be breaking and feeling even more alone and without hope of things ever turning around for the better. I just feel that I have no hope left in me.

Emelia 🌸

4997 replies

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In response to: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

@Emelia8 I wish you the best of luck for your appointment with the surgeon.

Thinking Of you 🍀 xx

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

(((( @Emelia8 )))) 💞❣️🌹❤️💐🌻🌷🌸❣️🤗🙏

In response to: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

@Emelia8 Please don't give up, I had no idea what you had been going through. You have supported mine and others posts when you had all of this to contend with. You really helped me just being there.
I truly hope that you get the best possible news, you certainly deserve it.
sending lots of 💓💕💞 🤗🧸💐

always-hope

In response to: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Still crossing fingers and toes @Emelia8 💞🙏

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

@Emelia8 💞🌸🌷

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

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My promised update, after my busy day yesterday. I pre warn you that this is likely to be a long post. I feel lots of things spilling from my brain right now.

I had a 2-hour session with my psychologist from 11am. I was quite emotional and cried several times. But we actually covered quite a lot on the day. It was definitely helpful and I was glad I kept the appointment. Even though I was tempted to cancel.

Then at 5pm I had my appointment with the surgeon to discuss how I was healing and also to deliver the pathology report details.

First thing he wanted to do was to check his handiwork. Of course! Anyway he was happy that everything was healing nicely, and appeared pleased with himself. He has done his job well.

The good news was that the surgery took out a large enough chunk of breast tissue to give clear margins around the known invasive cancer tumour. So clear margins is what you want to hear and I got that. Of concern however was that also contained in the removed tissue was a second tumour, located a few centimeters from the known cancer. The tumour which had been biopsied back at the end of September was confirmed as being a nasty aggressive Grade 3 type cancer, of a little over 1cm in size. So it had grown a bit since it was last scanned. I had thought that was the case from feeling it, so that was not a surprise. So relieved its out now!

A second cancer contained in the sample was much smaller, only 5mm. It also tested as a high grade (aggressive) cancer tumour. The reason it had not been picked up in mammograms or CT Scans is because it was what they call 'in-situ'. They are harder to identify, not having invaded healthy tissue yet, and sometimes only show up as a bit of calcification on scans. Previous ultrasounds had dismissed it as an issue. Anyway I am thankful that the surgeon decided to take the extra tissue out as a precaution. One less cancer growing and becoming invasive. Incidentally, when they find these 'in-situ' tumours, the recommendation is for surgical removal. Same as for known already invasive tumours.

Also of concern from the pathology report is that there were other areas of the removed tissue which showed early changes and indication of pre cancer. If this fairly small piece of tissue showed so many cancer and pre-cancerous growths and changes ... I have to ask ... how many more are there? In either or both breasts. This brings home to me the necessity to go ahead with the recommended radiation therapy to try to obliterate any remaining cancer cells within the breast.

But even then ... what about the other side? I am beginning to think that I could be riddled with cancer soon, and maybe I should have elected to go for the full mastectomy, and include both sides. Then I would know that my clearly faulty breast tissue would not be silently killing me. Yeah I know it sounds a little dramatic ... but right now thats how I see things. I'm doubting the wisdom of my choice to go for the lumpectomy. I dont know, I probably would have gone radical if I'd known there were at least 2 cancers in there. From all the pathology tests now, they say I am at a high risk of recurrences.

Okay ... there was another piece of very good news in that the pathology from the sentinel node biopsy did not indicate any node involvement. Thats a very important piece of news, and affects the Grading of the cancer. So I think, given no nodal involvement, that I will be a Stage 1. So thats good. It would have been stage 2 if it was found in the nodes as well. Mind you, I dont take a huge amount of stock in clear nodes meaning that cancer has not spread. My husband had a sentinel node biopsy when he was diagnosed with melanoma 4 years ago. His nodes were clear too, and his surgery to remove the melanoma had clear margins also. Less than a year later, both his lungs were littered with cancer. So it isnt the be all and end all as far as clearing you of any spread.

The pathology shows that 5 underarm nodes were removed, and the surgeon confirmed this. I was told only 1-3 would be removed, which is usually the case for sentinel node biopsy. I really dont know why he took so many. Maybe because the CT scan said that due to quite a severe swelling of one node, that they could not rule out involvement. So again, I guess the surgeon played things safe. And I think I'm thankful for that. Had he only taken one or two I would probably be worried he had taken the wrong ones, and that cancer could still be there.

Unfortunately however, removing more nodes can cause some ongoing issues. Some of which I am already experiencing. I told him about the nerve issues and pain down left arm, as well as severe numbness and touch soreness down the back of the arm. He was a bit blase about his answer there. He said that the nerve issues should resolve over time. But then said that I would get used to it. I already know that some people never fully recover from nerve damage, especially when more nodes are removed from under the arm. Also that lymphodema can become a problem at any stage now or in future. He did check for signs of lympodema, but there were none. He told me what to look out for though for in future.

He told me that he was doing a referral to a local Medical Oncologist who he wants me to discuss the possible need for chemotherapy. Nobody had said anything to me about needing chemo before, so that surprised me. He said that it may be recommended because of the high grade / type of cancer. And also the oncologist would handle the possible hormone suppressing therapy if I go ahead with that.

He was also sending a referral to the Radiation Oncologist in the next town (an hours drive away). He said I would likely need a 5 week course of radiation 5 x per week. But that I would need to discuss all that with the specialist.

The surgeon said he wanted to see me again after completion of any radiation/chemo treatment in about 6 months time. Said given my high risk of recurrence he mentioned that I would need to have regular mammograms and CT Scans. The first will be in 6 months time when he next sees me.

The breastcare nurse rang me this morning as she told me she would. She wanted to know how I was going and if I had any questions about by pathology, next steps, etc. She mentioned that she would keep an eye out for the medical oncology referral, as she is based at the same hospital as the oncology ward and will see it come through. She will get in touch with me then.

She asked how the exercises were going. I said I had been doing them since day 1. The exercises recommended for the first week post surgery were easy enough. But I told her I had been having difficulty with the more advanced exercises since day 7. She asked me why and I explained about the nerve pain and also what felt like a badly pulled muscle down the inside of my left arm. She suggested that to help ease the highly sensitive upper arm I could, if I can stand it, gently massage the back of the arm to help desensitise it to some extent. But she said the same as the surgeon in that it will take time for nerves to regenerate, and that sometimes it can take years, or not at all.

The feeling of a pulled muscle when lifting the arm, she said is likely to be what they call 'cording'. It is quite common when a lot of underarm lymph nodes are removed. Less common with sentinel node removal, but given they took more than usual in my surgery, then the 'cording' becomes more likely. She asked if there was still a lot of underarm swelling, which there is. Cording is caused from swelling around the lymph node area where they were removed from. It is also more prevalent for younger people and people who are a low BMI. I think as only 61, I'm considered on the younger side. And yes, I do have a low body mass index. So I guess I am vulnerable to this cording thing. Its important I continue to try to do the exercises as much as I can. But the nurse said to contact her if it doesnt improve, because some people need some specialist physio to help free up the cording.

So ... like I said ... some good news overall. But also some worrying news to try to digest. This is going to be a long term issue for me ... constantly on alert and regularly having scans and xrays, as I am at a high risk of a recurrence. Wish I knew all this before the surgery, because my decision may well have been to elect for a mastectomy. Oh well ... too late now. If I do get a recurrence, I know what I will opt for next time.

This has been a very long post and my arm is really aching now. I think its well and truly long enough. Thanks for listening to my self indulgent rambling. And thanks for your support. I know how much most of you are currently going through, and do not expect you to respond. So please do not feel the need to do so.

My post is to keep you all updated as to where I'm at. I promised I would, and many of you have kindly been asking how I got along yesterday. Sorry for the delay. This post also acts as a way of categorising things in my own mind ... writing it all down seems to help.

But I am left feeling quite vulnerable, and very small and insignificant in the big scheme of things. And I feel very alone in what I'm going through. Everyone else turning up to see the surgeon all had a support person going in with them ... both occasions I've been there all on my own. But in reality ... thats what I am ... alone in this. I think hubby tries ... but he isnt capable.

Emelia 💞

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

💖 Listening @Emelia8 ..... and hearing you .....

Hugs Hon 💞

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

You are in my thoughts my friend @Emelia8
Take care please. You are always welcome to share on here 🙂 And keeping me posted - I appreciate that

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

So much info for you to process @Emelia8 and to do so on your own. I’m sorry that you have had no one to go along with you, that is really difficult, I’d go with you, as I’m sure others would.

I’m so glad to hear that you got a lot of good news, but can totally hear the concern. Good to hear that they are throwing all treatment options your way. It’s so hard to make these big decision.... I remember all too well when going through my own journey.

please take care of your self x

In response to: Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Re: A Life of Trauma and Tragedy (Possibly Triggering Content)

Hugs my friend @Emelia8

So much for you to deal with

Thinkibg of you xxx

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