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AnastasiaSenior Contributor
Hi all,
I never in my wildest dreams thought I'd be here. In saying that I have had some interactions with some of you and you are all lovely, so thanks for saying hi and making me feel welcome! @Shaz51 @Determined @Maggie @Former-Member @Faith-and-hope @Smc @SoS .
In response to: Trying to stay Sane
NatureLoverSenior Contributor
@Anastasia wrote:My dear Dad is having a bl👀d transfusion and iron infusion Monday.
Praying it gives him some quality of life back 🙏
Oh I hope so, @Anastasia ...
In response to: Re: Trying to stay Sane
Eve7Senior Contributor
Dropping by with some love @Anastasia
💜💖🤗🙏🤗💖💜
In response to: Re: Trying to stay Sane
AnastasiaSenior Contributor
OMG
I am appalled.
Just had NDIS review with totally unprofessional obviously corporate and not disability sector, unprepared woman who called my son and his coordinator the wrong names and clearly had not read the plan review report!!!!!!!
When my son said he was in hospital due to si she wanted to keep asking provoking questions!!!!
I am very uoset by this and once review comes through the organisation will be hearing from me.
In response to: Re: Trying to stay Sane
PaperdaisySenior Contributor
Sorry to hear that was a less than satisfactory interaction for you @Anastasia , It seems like this has come as a shock as your experiences with the NDIS have been more positive in the past? I hope this is a rare occurrence as you and your son deserve to be treated with dignity and respect.
In response to: Re: Trying to stay Sane
AppleblossomSenior Contributor
Hearing you @Anastasia
Sorry you encountered that.
It is part of what put my son right off the whole deal. Funding is not everything but appropriateness, is more than just a word. Training is a fiasco. Too many people with dollar signs in their eyes and hearts. Makes me more patient with people on here struggling with system.
Managerese and corporate speek do not make for a good disability, health or even education system. My head boggles with what has been done to our public sectors. That said I am not a fan of big govt per se, being effective would be a good start.
In response to: Re: Trying to stay Sane
AnastasiaSenior Contributor
@Paperdaisy wrote:Sorry to hear that was a less than satisfactory interaction for you @Anastasia , It seems like this has come as a shock as your experiences with the NDIS have been more positive in the past? I hope this is a rare occurrence as you and your son deserve to be treated with dignity and respect.
Hello beautiful @Paperdaisy
Thank you. Yes it is a shock.
I know I'm a bit stressed at the moment so lots of triggers but that was not at all helpful for myself or my son.
I think the NDIA will be professional and the report is sufficient in that it covers and provides the evidence required but today's process was really horrific and if I can provide feedback so that no one else ever has to endure what we did then I've done what I can for the better of applicants.
The coordinator said she hasn't has someone so unprofessional before in all her years! She's assured me it is the NDIA's decision around funding but I'm scared that this woman has some power over the decision and if she does it won't be a good outcome.
I understand they have KPI's but we are talking about a person and their life. When someone is in hospital and vulnerable then there are some questions that should not be asked no matter if you are disability trained or not! It's called compassion and empathy. Anyway I will stop now. Thank you for your support @Paperdaisy you are very kind 🙏
In response to: Re: Trying to stay Sane
AnastasiaSenior Contributor
Yes to everything you said @Appleblossom. I'm sorry your son was put off. Mine would be if he had to deal regularly with "it all"
All I can do is provide the feedback to maybe make the org stop and think about the sort of people they are recruiting!
Who knows...
Can't help but wonder if it falls on deaf ears.
Psychosocial disability seems to be amiss amongst the world of NDIS sadly, so far to come...
In response to: Re: Trying to stay Sane
pancakesSenior Contributor
I'm sorry @Anastasia sending a hug your way 🤗 💙
In response to: Re: Trying to stay Sane
AnastasiaSenior Contributor
Hello @pancakes
I'm sorry I didn't tag you. Thank you for responding you are a sweetheart.
How are you doing, are you ok?
In response to: Re: Trying to stay Sane
AnastasiaSenior Contributor
Hello @pancakes
Confused as to where I'm posting, so thought here as good as any, blonde hair!!!
Wanted to give you update on Dad...
Dad's starts another cycle of 12 weeks chemo on the 10th December.
The two fusions have had little impact but might over the next few days hopefully.
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Help us push aside the stigma and discrimination surrounding complex mental health and change the way people talk about, and care for, mental illness.
SANE acknowledges the Traditional Owners of Country throughout Australia and recognises the continuing connection to lands, waters and communities. We pay our respect to Aboriginal and Torres Strait Islander cultures; and to Elders past and present.
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