FND diagnosis and treatment

Hi, I am new to this forum, I just joined mainly because AI saw your post regarding FND diagnosis. My 21 yo daughter was diagnosed with FND when she was 14 so we have been living with this for quite a few years now. She has had good experiences and bad. I am admin on a FB page for carers of FND sufferers thats Australian based. have a look at https://fndaus.org.au/ And you might find helpful info there. Its hard when Neurologists saysee a Psychologist or Psychiatrist. Then the Psych's say see a neuro. You did well getting as far as you did.

My daughter had seizures, walking issues, paralysis, pain, and many other issues. She is doing pretty well now as far as the FND goes. She only has Lower leg pain which is controlled by meds. She had to relearn how to walk after the paralysis, and used a wheelchair for over a year. I hope I have been able to help you a bit

Hi, and thanks so much for the post. Finding a GP that understands has been difficult. Do you have any suggestions about good places or medical professionals to connect with?

It depends what state you're in To which specialist is good. Qld people are lucky to Have Dr Alex Lehn and theres a few specialists who have had training under him. There are some useful tips in the website i suggested. May be easier to look there. can search by state

I hope this can help

Hi,

There's a great book coming out in a couple of months covering assessment and treatment of FND and functional somatic symptoms in children and adolescents. The main author works out of Westmead Hospital in Sydney. There's also this story from the ABC with contributions from doctors specialising in FND.

Hope this helps.

Crankenstein

Check out eCPR that's happening around Australia but unfortunately it's on hold in person. Better than drugs but takes training

Hi its my first took time to set up.but now i thimk im on my way.

The worst part of yoi post was that you couldnt say whay y needed to say on the spot.

Ask the Neurologist why he cant, will not, choosrs not to work with this person, probably out of his territory but yous need a base dovtor,professional. The Gp can do referals but the Neurologist would know who to send to for the best treatment, And the specialist is the pne to het things moving along. Make a list of whst you need to do, people to see ,take it to gp bit when you ask neuro why he wont work with her ask him who will ..

Im thinking shes on disability so can a disability advocat help you. You havnt given much info that i can work with . Say to both medical professionals that you dont know what to do and id they van get her inyo get help asap. Ask for a social worker, ruha.. disability advocat. I dont know where you live so im stuch too now, sorry .