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Chronic kidney disease & mental health

Chronic kidney disease & mental health

hello everyone

i have found some information on the sane forum for Kidney disease and mental health

i thought i was feeling ok with being diagnosed with kidney dease stage 4 with only one kidney

which means my only one kidney is working at 21%

now my specialist is wanting me to register to go on the kidney transplant

I am feeling so tired and sometimes it is hard to keep on keeping on

i am feeling soo many emotions at the moment

i have forms to get started to go on the list for a transplant

i also have diabetes which makes it hard and sometimes feeling overwhelmed

my mr shaz wants to be a living donor , he will have to go through the same tests as me

484 replies

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In response to: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Aww thank you @Dimity , that would be lovely 😍

Everything is under control, it is just a waiting game which is playing with Mr shaz's MI today and a few things have not gone right for him today which has made him upset

I am watching TV and on the forum, going to have a shower soon

Fingers crossed 🤞 for the cyclone tomorrow

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hey there @Shaz51 💜🙂

thanks so much for the link to this thread.
Having the opportunity to read through the challenges you face has been a privilege, thank you for sharing ❤️‍🩹🌺

I hope you’re doing ok with the dietary changes to support CKD and diabetes injections now? 💜

Complicated health is not only challenging from the bodily-function/unwellness perspective, there’s also the systemic mechanisms of health care that are not very conducive to individual health - which I feel adds lots to the difficulty of managing multifaceted health needs as well as the extension of timeframes it takes to get help (both physical and mental health support, diagnosis, and treatments).
There’s also the very important aspect of being a carer, where health needs can get left by the wayside when caring.
And all the other stuff to keep life ticking over..work, family, social/recreation, down time, etc.

I hope you don’t mind I mention it, however I find your resilience an inspiration, and very much honour this because despite the moments where things can become very hard, reading these posts I see you rise up over and over again 🌺🙌🏻🙂

As a fellow ‘complex health’ individual, your story has great value and connection 🙂

Thank you again for sharing 🌺☺️

PinkFlamingo 🦩

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hello @Former-Member , thank you for your message 😊

I was born with CRS which is Congenital rubella syndrome which affected my eyes, ears , born with a horseshoe kidney and a cataract

My father emotionally and mentally and physically abused me until mum and I left

Mum has always bestilled in me that I can do anything

With having CKD and diabetes, Osteoporosis and osteoarthritis now , finding a balance is ongoing

@Dimity , @tyme , @Jacques , @StuF

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

I think your mum was right @Shaz51

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

You're an inspiration @Shaz51 . Thank you for sharing. Hope you are okay with sharing. Feel free to reach out to us if you want a debrief or anything team@saneforums.org

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hey there @Shaz51 💜

no worries - I hope you feel like you’ve got a new friend 🙂🌺

I’m really sorry to hear about the difficulties you face and have faced, however I do believe your mum had some very wise words to share there 🙂💜🤗


Starting out life with a series of serious complications, as well as surviving abuse, and overcoming these, is no easy feat - the resilience you have and show here is just incredible, and I’m so inspired by you ❤️‍🩹☺️🙌🏻

Yes; I can see how finding balance is like trying to kick a ball through moving goalposts, however the fact that you continue to keep kicking is what matters, and what rightly deserves to be acknowledged 🙂💜

🦩🙋🏻‍♀️

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hey there @tyme

Thanks for your post - it’s given me another perspective 🙂..if you have any tips or feedback for me, please feel free 🙂🌺💜

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Absolutely my friend ❤️ @Former-Member 😊

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

All good here My @tyme 😊

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Thanks @Shaz51 🙌🏻☺️🌺

..if I knew how, there would be a dancing with happiness gif here..! 😀💃 💜

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