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Chronic kidney disease & mental health

Chronic kidney disease & mental health

hello everyone

i have found some information on the sane forum for Kidney disease and mental health

i thought i was feeling ok with being diagnosed with kidney dease stage 4 with only one kidney

which means my only one kidney is working at 21%

now my specialist is wanting me to register to go on the kidney transplant

I am feeling so tired and sometimes it is hard to keep on keeping on

i am feeling soo many emotions at the moment

i have forms to get started to go on the list for a transplant

i also have diabetes which makes it hard and sometimes feeling overwhelmed

my mr shaz wants to be a living donor , he will have to go through the same tests as me

484 replies

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In response to: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hi @Shaz51

I think it's really great that you can go on the kidney donation list if that's what you want to do - it's tough having to go through it but it will make a huge difference to your life - I am excited for you - and Mr Shaz wants to donate one of his - isn't that really special

Thinking of you

Dec 🦉

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hi @Shaz51

I found this post after looking - and you really are in the process of thinking about a kidney transplant - that's fantastic

Dec

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

yes my second mum @Owlunar , we have to make a appt for us to have the tests done

@NatureLover, @Bunniekins , @BlueBay

yes have been drinking lots of water to help @NatureLover xxxxx

next checkup is in june xxxx

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

@Shaz51 you're inspiring in drinking lots of water. I know you have to, by the sound of it Good luck with your results at the next check-up in June.

In response to: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hi Shaz51

I am new to the forums. I'm sorry to hear that you are at the stage of seeking a kidney donor. It must be a relief to have Mr Shaz supporting you with this. I hope you are able to navigate the process without too much stress. One of the reasons I joined the forum is that I have chronic kidney damage. I have been advised to reduce or eliminate one of my medications which has caused the damage and continues to compromise my kidney function. I am interested to know how your journey to needing a transplant has evolved. Did you monitor your kidney function over a long period of time or was it a relatively quick decline. I am about to make a decision about changing medication and I am curious to know about your journey. I hope this makes sense. Thanks, Kelsey

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

hello and welcome to the forum @Kelsey

I have had kidney disease for 10 years now

and Diabetes and Arthritis for 2 years

I was born with only one kidney

my kidney is slowly declining at the moment

but changing a few things can help make the journey longer

and once your kidney level gets to a certain point they start talking to you about dialylis and transplant

what level and % is your kidney ?

a lot of pain medications are no good for our kidneys

Love to hear more about yours so I can give you a few more hints

will be back soon

also remember to put a @ in front of someones name so they can get your message

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hi @Shaz51
Thank you for sharing more about your health situation. It sounds quite complex with the other conditions. I’m not sure about describing the level but it is 127 and 39. Does that make sense? Whilst it is not really serious, the challenge for me is going off the medication which has caused the damage. I have to start on another mood stabiliser which has some unpleasant side affects or an antipsychotic. I have to decide in two weeks time. It is a hard choice because the chance or relapse as I decrease the other med is quite high. I value any other information you can share. Thank you.

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hi @Shaz51. Just another thought. I have to drink about 4litres of water a day. Is this something that you have to do?

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

hello @Kelsey

it might not be really serious at the moment but little changes will make all the difference

are you seeing a kidney specialist or a dietician yet at all ??

my specialist said to drink enough water that when you go to the bathroom it should be clear ,

I drink around the 2 litres of water a day

hope you find a med that is kidney friendly

at the moment i take 11 meds a day

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hi Shaz

Sorry I have taken so long to reply. I went camping for the long weekend. Thank you for your message. I see a Renal Specialist and I have seen a Dietician but I must admit my diet is not as good as it could be. Thanks for your comment re the meds. It would be really good to discuss actual medication but I understand the rules of the forum. Hope you stay well. Thanks.

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