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Chronic kidney disease & mental health

Chronic kidney disease & mental health

hello everyone

i have found some information on the sane forum for Kidney disease and mental health

i thought i was feeling ok with being diagnosed with kidney dease stage 4 with only one kidney

which means my only one kidney is working at 21%

now my specialist is wanting me to register to go on the kidney transplant

I am feeling so tired and sometimes it is hard to keep on keeping on

i am feeling soo many emotions at the moment

i have forms to get started to go on the list for a transplant

i also have diabetes which makes it hard and sometimes feeling overwhelmed

my mr shaz wants to be a living donor , he will have to go through the same tests as me

484 replies

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In response to: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Aw @Shaz51

You have been feeling pretty ordinary lately and I guess this is the reason - Poor Little Kidney is really battling

I am sure every thing that can be done is going to be difficult and diet isn't going to help now - so it has to be dialysis or a kidney transplant or both - not at the same time I am sure but dialysis and then a transplant - if possible

The public system can really take it's time - I remember hearing that you weren't sick enough to have this treatment in the past and I was concerned about that - I mean - how sick to you have to be. I was upset about that and yes - maybe the future will be rough but better if they help you

I'm sorry you are battling so hard - I really feel for poor little kidney - and actually I think you keep him even if you have a transplant. Strange - I really care about him - aw

Dec

I think I still have Poor Little Kidney's pic - and yes! I do

Aw - I'm still here but it's not easy

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Oh @Shaz51 I'm sorry

Just catching up on forum news.

We have been sent into lockdown and I'm trying to get my work from home IT set up with limited success

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

thinking of you @Shaz51 xxxooo

In response to: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hello @Shaz51

I do hope that you get some answers that will clarify how to further look after yourself moving forward after receiving these results.

I have found with some specialists that they are not best suited to explaining situations.

I write things down that I need more clarification on.

I take the list with me along with my husband, who often hears different information to me.

My mindset at time can overcloud what I am being told.

Another suggestion ask them to print out the best advice for you so that you can take it home with you. You are then free to read and digest in your own time at your own pace.

Also if kept on a noticeboard or fridge or a place that you pass daily; a gentle reminder for preparing shopping list.

Mr Shaz can also read in his own time at his own pace. This might help allay some of his fears and anxiety.

You look after mr shaz and mum shaz. you are very capable of looking after mrs shaz, yes,you lovely lady.

you are just at the beginning of a new journey.

It is also great that you can write about your concerns on the forum. A good place that you chose to write on as well.

Your friends will be here for you to support you along the way.

Time for you now to get back some of that support that you have given for so long to so many.

love Sophia 1 💜

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

So sorry to hear, @Shaz51 😥

Sending care and hugs ❤

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Hugzz-N-Hugzz @Shaz51 xox

In response to: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Oh @Shaz51 my sister Hugs and hugs and hugs

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

hello and thank you soo much for all the lovely messages and support , @Zoe7 , @Determined , @Owlunar , @NatureLover , @Former-Member , @cloudcore , @Smc , @Snowie , @Sophia1 , @frog , @Historylover , @HenryX , @Appleblossom , @Anastasia , @Adge , @Eve7 , @Meowmy , @TAB , @MDT , @Faith-and-Hope , , @Former-Member , @Peri

@oceangirlmy warrior sister , hugs to you xoxo, yes mine is uria acid going around the body as the kidney filter is broken , have proteinurea and arthritis , walking with you my sister , you are not alone xxx

@Zoe7, @Former-Member , @NatureLover , @Sophia1 , @BlueBay , @Owlunar , @frog , @Jacques , @Bow , @Angels333 , @Dimity , @utopia , @Teej , @Fizz

yes my mum @Owlunar , they just add another kidney now , soo when I do have a transplant ( mr shaz wants to give me one of his kidneys it will be joined on to mine xoxo

@Former-Member, my kidney specialist is happy that my kidney is stable but need to do something about the diabetes

thank you my @Sophia1 for your messages , yes I need to be more sticker with my diet @Former-Member , It is a bit hard with a meatlover in the house xxx

hope I have not forgotten anyone @Former-Member , @saltandpepper , @wellwellwellnez , @Lost9 , @Krishna , @Scoo , @Tinker67 , @jem80 , @FindingStrength , @Former-Member , @Bezak482 , @Libra , @Jynx , @Former-Member , @Former-Member , @Otter , @Pollyotter , @Lee82 , @Bellarose75

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

I am so sorry to read this @Shaz51 . As if you don’t have enough on your plate grr.

Sending lots of loving hugs 🤗💙🤗💙🤗

In response to: Re: Chronic kidney disease & mental health

Re: Chronic kidney disease & mental health

Thank you @Eve7 for the hugs my friend xoxo

Sending you lots of of hugs too my friend

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