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Respite Services - why aren't there any available in Qld?

Jane72New Contributor

Respite Services - why aren't there any available in Qld?

I'm a single mum to 3 kids. One of them has Autism and Schitzoaffective disorder and she is 12. She's very difficult to deal with and I need a break. I've had to give up my job to care for her full time but my two other children and I are burning out. I have NDIS funding for her and I have one carer that comes for 2 hours once a week and I'm trying to find other carers but most haven't been successful with her or can't take a child on/don't have a blue card etc.. it's very difficult to find somebody. If I could ask for anything it would be a regular overnight break the boys and I could get but this doesn't seem possible anywhere. I've asked many organisations, her mental health team, the hospital.. nobody knows of anything. The last I heard from Autism Qld is there used to be an overnight respite service they offered but since the NDIS that has been closed down! How are we supposed to just keep going and going...why aren't we allowed respite?

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In response to: Respite Services - why aren't there any available in Qld?

Unknown userMember

Re: Respite Services - why aren't there any available in Qld?

Hey @Jane72 thanks so much for posting. I can't imagine how difficult it is when you've already explored almost every option and still feel there are no avenues for reprieve. I want you to know that here in this community, we will always hear you and be here alongside you in the recovery journey with your girl.

We had a carers event just recently and one of our peer ambassadors, Sarah, had some really great insight about navigating NDIS which you can read over here. There appears to be a lot of loopholes and varying avenues for support which can take a while to get our heads around. In addition, would you be up for giving our help centre a call? Our counsellors work from 10am-10pm on 1800 18 7263. I can imagine you're just really keen for some extra support, I do hope our community jumps in and provides some ideas soon, you're not alone

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