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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

All those times I tell my kids not to take Food in to bed 😆 I must have been pretty tired!

I can imagine the apprehension. The mood stabiliser was revisited with my GP yesterday and it got me reading and look at side effects including weight gain. Once again I found myself on sites about bipolar and I read that it can be very hard to find the meds that work well without weight gain which can be really unhealthy and make things difficult. Would be frustrating for you sometimes.

Can I ask, and please feel free not to answer if you don't want to/can't, what's rapid cycling like for you? Is it unnerving?

In response to: Re: A long rave

Re: A long rave

It's like my energy modulation button is dodgy in general, @CheerBear, and swings between extremely demotivated and sleepy, and then at other times wanting to keep going and going like the energiser bunny (at least mentally), even if I'm (over)tired. It doesn't trouble me as much as it might because I don't have anything really pressing in my life. It's not actually a disaster if I stay up all night, just not good for me health-wise. And I think I've had this kind of rhythm for a long time, swinging between these two states of being in more or less extreme ways. My nervous system feels out of whack but I've hardly known anything other than that it seems.

I imagine it might be a bit nervous making reading about mood stabilisers. To perhaps put your mind a little more at ease, the weight did not stack on super fast. But I have put on about 40 kgs in about eight years. Clearly I can't keep going with the same meds when there's been that much weight gain. I just hope that there really is some kind of improvement from these new meds, at least a halt to the weight gain.

In response to: Re: A long rave

Re: A long rave

That would be really hard to manage sometimes @Mazarita. I can relate to the swinging a bit as I swing between super charged and really flat or sad often. I'd imagine you'd want to almost keep an eye on yourself sometimes, and that it could get frustrating for you. Big hugs. Thank you for sharing.

I'm not super worried about weight gain. I lost lots over the last while and have kept it off, but it is a consideration as it's not ideal. The catt psychiatrist was very anti mood stabiliser for me yesterday and pro anti-psychotic plus anti depressant (and our medication conversation was the tipping point for me where I wasn't so OK anymore).

I hope the meds situation works itself out for you soon and you find the balance that is right for you. It's been tough 🙁

In response to: Re: A long rave

Re: A long rave

I've always got an eye on myself, @CheerBear. But I'm not at all easy to keep in line! The medications have really tempered many aspects of things, but not the sleep. And there's a lot of residual stuff left behind in other ways too. They don't fix us but they make life more bearable is how I'd describe it.

Do you mind if I ask if you are taking medication at the moment already?

In response to: Re: A long rave

Re: A long rave

Aww I had a bit of a giggle at you not being easy to keep in line. Me either @Mazarita!

I have a prn sleep med and an anti nausea one for anxiety (it is physically sickening for me often) but that's it. As of yesterday my sleep med was changed to an anti psychotic used for sleeping. I've had nearly every type of AD over lots of years, and some antipsychotics. They started me on blood pressure meds for anxiety also recently, which sent me into a bodily crash. I just don't work well with meds which makes it hard. My GP suggested gene testing to the catt yesterday in a letter, if they were going to go back down that road, but they didn't want to even look at her letter. If I was going to try something new, the break place (or hospital) would be the best time to though, as there are clinical staff on during the day and it's staffed 24/7. I can't risk the side effects while I'm at home like this I think.

In response to: Re: A long rave

Re: A long rave

Sounds like you are very sensitive to the meds, @CheerBear. Do you have any idea how long you might possibly be at the break place? Sounds like a good idea to do it there, if you are going to try something new. Are you okay with taking on this new anti-psychotic as of yesterday?

In response to: Re: A long rave

Re: A long rave

It will be a minimum 2 weeks probably @Mazarita and up to 4 (but that will stretch the kids and my person a lot). I'm OK with the antipsychotic. It's one I've used before and it's sort of helped or hasn't made it worse. I mentioned the dose to the psychiatrist that has helped before and he suggested taking four times it. I don't get that. I don't get why, when someone is saying that they know themselves well, they're scared to make anything worse in the short term, and that this particular thing has helped, it was automatically suggested quadrupling it :face_with_rolling_eyes: Eventually he was happy to let me take the dose that's helped in that past (either that or he was as sick of me as I was of him and he just wanted me out of there haha!).

I better get moving and get kids up. I am doing something Maz inspired this morning. I love my hair and it's very "me" but I have been in such a funk that I haven't had it cut for months and my style has grown out. I feel not me without it. I booked an appointment to get it done after hearing of your shower the other day. Random, but it have me the lift I needed to get myself there. I'm not there yet but I don't cancel appointments so I will get there. I'm looking forward to it now ☺

Hope you have a good day and that you find some settle so you can sleep.

Love catching you in the mornings (and anytime!) ❤

In response to: Re: A long rave

Re: A long rave

❤ for @Maggie (who I noticed about) too.

👋☕

In response to: Re: A long rave

Re: A long rave

It's great meeting up with you in the early mornings too, @CheerBear. So cool with your hair appointment. Glad that you are looking forward to it. I'm going to bed now, CB. I'll probably get a few hours in. Nightie night in the morning from me.

In response to: Re: A long rave

Re: A long rave

@CheerBear Catching up with posts here, reading some, can't digest toooo much. Sounds positive for a break coming up for you, good news. Is the hair cut today???? It might have already happened. Hope you are happy, or going to be happy with it.

Theres no way I can measure with any other achievments happening here, but goo girls.

One thing I did do...... I gave my cross stitch to my neighbour for her birthday. I just handed it over with the words....please don't say anything... I walked home....across the street. Heart pounding...it's done..... A major achievment.

Hi to everyone else chatting here.

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