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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@eth, good morning to you too. What's been happening with you past few days?

In response to: Re: A long rave

Re: A long rave

@Mazarita domestic chores and spreading a load of mulch in the vegie garden in between appointments etc. Tuesday the new PHaMs worker was meant to come and didn't. Wednesday was half the day at the livin beyond abuse course. Thursday the psychiatrist and chemist so no time to be taken grocery shopping again. And in between all that research and writing for this week's Way of Story Writing course lesson. Plus a 3 hour teleconference with White Eagle medicine woman in Alaska that started at 4am wednesday morning. ( and was amazing!).

Still accelerated and started another new med regime last night.

Phew!!

In response to: Re: A long rave

Re: A long rave

I only get 4 hrs a week from PHaMs and that includes their travel time and office time. And the one I've had is leaving, possibly to be replaced by two, one of whom I've met.

Big time of change and doing the hard yards towards some degree of recovery @Mazarita

In response to: Re: A long rave

Re: A long rave

Wow, @eth, you go! I know it would have been so meaningful for you to have the teleconference with White Eagle. I wonder what you talked about, the highlights, or immediate strong memories. I also understand if it's private between just the two of you.

It's great that you are so aware of your elevated mood. I imagine you might be enjoying it as well. It's often a bit of a wild ride when changing meds. I hope that, even in the midst of some internal chaos, the living beyond abuse course is beneficial.

Phams here has never been that many hours for me, about a couple of hours a week at the start and then tapering down to one, then about one every two weeks. It's been really helpful at that level though and accelerated processes seem to leave me in a heap. So it's worked out well.

I've been doing some video editing even when ill, in short bursts. Not easy!

In response to: Re: A long rave

Re: A long rave

@Mazarita With the teleconference it was a long visualization partly, going back through 7 generations of my mother line to clear karmic debts and move beyond the re-incarnation repetition. Wow sounds totally trippy to describe. And was!! It was an experience anyway, tho' I'm not yet sure where I stand on some of it. But she did tell me to use colloidal silver then gold. I've been researching a lot about things she mentioned durinig the visualization as some how I managed to take notes and go right into the visualization at the same time.

I am enjoying increased productivity and awareness, but that's overladen with a general anxiety about escalating further and constantly self-controlling by putting the brakes on myself. A couple of hours of the day (now usually) I just let myself go with the flow of it all. So much information seems to be pouring into me, but then I realize it's self-directed.

Good to hear you feel PHaMs worked will for you. I get resentful that all my time with them is taken up by necessary appointments (Pdocs, chemist etc) and I'm not getting time to do community inclusion stuff etc.

Good for you keeping up with the video editing. Hoping you will continue to recover.

In response to: Re: A long rave

Re: A long rave

I think I recover a bit like a snail, @eth. But even snails get places. 'Slow and steady wins the race', that's something I first heard from a woman I worked with. She was a filing administrator. There was something in the way she said it at that precise moment that just had the sense of that dawning on me. I was very much a boom and bust type of person, not surprisingly. But, as I think you have picked up on, I have this ongoing state of mini boom and bust going on a fair bit still. For example, last week, very productive by my standards, feeling fit, higher than usual energy. This week collapse. That's due to physical illness mainly but somehow I could tell this week was going to be lower even without that.

Yes, White Eagle does sound kind of hippy trippy. What you said reminded me straight away of a therapist I once had who did primal and gestalt therapy, as well as generally counselling. It was a kind of a wild trip with her but she was very nurturing and supportive. I think of her again from time to time, though I only saw her a few times (she actually died after that). I have been thinking of her lately.

I understand what you are saying about having to 'put the brakes on' all the time and how that mitigates the enjoyment of the elevated states. I think it's a great idea to give yourself a 'freedom space' in the day to go with it.

In response to: Re: A long rave

Re: A long rave

I choose the pre-dawn hours @Mazarita because

a) my brain is at it's clearest

b) other people don't interrupt or even know I'm doing it

c) I can't sleep past 2 or 3 atm anyway, but at least I went to bed around 9 last night so I've had about 5 hours so far. I have down time 2.30-3.30 every day and also give in to the urge to nap when it hits me. Getting some physical activity in is helping too. The mind rarely slows down but the body gets exhausted.

In response to: Re: A long rave

Re: A long rave

@eth, it's so true about our minds being able to go go go while the body just can't keep up. We live similar rhythms, except mine aren't as regular. Yes, the privacy and free mental space of the late night hours are hard to beat, or resist. I went to bed about 9.30 last night and have had about 4 hours sleep. The day before it was only 3 hours due to the breathing problems and intense coughing. I have sore ribs and belly from it! I'm hoping to get out on the beach today. The walking is helping me so much. It was the thing I did first of all towards getting out into the world and rehabilitating myself. That was when I first moved into this flat about 3 years ago. Living so close to the beach has been so helpful. I have walked up and down that beach so much over time!

In response to: Re: A long rave

Re: A long rave

I love the beach too @Mazarita and we have some stunning ones here in Newcastle and surrounds. So different from the beaches in the NT. There's surf for a start. And no crocodiles to beware of! Getting out in nature is so good for us at so many levels.

At the moment I can't do much walking as I've sent my orthotics to a podiatrist in Brisbane to be moulded for a new pair. The Morton's neuroma is playing up consequently. It was the cheapest way of getting new ones and he's the guy who diagnosed the neuroma in the first place. I was meant to have them replaced after 1 year and it's been over 2. The podiatrist I was referred to here wanted over $1000! And the bonus is that Mum is going to cover the medicare gap for me. But I may miss out on an extra 5 psychology sessions under the chronic disease health care plan as a result. Choices! If the NDIS had come through I'd be covered for both the orthotics and the extra psychology, but I couldn't wait any longer. The old orthotics were coming apart and compressed. The psychologist says she will work something out with me about ongoing costs after my mental health care plan runs out, so I'm hopeful there. Otherwise I guess I'm finding out why I've been saving for the last few years!

In response to: Re: A long rave

Re: A long rave

Awesome to know you can sometimes get to the beach too, @eth. Getting closer to nature in any way, even just by noticing the trees and birds, so good to do. Have you ever surfed? I tried it once, it was pretty distastrous, lol. I like to watch the surfers in the ocean here though, not so much the competitions, but just people out there riding waves as part of their regular lives. Podiatry, I'm not sure about it from the two sessions and chunk of money I paid for orthotics I never use. I just like Skechers shoes. They help me get around a lot. I will be getting some Feldenkrais physiotherapy sessions coming up soon. I did a few sessions last year too with the same woman. It is very subtle but it's helped in surprising ways, I think.

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