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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

That is alot of S's @CheerBear but thats alright. Goodmorning to you. Hoping you enjoy your pj day too. How is your blanket (?) Coming along. I found your blanket thread a few days ago to with some pics. Made me smile 🙂❤

Lol i wouldnt mind i walk around the shops in some slightly less obvious pjs quite often and ugg boots
Nope doesnt sound stupid i struggle to go for walks on my own. I dont like it and makes me relaly anxious too ao i stick to walking around the property for now. Hoping your walk goes well and beanie making too ❤ @Bunniekins

In response to: A long rave

Re: A long rave

Morning @eth its sunny but chilly here too but suppose to be abit warm and nice as the day goes on. I do hope you enjoy your holiday, do you think you could get a picture or 2 to share?

In response to: A long rave

Re: A long rave

@Shaz51 what a nuisance your reports and results not being sent to your specialist. I'd be stamping my foot about that one. I suggest you get them to send the last 6 months worth so the kidney specialist can see the bigger picture.

@Bunniekins I really hope you're able to sort the $$ to get your procedure done sooner than later.

Hi @outlander hope today has started well with you. I've an image now of you driving in your pj's and having to stop unexpectedly and getting sprung. My mum tells a story of how she nicked her mother's flash undies one time and then got hit by a car and ended up in hospital. When her Mum came all she could think about was fear at getting caught out!

I don't know how to share pictures from my phone to the forums (yet?). I don't do the forums on my phone, plus it's a new phone and I don't know how to upload from it to the lap-top yet.

In response to: A long rave

Re: A long rave

Haha @eth of course dont worry about the injuries just being caught out lol
Ive been pulled over by the cops before in pjs a few strange looks then on my way!

I dont think you can share pics from your phone until the upgrades happen on the 5th of june but theres no pressure to upload im.more interesting in hearing your having a good time ❤

In response to: Re: A long rave

Re: A long rave

@outlander looks like you and @Mazarita had a really good connection last night and helped each other get through. I'm hoping you've both had some sleep since then. Still reading the overnight posts.

I relate to not wanting to walk around alone - haven't been past the letterbox alone since nearly 18 months ago. I really need to shift that and possibly my camping trip to the community festival will help. We'll be camping not far from the festival area, which is a large oval with stalls and 2 stages - not really any bigger than the farmers' market here. I haven't handled crowds for a long time so that will be a challenge too. But I'm going with my good friend who's a psych nurse (!) and meeting up with another long standing friend who's an occupational therapist, so they will be my anchors while I'm there. And I've told myself that if I can't be with one or other of them (they are volunteer workers some of the time there) I can always stay at our camp. It's not compulsory to get to every event. But I will try to push myself beyond my comfort zone, knowing they are there to assist me if I need it.

In response to: A long rave

Re: A long rave

We had a really good chat @eth i find it really helpful to just be heard let alone having a convo with someone who can relate. I havent been asleep yet feeling rather yukky and shark week has come in full force-great hormones just to add to the mix 😒😕🙃


Sounds like an exciting time. I dont handle big crowds well but youve got some.great friends with you. Hoping their presence is comforting enough to help get you through if you feel anxious. I think its great your going even though this is way out of your comfort zone. I think your already pushing boundaries so if you push more than that is even more fantastic ❤
What time do you leave today?

In response to: Re: A long rave

Re: A long rave

Hi @CheerBear Best wishes for your NDIS application. I'm sending a big push of hope that you get approved first go. It sounds like you've put together a good one.

Thanks @outlander I'm leaving late arvo tomorrow. So I'm going to have a gentle day today I hope and keep the anxiety at bay. My first flight is with my brother so I'll be fine for that one. Then 6 days with my sister - should be interesting as I've only stayed with her once in about 30 years. We are a lot closer since I came south from all my years isolating up north. Then fly up north - sister will put me on the plane and a good friend will meet me at the other end. Then another good friend will put me on the return flight and sister will spend time with me at the airport stop over on the way back then bro or sis will meet me when I return here. So I've got all the supports I need in place in theory - hope it pans out as it's planned.

In response to: Re: A long rave

Re: A long rave

@Mazarita hopefully you're sleeping soundly right now. Wonderful to hear about your Crohn's remission. That must be so good for you.

In response to: A long rave

Re: A long rave

Oh sorry my bad i thought you said you were leaving today @eth an easy going day sounds like a good idea. Maybe watch a favourite movie? Do you have a fave movie or 2?
Wow thats alot of travelling but is like you have checkpoints along to way to look forward to or if you get anxious. It sounds rather exciting though 🙂
Im not a fan of planes or flying at all so kudos to you for being able to fly!

In response to: Re: A long rave

Re: A long rave

@Bunniekins spotted your likes ..... hope today is starting well for you.

@outlander I fly with high anxiety, notice every change in engine noise and hate any turbulence. I've been known to spend a whole flight with my eyes shut doing deep breathing. But it's so much quicker than road travel would be , heading for Qld and the NT from NSW - and I can't do road or rail travel by myself anyway.

Haven't seen many movies for quite a long time except on free TV - I like english murder mysteries but today will probably catch up on last night's Master Chef and then Judge Judy (JJ is a weird habit of mine). Recently I saw Breath at the cinema after reading the book. It was excellent - one caution warning scene which is very brief - and lots of amazing ocean footage.

I read you were going to Office Works for art materials today - have a look at Tombow pens - you can draw with them and then dip the tip in water and turn your drawing into water colour pictures. I discovered them last year and love them. You can mix and make colours like with paint, so you only really need red, blue and yellow to make a wide range of colours. Also Spotlight has a lot of good stuff and is much cheaper than Office Works.

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