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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Mazarita Ooooooo .... I hope so Maz I hope so 😞

In response to: A long rave

Re: A long rave

@Shaz51 Hi Shaz51 I love my virtual hugs thank you. Hugs right back to you too 🙂 xx

In response to: Re: A long rave

Re: A long rave

Hi all @Mazarita@Bunniekins@outlander@Shaz51@PeppiPatty

@Bunniekins hoping your health problem (is it the skin cancer or something else as well?) is cured quickly. Waiting lists are a pain aren't they? I'm a public health patient and usually have to wait for everything.

Wishing the same for you @Shaz51 and @outlander.

@Mazarita wondering how your day unfolded - did you get some more sleep or have you waited all day for the alarm crew?

No worries @PeppiPatty that NDIS thread isn't going anywhere.

Hoping today has been kind to you all.

I just finished my packing all except for a few last minute things. Feels good.

Just have to tell my support worker what's happening now - waiting for her to ring me back. Last week I left a message for her on Tuesday about the NDIS conceding and accepting me rather than go to a hearing and she didn't ring me back til late on Friday. I seem to have chronic communication problems with this organization.

In response to: Re: A long rave

Re: A long rave

Hi @eth, @Bunniekins, @Shaz51, @PeppiPatty, @outlander and everyone,

More hugs to all who are having physical health issues at the moment.

@eth, grrrr to the support worker communication issues. Yay that you are packed and ready to go.

Smoke alarm guy came about 2pm, agent was not with him, which was a relief, as it meant there was no worry factor about whether the flat was clean enough for her high standards. I have had snatches of sleep throughout the day, a couple of half hour naps in the armchair and maybe an hour in the bed. Still very tired and haven't been able to do any video today (or anything much else) because of it. It feels like I just took the prn, instead of taking it last night. Fallout from the all nighters and sleepless days following, it seems. All okay though, just another day in my off kilter life at the moment.

Star Trek coming up before too long on telly. C will be home from work soonish too.

Hope the rest of the afternoon and evening treats everyone well. ox

In response to: Re: A long rave

Re: A long rave

Have a restful evening and a good sleep tonight @Mazarita.

In response to: Re: A long rave

Re: A long rave

Yes @Bunniekins, @Mazarita, @eth, @outlander, @PeppiPatty, the doctor`s appt was good but I also had a not soo good surprise ,I have another infection so I am now on Ab`s now which is good

But I have a kidney checkup every 6 months and I found out that none of my doctors appts or blood tests or bladder / kidney infections which i have had in the last 6 months were NOT sent onto my kidney specialist

In response to: Re: A long rave

Re: A long rave

@Shaz51 big hugs for Shaz51 I really dont know what to say about the reports not being sent onto specialist.... 😞

In response to: Re: A long rave

Re: A long rave

wonder why the kidney specialist thinks i am doing ok @Bunniekins and thank you for the hug , I will just have to check and tell them to send them to him in the further

In response to: Re: A long rave

Re: A long rave

@Shaz51 yes I have no idea either and yes you might have to take the reports to him in person to make sure he gets them.

In response to: Re: A long rave

Re: A long rave

@eth Hi eth it is a skin cancer which has come back after two years and it hurts this time. Surgeon last time said if it comes back I will have to go to hospital ... I hate hospital :(. He only does private so it wil cost me an arm and a leg too ... I might have to ask for help....

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