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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

If it's any consolation @Mazarita it's worked pretty well for me in terms of preventing major depression tho' I've still needed another one to prevent hypomania, plus the antipsychotic - 3 meds for MH in total. But I feel like the combo I'm on works better than previously over the years since I was diagnosed.

I hope you find stability too. You've been very patient through this process - or at least seemed so!

I remember a movie called 'The Madness of King George' where the wife tells him she's glad he's recovered and he says quietly 'I've just remembered how to seem'. It's stuck with me and echoed for years. I think the most we can 'recover' with bipolar is to remember how to seem most of the time, to have insight into what's going on. I think you do a good job of this.

In response to: Re: A long rave

Re: A long rave

Thanks, @eth. I am trying to be as patient as possible, as that seems the best way to get through it. I knew it would be a slow process when I went into it, which helped me mentally prepare for a possibly rough ride. Interesting that you needed another med to help with hypomania. I too take an anti-psychotic. And an anti-depressant. So three meds here too, but only one specifically for mood stabilisation. It's likely to take a little while yet to find some stability I think. So just keeping on keeping on until then.

Interesting about 'knowing how to seem'. I often seem okay regardless of what extreme of sleep or inner mood I am going through. If I can't seem reasonable, I don't leave the flat usually.

In response to: Re: A long rave

Re: A long rave

I was the same about not leaving the flat when I was up north @Mazarita. I didn't have to seem to have so much control over my moods as I do now that I'm here with bro and sil. On the one hand I kind of miss just being able to 'enjoy' my hypomanias and manias, go nocturnal if it meant keeping busy quietly while not sleeping, but on the other hand I know it's better for me overall where I am now. I've been here 17 months now and am just recognizing as I write how huge that aspect of self-managing was for me to adjust to.

In response to: Re: A long rave

Re: A long rave

I felt like I had got a handle on my sleeping habits to some extent before this meds change, @eth. I was still having all nighters, but they were more occasional. I've been thrown back to an earlier stage of recovery really. Hopefully it won't take me too long to make up ground again once the meds (and I) stabilise more.

On a technical matter with the forum, I am now hanging on the onsite notifications feed because the email notifications are coming through far too slowly to chat with you properly.

In response to: Re: A long rave

Re: A long rave

I agree about the notifications @Mazarita I flicked between pages to see your latest post. Not in my e notifications yet.

When you are having all nighters do you stop activity and just lie down with your eyes shut sometimes? I had a sleep study done some years ago and the specialist told me that doing that was almost as good as sleep. So that's what I do at the moment, several times a night, and I do manage to get a nap most times albeit a short one. But again that's got something to do with comments bro or sil have made about seeing my lights on at all hours. I make myself give it a go before turning on the computer. But who knows how I'll go between now and when I travel. It's typical of me to get a bit elevated at such times.

In response to: Re: A long rave

Re: A long rave

I do sometimes do what you mention, @eth. At the moment however, it feels like all bets are off. I'm just too wired up when awake at night and too tired to stay out of bed when the sleep bug gets me. Again, I think of the word juggernaut. I feel I need more assistance from the medications to even be able to go back to doing more of the wiser things when it comes to sleep, if that makes sense. In other words, I am a bit out of control of myself at the moment.

I hope you get a little elevated for the trip, as in improved mood (that seems natural), but not too elevated that it becomes a problem.

In response to: Re: A long rave

Re: A long rave

I have another med that I'm allowed to use prn that helps with getting to sleep initially @Mazarita. I usually only use it about once a week but it makes all the difference when I need to break the insomnia cycles. Still doesn't keep me asleep, but I think just having it there as a back up means I get less anxious about recurrent insomnia becoming a trigger. Maybe you could ask your Dr about something like this. Especially as the adjustment period has gone on for so long.

In response to: Re: A long rave

Re: A long rave

Actually I used to take a med every day to help with sleep, an off label use of an anti-histamine, @eth. I stopped that towards the end of last year but I may talk to psychiatrist about starting it again. I do have a prn muscle relaxant that can help a bit with getting to sleep. I take these very rarely, they are potentially addictive, but I did take one last night as I felt I may be too overtired to sleep still. Anyway, I seem to be okay despite the extremes. I am not getting terribly sad or super elated. It's mainly just these extreme sleep states. Others have much more to complain about.

In response to: Re: A long rave

Re: A long rave

See, that's using your insight @Mazarita It's great that you can observe yourself not having the emotional consequences of the mood extremes. I'm glad that's not happening for you.

You don't sound like you're complaining to me, just talking about your reality with someone who gets it.

In response to: Re: A long rave

Re: A long rave

I guess that, even in unstable states like the present, I just feel so lucky not to be going through the extremely torturing times I experienced when younger, @eth. So, regardless of what I go through these days, I don't think I really have that much to complain about. But still it's good to get it out, especially with you, who knows the bipolar experience so well too.

I may go offline now. I'm finding this chair uncomfortable and have been for a while. Time to sit in the 'real' world for a bit. Then watch Star Trek, lol. Hope to see you at the feast tonight. Lovely chatting, as always. ox

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