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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @Sans911, good to meet up with you at this late hour. Sleep well now. ox

@eth, seems there's a few of us around tonight. I went to bed about 8.30, woke at 11.30 and haven't been back to sleep yet. Have just started gathering ideas for a new video in the time between. How are you tonight?

Hi @outlander, I sense you are around too. Thanks for the likes. How are you going?

In response to: A long rave

Re: A long rave

Im ok @Mazarita waiting for physical health meds to kick in and then hopefully sleep at some point.

Fancy talking in real time twice today
How r u?


How r u? @eth

In response to: Re: A long rave

Re: A long rave

@outlander, hopefully the meds will kick in soon and give you some relief. I'm okay. It's the middle of the night. I often feel better now than during the day.

In response to: A long rave

Re: A long rave

They should pretty soon @Mazarita

It is indeed the middle of the night. Did you have much sleep before now?

In response to: Re: A long rave

Re: A long rave

Hey @Mazarita @outlander notifications seem to be lagging. I'm ok in a wired kind of way since delving into paperwork for my AAT appeal hearing yesterday. This is my week of preparation after dodging the topic largely for the last 3 weeks or so. Have slept 4 hours in 2 shorter sleeps so far.

Hope your meds work soon @outlander Have you still got the headache?

Are you working on a new vid @Mazarita?

In response to: A long rave

Re: A long rave

Yeh i noticed that too with the notifications @eth
Must be so hard wirh all the stuff your dealing with. Im hoping you have supports in place still to help you through...
Yeh still have a headache. Its not as bad as what it was last night. Its just a constant droaning ache that doesnt respond to meds or treating it a migraine-dark room no technology etc. Just riding it out for now

In response to: Re: A long rave

Re: A long rave

I had three hours sleep earlier, @outlander. Been awake for about another three now.

@eth, glad you are okay, if wired. Sending grounded strength for this week of reviewing for the hearing. Yes, I've started a new video (two days after I finished my last one, lol, and only a couple of weeks since the one before that). I have the music for the new one. Next will be exploring what I can do with images. I may not do that anymore tonight though. Would like to get myself back to bed at some point if I can.

In response to: A long rave

Re: A long rave

Oops @eth forgot to tag you ^^^^


@Mazarita hopefully youll be ale to sleep alittle more tonight. Your new movies seems like its already coming together well

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita and @outlander I still have my main supports except my psychologist isn't coming. Apparently she's written a 3rd report which sticks it to the NDIA. Not sure if I'll get to see it beforehand tho' - only 3 more working days for the solicitor to prep for the hearing. Did find out the OT who assessed me last June is being called. But she can only speak to how I was then, not currently or since (hypomania and major depression have both happened since then). The big unknown for me is that the psychologist had to send ALL her notes directly to the AAT and I probably won't get to see them in advance either.

Thanks for the grounded energy Maz. Will be doing my best to feel it.

In response to: Re: A long rave

Re: A long rave

Thanks, @outlander. Very early days with the new vid. Sometimes I don't finish them. They are often kind of a slog for a while until I start to see where the images and sound might fit together well, hopefully with some atmosphere and sense to the way things flow. I've made seven videos so far this year. It's been a productive year with it so far.

@eth, lots of anxiety triggers in there. Hopefully the psychologist's notes will help, though I understand what a big question mark that is. I wonder why she is unwilling to speak at the hearing. Perhaps it relates to her own personal capacities and mental health, too stressful? Otherwise, it's hard to understand. How do you feel about it? Sounds like the OT being called might be helpful, even if her report is a little dated. How you were then will surely matter to the case.

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