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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Bunniekins I heard one of the original wiggles owns the Wiggles as a company and employs the current performers. On a good thing financially no doubt.

Slept a little better last night - 3 sleeps not 5 or 6 that's usual lately. Makes quite a difference to my morning. Getting organised for time with support worker. Seeing my psychiatrist today, will be talking about a possible additional med - ad which I haven't tried since being diagnosed bipolar 1. All the ad's tried over 20 years made me manic but she says that is unlikely because I'm on mood stabilizers .... I'm thinking I should wait til after the AAT hearing to try anything new, I already have enough potential triggers currently. Don't need the adjustment time and possible side effects. On the other hand if it worked well it might make this time easier .... a quandry. I don't know how to decide.

@Mazarita I'd be interested to hear what you think about this too.

In response to: Re: A long rave

Re: A long rave

Hi @eth, just got this latest message of yours before going back through 36 notifications since yesterday on my 'bell' icon at the forum webpage! But thought I'd answer this one first since your appointment is soon and you asked for thoughts from me.

How long until the next stage of the NDIS process, @eth? I think that might be the deciding factor for me in choosing to start a new med or not. If the NDIS date is close, I'd probably wait until afterwards to try the new med. If it's further away, I might take the chance and start the AD now. I understand how tricky a decision it is right now though. For me, starting an AD usually brings on a bunch of fairly strong side effects in the first week to two weeks. By then I am usually starting to feel better and the worst of the side effects are abating or have passed. It's different for everyone though, and can take up to six to eight weeks to be reasonably stable on them. Only you can decide really. I'll be interested to hear how you go. ox

Sending good wishes for today to everyone else reading this too. Will get back to any tags later. ox

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita for getting back to me. Hope you are well and feeling rested and refreshed this morning. It's 5 weeks til the hearing. Maybe long enough to stabilize. Talked to sil about it and she has concerns about it too. She's very busy in her studio getting ready for 2 exhibitions and not around to observe me as much. Her words. I'll not decide til I talk about it with the psychiatrist. Thanks for your input.

In response to: A long rave

Re: A long rave

Morning everyone @Bunniekins @eth @CheerBear @Mazarita @Former-Member @Faith-and-Hope and everyone..

In response to: Re: A long rave

Re: A long rave

Hi @eth, not too bad this morning here. Went to bed just before midnight. Only a couple of short awakenings in the night and woke at 9am. But I'm very feral and ragged and feeling iffy about whether I'm going to make it to the art group today. It's also threatening rain and a storm so don't feel like going out in it really.

On a positive note, after about 18 months on the waiting list, my name has finally come up for some general public dental treatment. I've had a couple of emergency appointments during the wait time. This is to fix the teeth, several of them, that are really getting quite decayed at this point. Growing substantial holes in some of them! I'm so happy I'm going to get them treated now.

Good idea to discuss the issue with your psychiatrist and perhaps be guided by them. Five weeks sounds long enough to try out the new med. I'd probably go for it if it was me. We can be your 'observers' here on the forum if sil is too busy. What you are going through should be pretty clear to us from your daily posts.

Best wishes on it today! ox

In response to: Re: A long rave

Re: A long rave

Thanks again @Mazarita Good news about getting some dental treatment at last. The waiting lists are outrageous. I think dental should be included in medicare, would solve a lot of problems in the dental system. Hope they look after you well. I've been waiting nearly a year to have my dentures relined (i.e. they are loose). It's ridiculous.

You're right about keeping track of what's happening to me by observing in the forums, it really does work that way sometimes.

In response to: Re: A long rave

Re: A long rave

It's usually about a year on the waiting list here, @eth. At least that's how long it's been in the past. But they are so busy at the moment I even have to go to a clinic at some distance from me, instead of the one just down the road. That's a nuisance as it takes two buses and a bit of a walk to get there. But I've taken it anyway cos those holes really need filling very soon! Hope your name comes up soon. Must be so annoying to have loose dentures.

Just texted with my friend. I'm going to her place this afternoon. Probably won't make it to art this week. Haven't been since I got back from down south. Will try again next week.

In response to: Re: A long rave

Re: A long rave

Have a nice time with your friend @Mazarita. I really miss the neighbour I used to have coffee and watch movies with in Darwin. Haven't made that sort of friendship here yet.

In response to: Re: A long rave

Re: A long rave

I hope you do make a friend like that before too long, @eth. My friend and I have had our ups and downs at times, but I feel so lucky to have her friendship overall. It's been fifteen years now since we first met and 'clicked' straight away. Fingers crossed for you. Sometimes I really wish I could spend time for real with you and others on the forum. This is the next best thing.

In response to: Re: A long rave

Re: A long rave

I feel like that too @Mazarita. Some of our connections here are better than those IRL coz we can be more open and honest without being judged. Priceless.

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