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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

Good morning @Mazarita @outlander @Bunniekins and anyone else around this morning.

I was awake several times through the night @Mazarita but I always have a go at going back to sleep before coming on-line, and last night I managed to. But 5 short sleeps to get enough overall. And very active mind this morning with all the what ifs about the case conference at 10am, despite being a bit sore physically. I vaccumed the big house yesterday as well as dancing for over an hour last night. Listening to music again this morning - Tok Pan Tok - to keep my mind as calm as possible. That's one positive that's come out of all this saga - listening to music again. Folky world music with beautiful harmonies.

Hopefully you've both had some good rest since the middle of the night.

@outlander sorry to hear about your hand. At least it's diagnosed now so they can treat it. What a nuisance that they didn't check it properly when you first did it.

@Bunniekins I didn't overdo it last night - no alcohol in the cabin - had a few drinks earlier with bro and sil as they were celebrating the DA being finished and lodged - a huge milestone for their farm group that sil has worked on alone for over 5 years.

Hoping you all feel refreshed when you surface this morning and that today goes to plan for everyone who sees this.

In response to: A long rave

Re: A long rave

Morning @eth im far from freshed as no sleep really but that's nothing new these days . Ive already been up and out for the kids and have another busy day again. Was hoping for some rest but doesnt look like its on the agenda today.


Good luck with your appt today

In response to: Re: A long rave

Re: A long rave

Sorry to hear that @outlander. I don't know how you do it all.

In response to: A long rave

Re: A long rave

I dont know either. Force of habit i think @eth
How are you?

In response to: Re: A long rave

Re: A long rave

Reasonably ok ish @outlander. Just marking time until the meeting at 10am and doing my best not to work myself into an anxiety attack.

In response to: A long rave

Re: A long rave

Sounds really tricky @eth must be so nerve wracking
Will you have your support worker tomorrow?

In response to: Re: A long rave

Re: A long rave

No, don't see her again til next Wednesday @outlander. I only get 3 1/2 hrs once a week at this stage. If I get NDIS that should increase.

In response to: A long rave

Re: A long rave

Oh @eth well hopefully you do get approved it seems theres alot of benefit for ndis but takes so much drama to get there!

In response to: Re: A long rave

Re: A long rave

@outlander not everyone has as difficult a path as I have had, but then again not everyone would keep fighting for it to the highest level as I am doing thanks to the support I have at home from bro and sil. A lot of people with 'psychosocial' conditions (what NDIS calls mental illness) have no support and many don't have the capacity to persevere through what I've experienced. I hope that the thread I'm doing will help at least some people have a better pathway and successful outcome.

In response to: A long rave

Re: A long rave

I think your ndis thread would be helping @eth many read but dont respond or dont know how to respond. I follow a few threads but i dont say anything. Im really glad youve got good home support. It really makes a difference doesnt it
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