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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Wonderful news @Bunniekins, congratulations!

In response to: A long rave

Re: A long rave

Congrats @Bunniekins well done!

In response to: Re: A long rave

Re: A long rave

Awesome news, @Bunniekins. Congratulations!

In response to: A long rave

Re: A long rave

Good for you @Bunniekins!!

In response to: A long rave

Re: A long rave

Congrats @Bunniekins

In response to: Re: A long rave

Re: A long rave

11.30pm. Up again after two hours sleep. In pain, in a painful place. Gastroenterology has let me down so many times in my life. Another surgeon appointment when I get back from travelling. Meanwhile I've had over 12 months of increasing pain with this, pretty much daily, sometimes worse sometimes less so, but in an overall increasing pattern, with no sensible diagnosis, and no treatment aside from going under repeatedly for tests that returned nothing helpful. Took some serious pain relief before going to bed. Maybe it's helping, but not enough.

I spent a good part of today taking @eth's suggestion of making a specific list for packing, as well as a list of the many things that need doing before Thursday morning's departure. Some cleaning, some other jobs. Out of the flat things. Friend coming over for another visit on the eve of the trip, C's birthday. Graduation from Phams on Wednesday morning. Cancel some appointments, make some others. Phew. It's daunting but I will get there.

Today I got some of the jobs done, not many, but enough when body is full of whimper. Haven't left the flat for four days. Going a little crazy from it too. Will be trying to get out of these four painful walls later today.

It was interesting to read about others fear of death. I relate too to fearing the suffering before death more. I've had enough of it in my life already and yet there's likely to be more. Cheer up, Maz, it could be worse. And soon there will be so much distraction in that faced paced city where I'm going. Many good things amidst the many challenges. Small stuff by any usual standard. All big for me.

In response to: A long rave

Re: A long rave

😔💜💜💜 @Mazarita ......


😊🎉 @Bunniekins

In response to: Re: A long rave

Re: A long rave

Thanks for the message, @Faith-and-Hope. Just having a long whinge. The pain I'm experiencing rises and falls after every toilet visit. At the moment, it's subsided again.

How are you tonight?

In response to: A long rave

Re: A long rave

Bit tired tonight @Mazarita ..... often use the forums as a wind-down.

Missing a special friend here who is taking time out ..... hope she’s not away much longer.

Have spent a weekend catching up with my married dragons and seeing to some maintenance work on the house before returning shortly to my uni dragons ...... and back to daylight saving .....

It’s been a busy few days, but satisfying. I am glad I came ..... surreal as it is ......

I would like to say “I hope you’re feeling better soon” but it doesn’t seem to match the reality ..... so I will just say that I hope they find an effective treatment soon.

💜💐

In response to: Re: A long rave

Re: A long rave

I hope your special friend returns soon, @Faith-and-Hope, and that the break is helpful to them.

Ah, so you are cross country again at the moment, visiting home that's not quite home for now. Glad to hear you have caught up with your young adults, and that the overall trip has been satisfying, if surreal.

Thanks for your kind words about this frustrating health journey. I think my GP has pretty much diagnosed what is going on and even knows the treatment that will be needed. Just can't seem to get the surgeon and gastroenterologist to recognise it. When your GP knows more than the specialists, you hold on to that GP, as I have for about nine years now. She is a blessing.

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