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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

Thanks back atcha @Teej. My sil has shared that article from The Guardian far and wide. It's so true, exactly my experience so far. I also hope that my experience with the NDIS journey will help others and particularly save them from some of the milestones I've had along the way.

How's life going for you?

In response to: Re: A long rave

Re: A long rave

Yes it was the guardian article @eth, I couldn’t remember where I read it until you posted that. I hope you win and save others so much heartache and stress too, but it’s still not fair that you’ve experienced it.

Im still as chaotic as ever. I have a thread now that tries to focus on the positives but ends up being a mix of lots of stuff. I posted one part last night. It’s called walking on the road to recovery. I don’t post there often but it’s here. Please don’t feel like you need to respond. It’s more of a journal of how I’m going but I also love other people adding their experiences too......and @Faith-and-Hope saving my backside sometimes 😜😘, but it’s definitely not an exclusive thing.

Im heading off for a bit but may be on later for a chat. Best wishes to all here 💜🤗

In response to: Re: A long rave

Re: A long rave

@Teej hope your day goes better than mine is. My posts on my other thread have been rejected and deleted by the current moderator for no reason I can understand. I'm really upset right now.

In response to: A long rave

Re: A long rave

Hi @eth ....

Settling in slowly .... not without dramas, but they are organisational and uni related stuff so far.

The thread @Teej mentioned is where we save each other’s butts .... lol ..... but definitely not exclusively.

In response to: Re: A long rave

Re: A long rave

Hello @Former-Member I see you're also in the background somewhere from your like of one of my posts. Please talk with @Former-Member and help me understand why my posts were deleted from my NDIS thread. I haven't had a reply to my last email. Very upset. The NDIS battle is hard enough without this happening in the place I had support for it.

In response to: Re: A long rave

Re: A long rave

Oh no @eth. I’m not sure either but I hope someone gently works through this with you very soon. Feeling for you. 💜🤗

In response to: A long rave

Re: A long rave

💜 @eth .....

In response to: Re: A long rave

Re: A long rave

I did receive an explanation and have edited and successfully reposted on the other thread 'Anyone started with the NDIS?' in case anyone's interested. Sorry for the drama but I was really upset. Still coming down.

In response to: Re: A long rave

Re: A long rave

Hi @eth,

You still have support here, there were just some technical issues with the link that I believe @Former-Member relayed to you via email or is currently in the progess of doing this now

In response to: Re: A long rave

Re: A long rave

I'm glad you have had success in posting it again @eth Thank you for working with me on that one. Please feel welcome to email with me again if anything is feeling unresolved.

Thanks Eth 🙂

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