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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

Thank you

night all

In response to: A long rave

Re: A long rave

Good night @Former-Member

In response to: Re: A long rave

Re: A long rave

Specialist appointment here this morning. I am awake but very tired and in danger of falling asleep in the chair. So I'm writing here to try to wake up my mind.

Three sleeps last night, with half and hour to an hour between each one. Not as much sleep as I'd like, hence the tiredness, I think.

But I fully intend to get ready in an hour and go to the specialist. This will involve two buses and a walk up a hill.

I had dreams last night but can't remember them now.

Yesterday I bought a wrist brace. I've been having pain in the wrist for a few days now, unable to do simple things like open a door handle without pain. In fact the whole arm is sore and I had a very sore shoulder a few days ago. It's still sore but not as bad. I also always have upper back and neck problems these days.

I'm afraid the arm pain is a repetitive strain injury from the vast amount of typing I have done in my life, and still do. I've been on computers since 1982, when I had my first job using what was called then a 'video display unit' (VDU). Between then and now, many of my jobs have involved high speed typing and computer operations. On top of this, I have been involved for decades in creative activities using computers. It wouldn't be at all surprising if this was a repetitive strain injury.

That would be a real bummer if that's the culprit because it will hamper or rule out the possibility of making videos. That would be tragic for me at this point. I do it all the time and it's a main source of meaning in my existence.

I'm typing these words as my eyes droop and I want to fall asleep at my desk.

Not the best start to the day really. Hoping it improves from here.

Hope @everyone has some good stuff happen today.

In response to: Re: A long rave

Re: A long rave

@Mazarita Dear Mazarita I am so sorry that you have these problems to deal with. What a day for you ... not ony going to see the specialist but the journey there will be very taxing on you... I wish I was there to drive you there and back. I will be sitting there with you and will be anxious to hear what the specialist says.

Try not to worry about what is happening with your arm until you know for sure. Try and stay positive in fact gp sends lots of love and positive wishes to Mazarita. Good luck and again will be anxious to hear what occurs.

gp xx

In response to: Re: A long rave

Re: A long rave

Thanks for your lovely, kind words, @Bunniekins. I'm just going to wear the wrist brace for some days and see how it goes. Won't bother my GP about another physical issue with me unless it's not going away.

Thank you too for your wish to drive me there and back to the specialist. In fact, despite my tiredness, I like my bus journeys and difficult walks as they keep me moving and out in the social world instead of at home or inside that extension of the home, the car. Also, I'm phobic about being in cars, lol. The speed of society just frazzles me for the most part.

Please don't be anxious for me, though it's so sweet of you to care. I don't like to think my posts make anyone anxious. It's just me this morning, having a bit of a 'long whinge', lol.

Hope there are some wonderful things in store for you today.

In response to: Re: A long rave

Re: A long rave

@Mazarita

In response to: A long rave

Re: A long rave

Good morning @Mazarita @Former-Member and everyone else here today. I hope your days are off to a good start.

@Former-Member I just read your post from yesterday about isolation and difficulty getting out. I hear you loud and clear. For the last year since relocation interstate I don't go anywhere outside my letterbox alone. i.e. walking, public transport and taxis, and driving my little car aren't doable for me. @Mazarita That idea about having the support worker wait in a cafe might help. I'd have to just walk a short distance at first, where they could still see me, but I'll give it a try. When bro or sil take me to the supermarket I can go around by myself if I know they are there somewhere and we both have out phones. And I've been for 2 short drives recently.

@Former-Member It's a support worker from PHaMs not a social worker.

In response to: Re: A long rave

Re: A long rave

hello @Mazarita @Bunniekins @eth

that is quite a trek....are you able to leave earlier and have a halfway stop at a cafe or something...add some self-care in there as we have to keep reminding ourselves to do....

if your wrist is hurting opening a door I would tell the doctor....I am renowned for letting aches pains linger ...dismissing them as minor...later being told by physiotherapists that takes that much longer to get back to healthy..

I do hope that you can do something nice for yourself today....buy an icecream as you are walking..of course if you are like me you will end up wearing most of it and smelling of icecream when you arrive for your appointment..

take care

In response to: Re: A long rave

Re: A long rave

Hello @eth

long time no chat...

nice for me to be back...

what does phams stand for?

I am going to look into if there are any walking groups in my area and try that if the day fits..

I think whoever made the suggestion of going off on your own for a short stroll...that is a great idea...you know that you have that safety net there...

in fact I do remember driving down to our little town and parking away from main street...I then walked around for a while observing the different shops...went in some of the antique shops and we have a very alternative...interesting shop that sells some clothing...handbags...books...children education toys..I love it...have spent far too much money in there...have bought some lovely gifts in there too..

where I was going with this...as usually babble babble babble..I lost the anxiety and thought ..gosh I really do love this little town...it felt different.. did that a few times..

have not done it since.. other than to go to the chemist...supermarket...fruit and vegetable market...doctor..library...

so will have to put that into practice again once the heat has disappeared...

perhaps if you found a shop that you like...you might feel enticed to visit again..

good luck with it as I know how extremely difficult it is...unless a person has been through this themselves..they cannot possibly know what it feels like...

In response to: Re: A long rave

Re: A long rave

Hi @eth, good to see you.

I think taking matters into your own hands with support worker (and maybe also with bro and sil) seems like an idea; beginning your own gradual 'exposure therapy' with walking around places solo, them there as supports. Perhaps you could do that for a part of your time with the support worker every week, gradually increasing how far you can go without her. This kind of approach has worked for me with getting out of my totally holed up state some years ago. Doesn't need to be a fast process, baby steps can do it. But at least that way there would be some hope of overcoming this obstacle, at least to some extent, since there isn't specific support for that available to you at this time, other than what you might be able to create yourself. It's great that you can already wander around the supermarket without bro and sil, as long as they are there and contactable. Great too that you are doing the occasional driving practise. Hope the rest of the day treats you well.

Hi @Former-Member, it's lovely that are around a bit more at present.

I didn't get your message until I got back from the medical appointment, but they are great ideas (especially the one about walking in smelling of icecream, hehe). Thanks too for the encouragement about getting my wrist and arm seen to as soon as possible. I may do it some time next week as I have to go in for a blood test anyway. Meantime I'll wear my funky black wrist brace night and day and see what happens. I think walking groups sound like a good idea, hope the timing works on that if there are some. It's true that it's hard to understand for most people how we can want to stay inside all the time. Great that we can share our struggles with each other on that, with first hand experience.

I'll end this message here but I've had a very frustrating day really and may post a 'long rant' about it before too long. Grrrr to today's medical appointment.

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