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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

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In response to: A long rave

Re: A long rave

I’ve seen better days @eth but am ok. Just trying to pull myself together a bit today. I’m afraid I haven’t done anything much for a while. Your trips sounded so lovely that it made me think how much I missed those kinds of days just exploring new places.

My s3 has just moved 5 mins from me so my kids are all close for a while. It won’t be long before they are all off in different places again..... although s2 is just starting his PhD so he’ll be around for a few years. I really haven’t done much in the last few months I’m afraid.

Its been lovely to catch up with what you are doing though 😄🤗💜

In response to: Re: A long rave

Re: A long rave

Hoping today is one of the better ones for you @Teej. Having your kids all close sounds like something good for you - hope it is.

I went looking for you a week or so ago and it seemed you'd left the forums so I'm glad to see you today.

I don't do much most days either. I have a PHaMs worker these days but only enough time to get to essential appointments until now. This week will be the first time in 6 months that I have a session with them that's free time so far. Not sure what to do.

Do you still have a support worker?

In response to: Re: A long rave

Re: A long rave

Glad to hear the air is clearing @Faith-and-Hope. How are you today?

In response to: A long rave

Re: A long rave

Not bad thanks @eth ......

A lot going on / not going on in our life still. It’s a day-by-day thing.

In response to: Re: A long rave

Re: A long rave

I have been missing a lot on the forum in the last few months @eth but it’s been nice in the last few days to reconnect with it more.

I don’t have a support worker anymore. My last one and I clashed a bit and I let go of the program maybe 6 months ago or more. These days my mh health team is mostly on the same page and I’m feeling the most supported by community mental health since I started with them 4 years ago. I finally have a psychiatrist that I feel comfortable with. I have a cc who seems to be supportive too which has helped. I’m also attending the psychosocial programs run through community mental health. Last year I did a healthy choices group which was walking and cooking healthy meals that I liked and a light hearted group looking at current affairs and a group helping to work towards volunteering. They were really good for me. It’s all stopped until February but I have my appointment tomorrow to look at what groups I can join for the next program.

I had checked in every now and then on your NDIS thread. I’m so sorry that has been a shambles and so very stressful for you.

I hope you find something nice to do with your worker tomorrow.💜🤗

In response to: Re: A long rave

Re: A long rave

That all sounds really positive @Teej. I'm still not independently mobile and that stops me from doing all sorts of things. All the groups you mentioned sound great. What is a 'cc'? How did you access the community mental health programs? I'd love to hear about that process in case I'm eligible. Since I came to NSW I was told community mental health only gets involved if you have a crisis involving hospitalization. Are you in NSW too?

Thanks for your comment re the NDIS issues.

Just catching up on my washing at the moment but will be right back. I don't join other threads at the moment unless I get tagged.

So good to see you.

In response to: Re: A long rave

Re: A long rave

I’m in S.A. @eth and I think you are right in that you have to be hospitalised to be part of community mental health but also that you don’t have any private clinicians. The psychosocial programs were, until the last year I think, available to everyone here but now you need to be part of cmh to access them. I ended up having 9 hospital visits last year with 7 short stay admissions which I guess is why the support. My cc is a care coordinator. She is a social worker who works with me on a needs basis. She coordinates programs and my care within cmh. She will attend my Centrelink appointment next week and attends my psychiatrist appointments. That’s pretty much the only face to face contact I have with her. Apart from that she will check in by phone to see how I am when I’m struggling and is my access point if I need support.

Im not sure if @Mazarita attended/s some programs through community programs that aren’t linked to cmh. It’s been a while Maz since I’ve caught up to know what programs you have been doing. Hiya 👋 @Mazarita too.

thanks for the chat @eth. I’m off to have a shower and get going. Hopefully I’ll catch up again soon. 💜🤗

In response to: Re: A long rave

Re: A long rave

I'm so glad to hear you have that support @Teej. Looking forward to catching up with you again soon.

In response to: Re: A long rave

Re: A long rave

Hi @eth, @Faith-and-Hope, @Teej and all,

Eth, it's so great to read about your daytrips, and also a relief to know you aren't close to the bushfire.

Faith, good to read too that the smoke seems to be clearing. Hugs for the ongoing troubles at home.

Teej, so nice to get a tag from you. Great to hear you have the various supports in place, despite letting your support worker go. I too finished with my Phams support worker about 6 months ago and just had occasional phone calls since then. Now due to 'graduate' formally from the program towards the end of this month. Apparently I'm still eligible to attend their programs and events after I do that, so may explore that a bit further this year. Sending sisterly virtual hugs your way, Teej.

Regarding other psychosocial supports, I go to a local community mental health centre for activities like art and laughter yoga, and have previously done other short-term courses there, on craft and basic cooking. Also used to attend a bipolar support group but I found the facilitator really aggravating, so stopped that. It's open to anyone who is willing to sign up there. Not sure if that will change now that they are also an NDIS provider.

Perhaps there is some community centre like that where you are, @eth. I find the activities run by that place very helpful and they help add structure to my life.

In response to: A long rave

Re: A long rave

@Mazarita hey 😊thanks for your post on my thread commenting on me leaving the house today..im pretty proud of myself and really glad im making my appts today @eth @Teej hi there can someone point me towards the ndis thread you have mentioned..im in the process of applying atm and i have my case worker helping me but even so am finding it overwhelming..would be great to see how others are finding it...thanks
catgirl🐾
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