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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

So good that you are engaged with general community groups too, @eth. For me that would be step forward really. I feel safer in a mental health centre because I feel myself to be odd in general company. Unless it's something close to my heart like being part of a listening and accepting audience at a poetry event. I fit in better there and I'm familiar with events like that and have had more rewarding experiences socialising with creatives. But things can still get a bit paranoid for me in all kinds of social spaces nonetheless.

In response to: Re: A long rave

Re: A long rave

I hear you @Mazarita. I feel odd in general company too. Social phobia kicks in after so long isolating. I understand the paranoia too - you're describing me. I get really emotional easily and this is challenging to say the least when in public.

I had a woman from Ability Links come to the Sheilas in the Shed session with me. I would do more with her but have to organise my own transport and meet her there. The way phams works is freeing me more coz she picks me up and always comes in when I get home. She seems to just know some things that I'm uncomfortable about.

I will use ability links again for a couple of things I'd like to do on days phams isn't available if my bro or sil can get me there and home. e.g. the new course on wednesdays and a computer course on fridays. There is sooooo much more available here than in the top end. SIL has been an amazing advocate finding out about all this for me and ability links (which she found and got me in to) also had a mine of information re what's on. They are worth looking in to if they are in your area. They will come with you the first couple of times you try something new.

In response to: Re: A long rave

Re: A long rave

Goodnight, @eth. Hoping you are sleeping now.

In response to: Re: A long rave

Re: A long rave

Haha, posting at the same time, @eth. I thought I'd lost you for the night. I'm still up for a bit but I'll post this first and then read and respond to your post.

In response to: Re: A long rave

Re: A long rave

Lol @Mazarita I'll try not to just disappear on you without warning this time. Yesterday I was just phasing out fast. It was a strange day.

In response to: Re: A long rave

Re: A long rave

That's all good news about the community engagements, @eth. Your support worker sounds fantastic. I love mine too. When we talked about the possibility of me 'graduating' from the program recently, she was sad at the prospect of us not getting together after that. Me too. I would be friends with her, for sure, but it's taboo to the Phams contract. Mostly I just appreciate the time we are having now.

In response to: Re: A long rave

Re: A long rave

I already feel that way about mine too @Mazarita. We have a much more open connection than I do with the ability links woman.

Do you feel anxious about graduating from the program?

In response to: Re: A long rave

Re: A long rave

@eth, it was inadvertently at my own instigation. But now we've talked about it, she told me I could continue with Phams probably until the middle of next year. We also discussed finishing around the end of the year. I would like to be doing things more on my own steam for a while. Relates to that 'just being' thing we were talking about earlier. But it's good to know nothing is set in concrete and we can continue for a while if need be.

In response to: Re: A long rave

Re: A long rave

That's great @Mazarita The organization mine is through has funding til the middle of next year that I can be under, but they're also helping people roll over to NDIS funding as and when they can in readiness for that. Reading between the lines their funding has already been reduced.

I'm glad to hear you feel ready to do things on your own steam. That's a wonderful step forward for you. I guess there is only so much intervention you want before you crave privacy and independence if it's possible. I've had no supports at all for so many years that I'm just relieved it's happening for me at this stage.

In response to: Re: A long rave

Re: A long rave

@eth, it's fabulous that you have that support and it's obviously helping so much already. It's the same with the organisation providing Phams to me, I have been offered help from them to apply for NDIS. But I am leaning towards not applying for NDIS at this stage. I am hoping I may be access it later if I need it. Still haven't made the final decision on that until I talk to my psychiatrist about it. It's a big decision in my mind because I'm trying not to forget the vagaries of the future too.

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