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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @Former-Member 👋 just saying. Hello. 😸

In response to: A long rave

Re: A long rave

Thanks for the mention @eth especially when you are a noob trying to for your way x

In response to: A long rave

Re: A long rave

Hi @eth

Wonderful that you were able to go in person to a disability alliance conference, and one that went all day! Interested to hear some of what was said about peer mentoring. I accidentally missed the SANE recovery meetup last night. I may remember to read the transcript when that goes online.

Meeting with support/advocate on Monday went well and she helped calm some of my anxiety. She will be there next week with me while we are on the phone with the NDIS person. I already know the name of the person who will interview me. The list of interview questions you spent time looking for recently have been especially helpful. Thank you!

Also emailed and spoke with two possible support co-ordinators, one I will probably offer it to when/if funding for that comes through. Independent support co-ordinator with huge experience, clearly a desire to help and totally got what I said about feeling highly achieved in one area of my life but so much difficulty in a chronic way with the basics of day to day living away from the screens. She also recommended a plan manager, who I will go with if there is the funding.

Sleep is more disturbed again since I started the new anti-depressant, even on the half dose I'm taking. I am feeling a bit better mood-wise for it, not hugely, but am reluctant to go higher. At this point, I'm also reluctant to change medications again at all for a while.

I have a feeling it may be anti-depressants in general that have been excacerbating the sleep disorders over these decades. But it's obvious from coming off the last one altogether last year for a few months, that I do need anti-depressants to some extent. I'm looking for some balance and stability where they are working enough for me to tolerate myself and take no more than that so as to minimise the bad side effects.

Been up most of the night, sun has newly risen. Hope your day is wonderful.

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita just a quickie. I have a thing starting at 8 but should be done by 10. Will check back here then. Otherwise take care and have a nice day. My adult child got approved for NDIS!!! Woohoo!!! Their life will become easier at last.

In response to: Re: A long rave

Re: A long rave

@eth great to hear about your adult child! Have barely slept all night and so I am likely to be sleeping when you finish. I will check later today to see if you are still around. Enjoy your 8am event and the rest of the day as well.

In response to: Re: A long rave

Re: A long rave

Hi @eth here if you happen to be around for a chat. ox

In response to: A long rave

Re: A long rave

Nice to "meet you" @eth

Hope you have had a great day.

All the best.

In response to: A long rave

Re: A long rave

I'm glad that the haircut has worked out well for you @Mazarita in multiple ways, sounds like you are getting a good routine going

All the best, and sorry I have been away.

In response to: A long rave

Re: A long rave

Thank you @Appleblossom I hope you have had a good day!

All the best.

In response to: Re: A long rave

Re: A long rave

I had a lovely day. It was a little warm but not too hot.

cheers @Former-Member

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