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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Yeah I'm a bit like that too @Mazarita but am able to remind myself because I have been doing very mundane journalling over my day every day since March last year. But often when I'm out e.g. with bro and sil, they'll ask me what I've been doing and I can't remember much at all. Despite being quite busy most of the time! But once again this week one of my supports has become unwell so no support to go out since Thursday and until Tuesday. It's frustrating but I don't want to hire one more sw until after the writing gig finishes. It takes at least a couple of weeks to advertise a job on Hireup and then screen all the applicants and bring it down to a few meet 'n' greets then a couple of buddy shifts before I decide on someone. But it's much better for me than going thru' a major organisation that only gives you someone at times that fit their roster. This way the sw's choose their own availability and I choose when I want someone.

I do have one more poem I want to type up but can be here for about 1/2 an hour. What do you have on today? Or is it a rest day?

In response to: Re: A long rave

Re: A long rave

Perhaps you could say you become OCD and accelerated and elevated when working on new projects @Mazarita . But you could also say you sometimes need more time to yourself and at other times need to get out (with support) in the community for inspiration. And you could also say the impact it can have on your sleep, which then impacts on your bipolar hypomania.

In response to: Re: A long rave

Re: A long rave

@eth I am currently exploring NDIS support co-ordination and have a few recommendations of possible from my old Phams support worker (hopefully my NDIS support worker soon too). I am hoping for someone independent and not part of an organisation, but only one out of the three people she has recommended are fully independent. Still a fair bit of time to do some more research about this before the actual support for me starts to happen.

I am excited for you about the writing retreat!

In response to: Re: A long rave

Re: A long rave

@Mazarita I totes support having an independent operator as your CoS. Mine is fabulous, but only works in this area. Does your friend have one? Are they happy with them? Mine was recommended to me by 3 different people so I decided to ask him and have been very impressed by his efficiency and thoroughness. I far cry from the one I had from Flourish who was allocated to me at the start of my plan. I didn't know I had the right to choose one for myself. I'm pretty sure somewhere on the NDIS website is a document listing service providers area by area. Sorry don't have time to find it for you.

Yes now that we've confirmed which days we can do - Tues and Fri - we are getting excited too. Still don't know which week it will start but sometime in April and then for 4 weeks. I really want to put the NDIS stuff to bed for that time and immerse myself in the lifestyle of a writer for that month (as my CoS worded it).

In response to: Re: A long rave

Re: A long rave

@eth I have really slowed down and relaxed a lot more into the NDIS process at this point. I believe whatever people I find at this start of my journey with NDIS will be helpful to some extent even if not to the max. The way I access support can be changed as I go along. Pre-planning meeting is on 17 March. I have actually been looking for support co-ordinators for my friend too. After thinking about it all, she has decided to go with the organisation who applied and succeeded in getting her the NDIS.

Yay for being immersed in the writers life!

In response to: Re: A long rave

Re: A long rave

That's so true and a good attitude @Mazarita

Speaking of the writers' life, I need to go now. Lovely to catch you briefly xoxo

In response to: Re: A long rave

Re: A long rave

@eth you too. Enjoy your slice of immersion in the writers life today.

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita and anyone else reading this today. I'll be around for a bit if anyone feels like a chat.

@Shaz51 @Appleblossom @Emelia8 @Adge @Bunniekins @frog @Judi9877 @Maggie @CheerBear @Faith-and-Hope @Meowmy @Zoe7 @TAB @Exoplanet @outlander @Angels333 @MDT thanks for recent mentions to those of you who have. I do feel somewhat disconnected from the forums these days and it's always nice to see what's been happening for others and support when possible.

In response to: Re: A long rave

Re: A long rave

sorry, am anything but chatty today @eth , have a look around maybe ?

In response to: Re: A long rave

Re: A long rave

@eth hey there, hope you have a good afternoon. Take care.

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