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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Mazarita Hey Mazzy! Big support button presses!!! you remembered pea :).So sad to hear that life has been though for you my dear friend. I know those years where you spend 99% of it inside on the bed ..... it is really tough. I am happy though that you have made it to your friend's once a week and to some events those are good things. Hopefully you can build upon them with other good things :)..

I am so tired now I am going back to bed. I will talk later. Again great seeing you beautiful Mazzy. Love peaxxx

In response to: Re: A long rave

Re: A long rave

I hope NDIS comes through for you @Mazarita ..... 🤞💞

In response to: Re: A long rave

Re: A long rave

Hi all,

@outlander really glad you were online last night, appreciated the chat. Your last question at the end of the night about inspiration: I read a lot of other people's writing on the internet and approach the writers about letting me make little videos from their words. I've been making these videos now for going on 7 years so I already know a lot of these writers online. Similar with musicians and other artists. So essentially I get the inspiration from other people's original work and then find my own new way to put together the words, music, voice and images, creating new original work. Mostly my films are in the editing after spending heaps of time trying to find the different elements that work together well. It's a good way of making films when I am so housebound.

@Bunniekins how could I forget you?!! The pea is unique and a special forum friend. Thanks for the inspirational words. Yes, building on the small is where I am at now. It's a bastard that I keep going back to zero and need to start again but that's the way it is for me. Acceptance of the up and down cycles seems to be the key but is not easy. Hopefully on each go-round I get better at making the most of it. Hoping you and loved ones are going well.

@Faith-and-Hope thanks for the good wishes on the NDIS!

@eth I know you are on a weekend break. Hoping to back here sometimes during the week to catch up if possible. Hope your weekend break was great.

Well wishes everyone.

In response to: Re: A long rave

Re: A long rave

Well wishes to you too @Mazarita

Its good seeing you around again

Emelia 😊💖

In response to: Re: A long rave

Re: A long rave

Hi @Emelia8 and @frog: thanks for the friendly tags over the last day or so. Happy to receive friendly vibes on my return here after some time away. May today be one of the better ones for you both.

Hi @eth: not sure if you are yet back from your weekend away. Hoping to meet up for a chat if possible when you are online here again. If synchronicity doesn't naturally bring us online at the same time, perhaps you could leave a message for me here if there is a day and time that suits you. I am not receiving email notifications, but will see tagged messages when I log on again. ox

In response to: Re: A long rave

Re: A long rave

Hi and good wishes to all here @frog @Emelia8 @Faith-and-Hope @Zoe7 @Bunniekins @outlander @TAB @Adge @Anastasia @Exoplanet @Shaz51 and of course our dear, dear @Mazarita . Thanks to those who expressed support for me after my panic attacks. Hope all are having one of the better days today.

@Mazarita so wonderful to see you. Sorry to hear you've been having some rough times both physically and mentally, but nice to hear you're still close and visiting with your good friend. Are you still sharing your flat with the same person? By the way AB is now known as @Former-Member if you want to connect with her sometime. I've been around less and less since I moved into my public housing flat and ceased being a community guide. Not for any particular reason but I do have my fingers in a few more pies than when we last connected. It's hard to believe it's been 2 years of rarely seeing you. I'd love to catch up in real time so will send this through now and hope you see it. Otherwise perhaps around 9 tomorrow morning if it's not too early at your end (8 your time). But I'll be online for a bit doing some admin things so will look out for you then if I miss you now. Will be around for a while now catching up with notifications.

Great to hear you are having a go at getting NDIS funding. And hoping it's not as much of a battle for you as it was for me. And that you have some support to help you apply. Feel free to ask questions about it if you want to. My life has been greatly enhanced by having it but I wouldn't wish that battle I had on anyone. Any way I can help I'm happy to.

In response to: Re: A long rave

Re: A long rave

thanks for the tag @eth bit tied up atm but will read more fully later

In response to: Re: A long rave

Re: A long rave

Hello @Mazarita ❤❤❤❤

@eth xoxox

In response to: Re: A long rave

Re: A long rave

👋💕 @eth ..... was sorry to read of the panic attacks. Following along loosely ..... much going on here. Good to see you, and have updates.

In response to: Re: A long rave

Re: A long rave

Hi and good morning all here.

@Mazarita I'm here now if you are. Look forward to catching up with you - very much!

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