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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Dropping in to say hi to all the people who've tagged me since Saturday - I'll check out your posts shortly. @Owlunar @BPDSurvivor @Adge @Maggie @MDT @Judi9877 @Bunniekins @TAB @Shaz51 @Anastasia @frog @Angels333 @Former-Member @Abeer @Exoplanet thanks for keeping in touch.

A big hello also to @Mazarita @Emelia8 @Zoe7 @Faith-and-Hope @CheerBear @Appleblossom @outlander and others who may be reading here.

The way my life is atm I'm missing keeping in touch more with what's going on for you all, but at the same time I'm enjoying being more involved with the disability alliance here and the writing groups I'm in and poetry zooms I join. Also spending long hours checking out housing options and resources and have started going out with my support workers again. The highlight for this week has been finding a tai chi group that meets at a local park on Sunday mornings and is free. Will be doing that fortnightly at least when my support worker is available, and plan to take another step towards being able to walk alone in my local neighbourhood by having the sw nearby on the phone while I walk. I've also had 2 ap'ts with my psychologist Fri and Mon and am finding her approach a very good fit. Looking into doing some group work as well as the individual sessions and organised a referral for that today with my gp.

Hope all are having a peaceful day today and finding the support you want from each other and offline. take care and stay kind. Will go now and catch up a bit around the forums. xoxo to all

In response to: Re: A long rave

Re: A long rave

perhaps not being on here means progress in your life @eth Nothing wrong with being busy/engaged in real life, if I was, would never have come here lol just saying

In response to: Re: A long rave

Re: A long rave

@eth sending love you sound very busy atm

In response to: Re: A long rave

Re: A long rave

hello and hugs @eth

had my blood tests done last week

saw the dietician today

and I see the specialist on thursday , the dietician has sent me the results of my blood tests today

notice a few a bit high , ohhhhh , have to wait until thursday

In response to: Re: A long rave

Re: A long rave

@eth Hey eth you have been in my thoughts alot over the past 2 weeks as you have been 'happy' busy which is fab. May it continue. I go for a walk by myself on Mondays and it feels weird at first but have gotten used to it now. The sense of freedom of being alone I even walked into a secluded park by myself it was daring of me lol but I was careful to not put myself in danger. I am really happy that you are enjoying life so much. Love peaxxx

In response to: Re: A long rave

Re: A long rave

Hey @TAB @outlander @Shaz51 nice to see you all. You too @Bunniekins - we posted at the same time I think.

Shaz I hope your dietician and specialist can help you with treatment to get on top of your blood results.

Gp you're much braver than I am.

xoxo to all of you.

In response to: Re: A long rave

Re: A long rave

nice to see you here too @eth

In response to: Re: A long rave

Re: A long rave

Hi again @eth just about to go for chest CT scan been coughing for months, had xray was clear, went down side effects path with meds, had multiple covid tests All very I want to stay home, yet have lots of work in front of me eek

In response to: Re: A long rave

Re: A long rave

@eth, The dietician was happy with what i am doing , just to change a couple of things in my daily diet xxxx

sitting with you my friend

In response to: Re: A long rave

Re: A long rave

@outlander hope your health is improving by now. Think of you often xx

@Shaz51 here with you too my friend. Just catching up from all my notifications since Sat at the same time so sorry if there's a delay in replying to you.

@TAB hope all your test results are clear and that work goes ok for you.

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