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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Great start on the bike my @eth

Are you in hospital now my @Adge

After my fall on Sunday still recovering

Today I put our tax in ans am applying for the carers allowance as I don't think I will get the carers payment

In response to: Re: A long rave

Re: A long rave

Hey @Shaz51 With what I know about your situation caring for your mum as well as your husband it seems to me you should be eligible for the carers pension, not just the allowance. When I was in a carer role what my Dr did was fill out both applications for me and we put them both in so c'link had enough evidence and had to make the decision which to grant themselves. Worth a shot I reckon. Best of luck with it. I think the main criteria is about how many hours a week/day you are actively caring for one of them. And what level of care they need. Good on you for getting your tax sorted. I hadn't heard about your fall so I hope you recover swiftly.

In response to: Re: A long rave

Re: A long rave

Hope I can get the carers pension @eth , filling in the form and go from there

Yes had a fall on the wet grass, nothing broken but ache all over xx

In response to: Re: A long rave

Re: A long rave

I went flat on my back @eth xx

In response to: Re: A long rave

Re: A long rave

Any tips with the carers pension @eth xxxxx

In response to: A long rave

Re: A long rave

Oh @eth I thought you were in Victoria - sorry Hon - got that mixed up along the lines.

I am not in Victoria either - safe and secure in Tassie where we have been able to isolate and keep it to a couple of small regions before eliminating altogether.

It is about 4 degrees here tonight though and the power has just gone out. There have been storms around so it seems one of those has knocked out our power - going to be a cold night.

In response to: Re: A long rave

Re: A long rave

Out I my sister @Zoe7 brrrrrrrrrr xx

In response to: Re: A long rave

Re: A long rave

Hi @Shaz51 that fall sounds rough. Hope the aches subside soon. Take care of yourself friend.

Oh @Adge that sounds hard being in hospital for the op, especially conflicting information. No wonder you feel overwhelmed. Wishing you some clarity around that, and thinking of you.

In response to: Re: A long rave

Re: A long rave

Thank you my @frog lucky nothing Is broken my friend xxxxx

I am applying for the carers pension for my mum xx

In response to: A long rave

Re: A long rave

Thanks @eth @Shaz51 @frog @Everyone

No I'm not in hospital yet (for Surgery).

That is very early tomorrow (Wednesday 5th August) morning - before 6.00am, I have to get up at 4.00am

This was all the Pre-Op Medical Assessment procedures ( 3 & 1/2 hours at the hospital) - that put major obstacles in my path.

Ordering me to go get extra Pathology tests (myself) at extremely short-notice, nurse wanting to postpone everything etc etc.

Telling me that I must have a family member (close associate) to take me home - or they won't let me go home (after Surgery) etc etc.

I will order a Taxi to take me home (& my neighbour may check on me at home), that's all I have - that was not enough for the Admin person.

So much ambiguity & contradictions - Yes you will go home (not stay in hospital) says the Surgeon's Office (Secretary) & the Anaesthetist Doctor.

No you won't go home says the Admin person/ Nurse - We will have to keep you here.

This is all before I've even gone in (been Admitted to hospital) to have the Surgery.

So I have no way of knowing whether to pack an overnight Bag (or not).

Thanks everyone.

Adge

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