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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: anRe: A long rave

Good morning and thanks for your responses @Zoe7 @MDT @Blep @Bunniekins @Dadcaringalone @Bimby2 and hi to you too @Adge and anyone else passing by here today. Always love the cartoons and memes you share.

@Blep I hardly ever go into shops still - my bro goes in or else I get delivery. What my sil did was write on her mask "not infectious just cautious" and she found that changed people's apparent responses. Frankly you shouldn't need to in these times, but some people are just d1cks!

@Bunniekins I got medical support letters saying I need to be in a low density and quiet location and also was able to ask for an over 55s situation. Would love to hear how things are going for you. It's been ages since we caught up.

@Dadcaringalone Hearing you and agreeing about focussing on the little things - in some ways, but also having to let conflict slide sometimes with the people who are in our 'bubble'. It's been 4 months here with the same other 3 people - bound to be challenging at times being in each other's pockets so much.

The writing groups were excellent. Quite different from each other - one is kinda serious (12 people, with the writers centre) and the other is more laid back (only 5 last night and all ppl who identify as having a disability), and the convenors very different - the serious group she makes sure everyone gets a chance to share with equal time, whereas the laid back one the woman really does most of the sharing herself and is driving a collaborative project with another group down south - but she's pretty funny so she gets away with it. Tricky with them both on the same night but it went ok. I was only 15 minutes late for the 2nd one and got to hear the guest reading a few poems by what he called 'confessional poets' - writers who have depression or other mental health challenges who write about their experiences ... the name seems to suit a lot of my stuff too so it gave me plenty to think about.

I have the womens group of the disability alliance this morning, also via zoom. Being able to see people in real time is very good for my mental health at the moment. Helps to not feel so isolated.

Also planning to cook for the clan tonight and then have another zoom with the mental health group from the disability alliance.

What felt like an empty couple of days has turned out to be quite busy.

Looking forward to hearing more about what's going on for you folk too. And having time to get around the forums more.


Take care and stay kind everyone xoxo

In response to: Re: anRe: A long rave

Re: anRe: A long rave

@Bunniekins How's things? Long time no speak. It's been a pretty crazy time for us. Much better for my son than myself. My daughter is going really well! Still living with her boyfriend and she just found out she got her contract extended which I'm happy for her in terms of her financial independence and also that means I don't need to financially support her until the end of the year. Love to hear from you when you are free

In response to: Re: anRe: A long rave

Re: anRe: A long rave

@eth Hey eth it is good that you will be housed in that kind of situation. Should work really well for you :). It is very exciting. I have been having problems with headaches and amnesia. Got hospitalised a week ago and am in the process of having tests done. Nothing concrete atm just waiting really. Just all very strange. Other than that everything has been going along fine. Have decided to put my studies on hold though until next semester to find out what is going on and to look at tremor in hand/arm as is getting worse. If it is not one thing it is another aye. pea

In response to: A long rave

Re: anRe: A long rave

Good luck with your new writers' group @eth 📝🤔🤓

In response to: Re: anRe: A long rave

Re: anRe: A long rave

Hi and good evening @Former-Member @Zoe7 @Hamsolo01 @Blep @greenpea @Dadcaringalone @Bimby2 @Adge @outlander @Maggie @TAB @WriterMelb @Judi9877 @NatureLover @Appleblossom and anyone else passing by. Hope you're being gentle with yourselves and finding some small ways to self-care in difficult times.

@Bunniekins that's a worry about the headaches and tremors. I hope you are able to find solutions and relief soon. I had full on tremors for about 3 years but when I came here and started with a new psychiatrist she immediately took me off one long-term med, replaced it with another, and I've rarely had the tremors since that time. Such a blessed relief as it got to the point where I couldn't even enter my pin on an eftpos terminal. Wishing the same for you. Take care my friend.

The writing groups were really good. Positive feedback about poems I shared, and between the 2 groups altogether about a dozen new faces to connect with. Need to do some follow-up turning hand written pieces into computer files and sharing them - might get onto that tomorrow.

Support worker cancelled again today. Her 3rd cold in a few months. And 3rd time getting tested for covid 19. Luckily all clear again, but best she doesn't come near me with her symptoms. Really hoping tomorrow morning's support doesn't cancel (that would be 3 out of 3 this week) as I have to go to the podiatrist. Will be my 2nd face to face health appointment in 4 months. For me telehealth with my GP, psychologist and psychiatrist has worked well. One just rings me and the other 2 do facetime.

Should be at the The Weekly Friday Feast tonight if anyone wants to catch me.

Take care all xoxo

In response to: Re: anRe: A long rave

Re: anRe: A long rave

good to see you @eth i havent read much today because i had a procedure and not really able to focus properly yet but its good to see you still

In response to: Re: anRe: A long rave

Re: anRe: A long rave

@outlander I really hope whatever it was today went smoothly and you recover swiftly. I take it you're still feeling the anaesthetic. Drink plenty of water. May see you later if you're feeling better. xoxo

In response to: Re: anRe: A long rave

Re: anRe: A long rave

thanks @eth have just updated my thread (about 1-2 pages from the back if your interested..)
yeah still feel the anaesthetic so struggling to focus and concentrate much only in small amounts at a time. feeling okish atm otherwise though

In response to: Re: anRe: A long rave

Re: anRe: A long rave

@eth Your writing groups sound really good.

At last some headway with housing. I think you said there are long waiting lists, if my memory is correct. So it could be a while before you hear anything.

I hope your meal tonight goes well, though you are a good cook, so no worries. It would be , if I was in the kitchen. 🥴🥴

Take care. Always good to hear how you are going. 💕💕

In response to: Re: anRe: A long rave

Re: anRe: A long rave

@eth tag didn't work Hon but was coming looking for you and found your post ...must have been meant to be I hope your support worker turns up tomorrow and great news about the postiive feedback in response to your poems 👍💖

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