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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Sorry @Adge I seem to have upset you. I am doing my best here so please forgive me if I stuff up occasionally. As you know, I also have major mh challenges to manage at this time, whilst being as supportive as I can be here on the forums. Everything I've said was with good intentions.

In response to: A long rave

Re: A long rave

I would like a job where I could work from home, not sure what that is tho, I work in mines, doing maintenance, the mine is where it is @Adge

In response to: Re: A long rave

Re: A long rave

Hey @Adge I'm not sure who you work for (don't tell me) but I know Hireup is introducing an emergency relief fund for casual support workers who lose their income in these times. I believe other sw providing organisations are doing something similar. I really hope you can qualify for it.

In response to: Re: A long rave

Re: A long rave

Good morning all @CheerBear @Maggie @Sherry @BlueBay @Mazarita @TAB @Angels333 @Zoe7 @Shaz51 @Adge @Exoplanet @Hamsolo01 @greenpea @Appleblossom @Faith-and-Hope @frog @Teej @outlander @Sans911 @Snowie @Bimby2 @Queenie @saturnzoon @oceangirl @utopia @Eden1919 @Gazza75 @octavia @Scarecrowe @WriterMelb @Silenus @Meowmy @Aeiou @Sophia1 @Sofia @Valentine @musicfanatic_x @Jaz5 @nashy @s-jay @eudemonism @Everan @Ant7 @jamesle2015 @JosRapp @Molliex @BlueBay @BabyDragon @The-red-centaur @TheVorticon @Eminabud1 @chibam @Colin @Dizzyizzy @Wolfie74 @Jaye @Pippi29 @JosRapp @Bast @Dani1981 @Millieme @Knick @Anonusername @Scout1 @Avi @Nutella1 @Mex @MaddieCat @Jacques @Former-Member @cutiepiekitty @mvdi @Define_normal and anyone else who is new to the forums or who I've missed (sorry if that's happened). A big welcome to those who are new.

FYI I have bipolar 1 and complex PTSD so if anyone wants to talk about those just @eth tag me. Or if you want to talk about anything else!

My hope for today is that people will have a chance to walk outside in bare feet today and spend some time sitting in the sun. Very grounding for us all.

I have my last driving lesson of 10 this morning. Will be doing it with both the instructor and I wearing gloves and masks. It will feel surreal I know. First time I've been out since Wednesday afternoon and probably the last for some time. Except for getting food or meds, which might be delivered if possible.

Spoke to my psychiatrist, my dr's surgery, and my support worker provider yesterday. Psych will do a skype with me and bulk bill and fax new scripts direct to my chemist. Dr will do a phone consult and the same with scripts. Provider said support workers can do phone support and get paid for it and are also allowed to do errands and claim as usual. So that's a load off my mind. I spent quite a bit of time fretting about these things over the weekend.

Sending my warmest wishes to all and the hope that new arrangements fall into place for everyone.

Lots of love xoxo

In response to: Re: A long rave

Re: A long rave

Good morning

@eth, @Adge, @Bunniekins, @Snowie, @Former-Member, @Shaz51, @CheerBear, @Maggie, @outlander, @Sophia1, @Exoplanet, @MDT, @Jacques, @Angels333, @Zoe7, @Teej, @Appleblossom, @WriterMelb, @Valentine, @Molliex, @Sans911, @Faith-and-Hope, and I've run out of tagging steam, so good morning to all. Hope the new day brings some good moments.

@Adge, the federal government announced yesterday that workers who lose hours or their jobs will be eligible to receive the newstart/jobseeked allowance at double the normal rate. They are also talking about measures for rent relief, which I hope will be introduced very soon.

This upgraded jobseeker/newstart allowance starts on April 27, but if you apply earlier, it's possible it might be backdated. The usual waiting period will not apply, and the requirements of registering are to be simpler and easier.

There were massive queues at Centrelinks all over the country yesterday. Registering is best done online. There may be delays in being able to access the sites due to overload of users at the moment.

Not sure if this helps you at all, but thought I'd mention it in case you or others don't know about this yet.

@eth, great that there is this new development with accessing support workers and other things over the phone. I've had two telehealth consultations this week, one with my psychiatrist (in isolation due to just coming back from overseas), and with gastro specialist. Best way to do things now in many cases. Hoping that my neurology appointment on Thursday will be done that way too. I have to ring the hospital today to find out.

I've been waiting nine months for this appointment, with lots of developments in symptoms since I last saw my specialist. Also need to get head MRI results. So if he won't do the consultation on the phone, I will be in the regrettable situation of having to physically go to the hospital. Not the best places to be right now!

Your talk of bare feet just made me take off my slip ons. Not much aside from tiling in our outside areas. The beach was really too crowded when we went for a walk the other day. I can still feel memory traces of the ocean lapping at my feet.

One thing I'm finding good is going out late at night and looking at the stars. It's a lot quieter in the suburb now. Can often hear the ocean, and it's not hard to tell it from the usual traffic noise. Also a lot less air traffic, which has often been disturbing to me. We are very close to the flight zone as the aircraft come into land.

Enjoy your strange last driving lesson.

Sending special love to @Exoplanet.

New design for front doors...

In response to: Re: A long rave

Re: A long rave

Special love to you from me too @Mazarita I have to go in about 20 min but maybe we're both here atm. Looking at the stars sounds lovely. Can't really see many from here as we're near the centre of town. But I do watch the moon when I can.

In response to: Re: A long rave

Re: A long rave

Cool, @eth.

In response to: Re: A long rave

Re: A long rave

@Mazarita would you like to make a time to get together again? I'll be free from about 1.30 our time (12.30 yours). I'd love to have a chat if you do. xoxo

In response to: Re: A long rave

Re: A long rave

@eth, finding it hard to predict when I'll be awake or asleep at the moment. I've only had two to three hours sleep overnight, so will be going back to it soon. Previous night was about the same. Hoping we can cross paths in the natural flow of things for now. Thinking of you even when not here at the same time.

In response to: Re: A long rave

Re: A long rave

@Mazarita Sleep soundly xoxo

Driving lesson was just cancelled by them. Probably for the best. But I'm sure they knew before now - only 10 minutes notice. If it were the other way around and I had cancelled if it was less than 48 hrs I'd still have to pay. Oh well ... gripe over!

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