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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @eth Hope you got everything done with yiur support worker today and enjoyed water tai chi. Hugs Hon

In response to: Re: A long rave

Re: A long rave

Hi @Meowmy How are you?

Adge

In response to: Re: A long rave

Re: A long rave

@Adge Hey Adge, how are you going? I am okay. Just got home after work. Ate what I prepared for tonight. Feeling well. Hope you have a good night. See you at the feast.

In response to: A long rave

Re: A long rave

Hi @Angels333 , this is a reply to ur msg on the 25th. I am out of hospital now but in a terrible state. Don't know that il b staying out. Was in a terrible state when they discharged me, but apparently private hospitals do that coz insurance pays less afta a few weeks. I was in there just under 3 weeks.

I cant begin to tell u how torturous and frightening the symptoms r - I am very scared as to what will become of me.

In response to: A long rave

Re: A long rave

Hi @Maggie , thanks for ur shout out on the 25th. I'm in a terrible state. So frightened. Anxiety and panic thru the roof, along with some very frightening physical symptoms. They discharged me from private hospital in this state.

In response to: A long rave

Re: A long rave

Hi @eth , thanks for ur post on 26th. I wrote a list of all my symptoms and went thru with pdoc. He knew I was in a terrible state, everyone cld see it, even the other patients, but they discharged me anyway. Apparently at 3 week mark insurance pays out less to doc/hospital.. The mighty $ wins out at the expense of patient care.

In response to: Re: A long rave

Re: A long rave

Ahhh @Doglover so glad to hear from you. 💙

I'm really thinking about you today with your symptoms of panic and anxiety. It can be so frightening when MH is out of control.

You mentioned that you might have to be readmitted, what do you feel you need?

I'm really sorry that you're suffering so much. I'm sending hugs to you

((((💙💙💙))))

Love Angels333

In response to: Re: A long rave

Re: A long rave

Hi @Angels333 , thank u for ur post and kind words.

What do I need from an admission? Good question. I am petrified of being admitted bcoz it wld b the public hospital that I'm rly afraid of this time. But things r so out of control. I am in a constant state of panic, my mind is going 100 Mile an hour. I can't sleep without multiple meds and even with them im only getting a small amount, and I'm taking more of 1 than I'm supposed to just so I can get some sleep. I'm so wired that except for the bit of sleep I get, I can't even close my eyes, they just spring back open again. I hav lost balance and coordination, am shakey and rigid at the same time. I Shuffle when I walk and lose balance easily. I am losing muscle function, can't think, can't remember things, can't take anything in. My head is just going crazy. It's like iv drunk 100 cups of coffee. So I guess I need this situation to change, somehow. I'm not confident that it will tho and im rly petrified as to what will become of me. I'm so scared Angel. My physical and mental symptoms r so frightening.

Thank u again for ur care.

DL

In response to: Re: A long rave

Re: A long rave

@Doglover I’m sorry to read that your going through so much without, what sounds like, proper care. Unfortunately the mighty $$ speaks for all, lacking compassion. I wish there was at least one thing I could say to help ease your pain, but I know that’s not possible. Sending warm thoughts @Doglover hoping the right care is given to you. 💕💜💕💜💕

In response to: Re: A long rave

Re: A long rave

Hi @Doglover sorry I posted on your EMDR thread before I saw your posts here. So sorry to hear how serious your symptoms still are. As you've mentioned side/undesired effects from meds previously I recommend seeing your GP to get their advice, especially regarding taking a higher dose than prescribed. I totally understand the fear you are feeling with all that's going on. I've been in several public MH units over the years and have to say they're a lot better now than they used to be. And if they keep you safe long enough to stabilize your sleep, adjust your meds and see you through the adjustment period it's a good thing. They'll also feed you of course and give you a total break from normal daily chores so you can just focus on your own needs.

I'm angry and disappointed for you that the private hospital system prioritisises money in such a way. It's f'd up. Thinking of you and holding space for you to heal in.

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