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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hey @Zoe7 sounds like you've made good progress. Shame about the saw but I'm very glad you didn't hurt yourself when it mucked up. Can you claim on tax for tools and materials that you use for school projects? You must spend a lot.

My day's been ok - spent the morning on the Saturday Soiree then had down time for a few hours - much needed after my busy last 2 weeks. Just watched a favourite soapy for a while and had a nap. Then did my bookings for the week. Had a bit of a look at some ideas for a new story but didn't feel motivated to actually write it yet. Creative writing group is on wednesday and I hadn't realized it was so soon (it's monthly). Went to the gallery to see the latest exhibition and need to write something in response to an art work again for the live reading tuesday week. Well not need exactly, but I know it will feel good if I can do it. Am back on the soiree again this afternoon. Had a rare afternoon coffee but it hasn't boosted me like I'd hoped it would. Hopefully it doesn't kick in at bed time!

In response to: Re: A long rave

Re: A long rave

You have had a busy day @eth

I am glad to hear you made it to the exhibition - the writing response will come but you have time. Certainly hope that coffee doesn't kick in at bed time - definitely do not need that Hon

I am off to clean up outside a little then have a shower - hoping that will clear out my sinuses a little - have a nasal spray also so between the two it should help.

Will check in with you later to see if that coffee has kicked in lol

In response to: A long rave

Re: A long rave

Thanks so much for ur post on the 21st @Angels333 and for ur hugs and support, I rly appreciate it. I am struggling beyond words hence why I haven't bn round much. I hav gotten so much worse since being in hospital and developed a whole range of symptoms that I didn't hav before as well as the ones I had before getting worse. It is sheer torture. I wish I cld adequately describe what I am going thru but it wld take me all day. Thanks again for ur support Angel.

In response to: A long rave

Re: A long rave

Thanks for the shout out on the 22nd Eth. Unfortunately things aren't improving, they have got so much worse. Too much to tell. Symptoms r torture. In hospital, discharge on Tuesday even tho symptoms r out of control and I am a mess. Don't get it. Ppl don't seem to b getting the state that I am in. Iv tried explaining to treating pdoc in here but he's intent on tues discharge. Developed so many new symptoms and significant exacerbation of existing symptoms. Things r so bad I can't begin to describe. Sorry for being such a downer @eth

In response to: Re: A long rave

Re: A long rave

Hi @Doglover Thanks for the check in post when you're struggling so much. Are you going to do an outpatients group when you discharge? Really praying for you about Tuesday, I hope you are safe.

Love Angels333

In response to: Re: A long rave

Re: A long rave

@Doglover 💜💕💜💕

In response to: Re: A long rave

Re: A long rave

Hi @Doglover @Zoe7 @Maggie @Angels333 had a day off the forums yesterday for self-care reasons. I've decided to do that on a Sunday because I am here for so many hours on a Saturday with the Soiree.

@Doglover I'm sorry to hear things are so much worse for you. I suggest writing a list of all the troublesome symptoms you are having and giving it to your pdoc in there. They really need to listen and pay attention to what's going on for you, not just send you home when you are still struggling. Take care friend xx

In response to: Re: A long rave

Re: A long rave

Hi @eth I have missed a lot on the forum too Friday having the funeral and Saturday working all day and yesterday I just didn't have the energy.

I have a question, how do I subscribe to other threads so I get notifications in my email? I'm stumped it's just not working for me. I want to subscribe to the Saturday soiree but I don't know how.

Apart from that I have DBT today where I can talk positively about my SH It's been much better.

@Zoe7 @Doglover @Maggie @Shaz51 And many more, have a good week xxx

In response to: Re: A long rave

Re: A long rave

Hi @Angels333 very glad to hear your sh tendency is much better currently. Hope the funeral was ok for you.

I don't use the 'subscribe' function myself, I just have my notifications set for when I am tagged as my inbox used to get too full. And then I find other latest posts, unanswered and new posts by clicking on Lived Experience Forum at the top of the page. Tagging @CheerBear and @Faith-and-Hope and @outlander here in case they can help you with this.

Hope today is going well for you so far. I'm fighting a cold (worst possible timing with my trip coming up) so am running out of steam this morning. Will probably go back to bed for a while soon. Take care.

In response to: Re: A long rave

Re: A long rave

hi @Angels333
have you posted on the thread you want to subscribe to? usually if you make a post to that thread itll automatically subscribe you to it. If you want to change the settings to something like 'only notify me when tagged' or 'Notify me to all notifcations' you can find these in the settings sections under either notifications or subscriptions (cant qute remember which one atm). this only applies to emails though, youll still get all the notifications on the site under the bell whether you want all notifcations or only the ones your tagged in as an email setting.

if thats still not working, try posting again and see if that helps. if its not working then it might be a glitch in which you can let the mods know in this thread Notification troubles

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