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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Feeling a lot better this morning than I was yesterday @eth Still taking it easy today and will catch up on some sleep but the uncomfortable head symptoms have eased. Still can't breathe out of my nose but it has stopped dripping like a tap

I have to go into work after school to feed the hermit crabs and fill up their water for over the weekend - also have to go to the chemist so will do those things all at once this afternoon then home again and straight into jammies and back on the couch.

I am also hoping to begin unpacking the trailer but that will very much be dependent on how much energy I have, whether I can physically lifet anything and if I can breathe.

What do you have on today Hon?

In response to: Re: A long rave

Re: A long rave

@Zoe7 don't overdo it with the trailer job ok?

I have a support worker for 2 1/2 hours from 10.30. Will walk to the chemist and back and then maybe go check out the latest exhibition at the main art gallery and see if there's anything there that inspires me to write in response (ekphrastic writing) which is the exercise for my creative writing group at the moment. They gather next wed and I haven't written anything in the 3 weeks since last gathering. I can always re-work something I've written before now, but would rather have something new.

In response to: Re: A long rave

Re: A long rave

Hope you make it to the exhibition and it inspires you @eth

I will not overdo it with the trailer but need to get at least some off today so I can start cutting the palings over the weekend. If we do not get the birdhouses started from Monday then we will not get them finished for the Art Expo in a couple of weeks.

I can also take some time today to begin planning for next week - that is something I can do while resting up as well. I couldn't do anything yesterday as I was just too unwell but feeling a little better today I can also focus better.

In response to: Re: A long rave

Re: A long rave

@Zoe7 that sounds like another fabulous project for your kids. I hadn't heard about it yet. You are amazing the way you come up with such great ideas for them. I imagine building bird houses will involve some measuring, maths etc.

Feel better soon xx

The forum yesterday was interesting and I found out a little about a few things relevant to me that I will research with my peer mentor I hope. Did get to meet her too and even had a few hugs with her and others. The people from the disability alliance are so warm and welcoming, I get quite emotional each time I am with them. One of the things one carer parent spoke about was the extreme importance and value of 'freely given friendships' in the community as part of safeguarding a person. It was profound. I reflected that that is also something we have here on the forums, and also that it is strong within the disability alliance. So I've decided to try out their 'catch up crew' which is one night a month, even tho' it is at a pub. Unfortunately I'll be away for the next one but it will happen sooner than later. Also I was invited to join their womens' group which I'll really look forward to. Both these activities are more social and don't have an agenda like the other gatherings I've been to so far so more opportunity to make friends and hear more of people's stories.

The whole day was pretty tiring, with presentations by people with disabilities, support workers, support organizations, the National Disability Services Commission and the NDIS about their code of conduct, all chaired really well by the disability alliance. The topic was Quality and Safeguarding in the Disability Sector.

In response to: Re: A long rave

Re: A long rave

It sounds like a really lovely and productive day for you yesterday @eth So great you can join in some groups as well - that is awesome for you Hon

We do have that 'freely given friendships' here on the forum. So many of us have really strong bonds with people but as a whole community we are all connected and openly give and receive that sense of friendship and support as well. It is the cornerstone of why this place works - everyone is accepted, encourage and welcomed despite so many differences and views. It reflects how society should be and serves as a great example of how so many different people can 'live' in the same space.

We have a school Art Expo coming up in a couple of weeks and I am doing the birdhouses with the kids for that. I am falling behind in actually achieving that but aiming to get 4 done each day with the kids over the next 2 weeks and that will leave a couple of days for them to decorate as they wish with an extra weekend in there for everything to dry. I will cut each piece needed but they will need to drill, glue and nail everything together themselves then paint or decorate themselves. They actually look better all natural but that is up to the kids. It will be a lot of work - and a lot of planning to have those not doing the birdhouses occupied with work they can do independently - so a lot to get done over the weekend. My aim is to get the fence palings off the trailer and the nails out of them today and then cut them up tomorrow and Sunday. The cutting itself will usually take less time than the preparation but knowing I am pretty weak still I will need to take more time to do it all.

In response to: Re: A long rave

Re: A long rave

Good on you @Zoe7 I'm sure you'll reach your goal with the bird houses. I've got to go now. Have a restful but productive day xx

In response to: Re: A long rave

Re: A long rave

Hope you have a good day @eth I need to rest for a while myself

In response to: A long rave

Re: A long rave

@Zoe7 have a good day.

In response to: A long rave

Re: A long rave

@eth have a good day.

In response to: A long rave

Re: A long rave

Hi @Bunniekins Bit wet here today and don't feel like doing much so I won't. Hope all are going ok

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