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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Ok @Shaz51

I think i get the picture

At least you have each other

I sometimes wish i had a partner

So we could look after each other

But after 14 years of being single and living alone i don't know

Eude

In response to: A long rave

Re: A long rave

my mr shaz is recovering from a visit from his very negative mother who spoke of everything negative

he is not talking but overthinking too much at the momentbut he will get there @Angels333

wonderful news about S1 and S2 xx

tender hugs for you and your D1 @Angels333

sooo glad you have Mr @Angels333

In response to: Re: A long rave

Re: A long rave

@eudemonism, I was single until I was 43 my friend

and have been married for 12 years now

and have 4 step children

and a frail mother at 88

At least you have each other --- well kind of my friend xx

In response to: Re: A long rave

Re: A long rave

@Shaz51

In response to: Re: A long rave

Re: A long rave

Hi @Shaz51 and @eudemonism . I am single and often wish I had someone, anyone, to help me out and just be comfortable with. But I have always been to afraid to let anyone close. I end up pushing them away because I never learnt how to trust and don't know how. I keep getting told you do not "learn" it, but you just know. Obviously those people have had a totally different life to me. Now I would like to have someone close but don't know how to meet people. Maybe one day.

In response to: Re: A long rave

Re: A long rave

The counsellor I saw on Tuesday has found someone that comes here that I can go to. They have a maximum fee of $25 but can cut it right down. Am going to give them a go. Much more affordable than over $80, and also I do not have to get to the city for them which costss over $20 for a train ticket. So even of I have to pay the whole amount it will be cheaper. And not being a local person will be easier I think. That way I will not be worried about them letting anything out. I know that they are not meant to, but I still worry. I always worry about being judged. And I am working on getting someone to help get rid of some of the junk from my house. It will take forever just using the bin and most garden and cleaanup places will not do it because the tip charges them too much. Just contacted the local rehab to see if a couple of their guys could do some tip runs for me (they do a social enterprise contracting / gardening service). I can claim some money on NDIS to help pay for it as long as it is not too many hundreds of dollars in all. If they can I will probably get a load a week or two depending on what my physical health allows me to do. I really want to get this done, and I have made a start. It is already obvious where I have been. But if I cannot get the rubbish taken away then it meaans I am limited by bin space not ability. I can't have someone come in to help me. I trried that a few years ago and that is why I am in the state I am now. They threw everything away they could get their hands on. So precious items were lost. So I did not clean properly for a long time. I have decided that when I get this finished I am going to make every Wednesday cleaning day. That will work because the bin is collected on Thursday. Now I have made the decision I should be able to keep to it. If only I can get the rubbish removed to the tip. I have some boxes to get rid of so will use them to take some stuff and put more in bags. But will not do it more than the bins (rubbish collected weekly, recycle bin fortnightly, so 3 bins a fortnight) until I manage to find someone to get it taken away.

I guesss it is a start getting to this stage. But who thought it would be so hard getting rubbish removed? The only organisation I found that helps disabled people locally with rubbish removal wil not help if you are eligible for NDIS because it might risk their other funding. So that is no help to anyone .

Sorry for being long. Trying to get my head around things and I feel safe doing it here. Spent an hour on getting rid of junk this afternoon and the body has stopped but the brain does not want to!

In response to: Re: A long rave

Re: A long rave

That all sounds really positive @cutiepiekitty The psychologist coming to your town and the lower fee is awesome It may take you some time to clean everything out and I hope you can getn someone to help you take things to the tip. Having a day a week to clean things is a good idea. I do that mostly on a Thursday as our bin collection day is Friday - it does help to have that focussed day though.

Good on you for so many positives today - it makes a real difference when we can get some of these things weighing us down sorted ...or at least on the way to being so.

In response to: Re: A long rave

Re: A long rave

Thanks @Zoe7 . I suppose making the decisions and getting started were hardest. Now I know I have to make it a habit. I have made Tuesday washing day. I have trouble trying to hang clothes out so would need help, but do not want to let a worker come and do it. So I go to the local Laundromat which is staffed. They are always ready to help any way needed and even give free coffee! The owners are wonderful people, and I have been known to vent with them a couple of times. Now I know I have made that commitment I do it, and if anything comes up (like having to go out of town on Tues for the appointment) I go on the Monday. One week I did not turn up because I was not well and they even checked up on me after lunch because I had not been in! They have a pick up and delivery service I could use if I needed to, but I took the bite that I would get myself out each week and do it myself there. A weeks washing fits in my gopher bag and it is clean and dried for about $14. Much cheaper (and more comfortable for me) than having to get someone come and help. When I need to do blankets it costs a bit extra, but thats fine.

So I know that I CAN stick to a routine when I get myself into it. Now I have written it and put it out there that I WILL get the place cleaned out and clean through every week when it is done I am sure I will be able to do it. That is something I have just realised......I CAN make myself set a goal and routine and stick to it. I never learnt how to before so I guess that is good. Means that I will be doing Tuesday washing, Wednesday cleaning, Thursday craft and every second Friday in school terms my play date. That is when I look after a bunch of under 2.5 year olds while their mums are in a group doing whatever they do.

Someone asked me one day why I always tell the kids that they are safe and loved when I pick them up to cuddle or settle them. I have had people say that several times since and I have never had an answer. One of the mums answered that last week for and to me......It is because everyone needs and deserves to be safe and loved and you don't know it if you are not told. She then told me that for the first time ever in my life. I never knew what it felt like to hear that. I just did what I thought they needed so I suppose that even if we do not get things we know inside they are needed

In response to: Re: A long rave

Re: A long rave

That is so lovely to tell the kids that @cutiepiekitty - that is something we all need - to feel safe and loved That is really important for me at work to let the kids know that they are safe and loved as well. It is also important to me that they are happy as happy kids learn more.

You seem to have your days sorted and you are right - setting goals like that often help us to get things sorted. It will be great if you can achieve all that and continue each week with the goals you have set. I love that the people from the laundromat checked up on you the day you were sick - they sound like very lovely and caring people and it is gret that you get on with them so well.

I am off to bed but I will be interested to follow how you go with your goals across the next few weeks. Tag me into updates so I can follow along. Goodnight Hon - hope you sleep well too

In response to: Re: A long rave

Re: A long rave

Thanks @Zoe7 Have a good night. I am laying in bed with my kitty because of physical pain from doing too much. Just taken meds and will probably turn in about 8.30.

Yes, the laundry people are very special. He is an ex US marine and he moved to Aus and married. They are very beautiful, caring people, and I find I can really talk to her. They ensure that all their staff are polite and helpful and treat everyone properly or they are warned then put off if they will not conform to the ethics of their business. It is not just a laundry, they also own a cleaning business and have in the last couple of weeks opened a child and out of school care centre. They just love people.

Have a good night

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